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LGS Foundation - Lennox Gastaut Syndrome
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Standing Together. Stronger Together.

  • About LGS
    • Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.

      • What is Lennox-Gastaut Syndrome?
      • What Causes LGS?
      • How is LGS Diagnosed?
      • How is LGS Treated?
      • How Many People Have LGS?
      • LGS and Infantile Spasms
      • Read LGS Stories
      • Glossary of Terms
  • New to LGS
    • A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.

      • A Message for New Families
      • Request a New Family Welcome Kit
      • Find a Doctor or Comprehensive Care Center
      • Learn about Seizures & Safety
      • Create a Seizure Action Plan (SAP)
      • Request Info & Materials
  • For Families
    • If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.

      • Get Connected and Supported
        • Caregiver Support
        • Patient Navigators & Ambassadors
        • Sibling Support
        • Patient Assistance Program
        • For Our Bereaved Families
      • Join a Community Awareness Event
        • Family & Professional Conference
        • Walk ‘n’ Wheel for LGS Research
        • International LGS Awareness Day
      • LGS Learning and Resource Center
      • Additional Resources
  • About Research
    • Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.

      • About Our Research Programs
      • Cure LGS 365 Research Grants
        • Research Grant Recipients
      • Voices of LGS and Natural History
      • Key LGS Publications
      • Clinical Trials
      • Research Conferences
        • Patient-Focused Drug Development (PFDD) Meeting
        • Meeting of the Minds Conference
        • LGS Foundation Seminar Series
        • LGS Research Roundtable at AES
  • Get Involved
    • Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.

      • Sign Up for Our Newsletter
      • Follow Us on Social Media
      • Share Your Story
      • Share the Latest Research News
      • Volunteer
      • Fundraise and Raise Awareness
      • Shop Our LGS Store
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      • Share Your Ideas with Us
  • Donate
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Home / Team

Our Team

LGS Foundation Staff

Tracy Dixon-Salazar, PhD

Executive Director

Amber Mathas

Director of Operations

Ashley Burns

Office Manager

Kathy Leavens

Director of Programs

Jennifer Griffin

Director of Family Support

Cindy Dawson

Development Manager

Kayleigh Keen

Interactive Media Associate

Board of Directors

Natalie Gilmore

President

Melanie Huntley, PhD

Past-President

Karen H. Groff, M.Ed.

Vice President

Kevin Merritt, CFA

Treasurer

Christopher Mitchell, JD

Secretary
Brittany Brown

Brittany Brown

Board Member

Dale Todd

Board Member

Medical Science Advisory Board

Scott Baraban, PhD

Co-Chair, University of California, San Francisco

Elaine Wirrell, MD

Co-Chair, Mayo Clinic, Rochester

Pete Crino, MD, PhD

University of Maryland, School of Medicine

Jenny Hsieh, PhD

University of Texas, San Antonio

Bobby Hunt, PhD

University of California, Irvine

Scott Perry, MD

Cook Children's Hospital, Fort Worth

Leadership Circle

Tim Benke, MD, PhD

Children's Hospital Colorado

John R. Currier

Massachusetts Institute of Technology (MIT)

Zach Grinspan, MD

Weill Cornell Medicine

Eric Marsh, MD, PhD

Children’s Hospital of Philadelphia

Susan Masino, PhD

Trinity College

Heather Mefford, MD, PhD

St. Jude Children's Hospital

Anup Patel, MD

Nationwide Children's Hospital

Jeanne Paz, PhD

University of California, San Francisco

Brenda Porter, MD

Stanford University

Ambassador Regional Coordinators

Darla Davison

Northeastern Region

Lesa McLeod

Southern Region

Tayla Shoultz

Central Region

Christy Wall

Western Region

Get Involved:

  • Volunteer
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LGS Foundation - Lennox Gastaut Syndrome

6030 Santo Road, Suite 1, Unit 420878
San Diego, CA 92142
info@lgsfoundation.org

Rare As One Rare Epilepsy Network Neurology Live GuideStar - Silver

A very special thank you to the TSC Alliance, Dravet Syndrome Foundation, and Child Neurology Foundation for assisting in preparing this website. This website is made possible through grants from our partners. Partners did not have a role in developing content. Thank you to:

Aquestive Eisai Greenwich Zogenix

The information you obtain at this site is not, nor is it intended to be, medical advice. Full Disclaimer
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