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LGS Foundation - Lennox Gastaut Syndrome
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Standing Together. Stronger Together.

  • About LGS
    • Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.

      • What is Lennox-Gastaut Syndrome?
      • What Causes LGS?
      • How is LGS Diagnosed?
      • How is LGS Treated?
      • How Many People Have LGS?
      • LGS and Infantile Spasms
      • Read LGS Stories
      • Glossary of Terms
      • Request Info & Materials
      • For Healthcare Professionals
  • New to LGS
    • A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.

      • A Message for New Families
      • Request a New Family Welcome Kit
      • Request an About LGS Treatments Kit
      • Find a Doctor or Comprehensive Care Center
      • Learn about Seizures & Safety
  • For Families
    • If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.

      • Get Connected and Supported
        • Caregiver Support
        • Sibling Support
        • Patient Navigators & Ambassadors
        • Patient Assistance Program
        • For Our Bereaved Families
      • Clinical Trials in LGS
      • LGS Learn From Every Patient Database
      • Join a Community Awareness Event
        • Family & Professional Conference
        • Walk ‘n’ Wheel for LGS Research
        • International LGS Awareness Day
      • LGS Learning and Resource Center
      • Request Information & Materials
      • Additional Resources
  • About Research
    • Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.

      • Finding the Cures, Together
      • Cure LGS 365 Research Grants
        • Cure LGS 365 Research Grant Recipients
      • Voices of LGS and Natural History
      • For Healthcare Professionals
        • Key LGS Publications
      • Research Conferences
        • Patient-Focused Drug Development (PFDD) Meeting
        • LGS Meeting of the Minds
        • LGS Foundation Seminar Series
        • LGS Research Roundtable at AES
  • Get Involved
    • Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.

      • Share Your Story
      • Volunteer
      • Advocates for LGS
      • Attend an Event
      • Sign Up for Our Newsletter
      • Ways to Give
      • Fun with Fundraising
      • Shop Our LGS Store
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Home / Team

Our Team

LGS Foundation Staff

Tracy Dixon-Salazar, PhD

Executive Director

Kathy Leavens

Senior Director of Programs

Amber Mathas

Senior Director of Operations

Jennifer Griffin

Director of Family Support

Ashley Burns

Director of Finance and Administration

Kayleigh Keen

Communications & Community Engagement Manager

Hanna Jorgenson

Communications Coordinator

Board of Directors

Natalie Gilmore

President

Melanie Huntley, PhD

Past-President

Karen H. Groff, M.Ed.

Vice President

Kevin Merritt, CFA

Treasurer

Christopher Mitchell, JD

Secretary

Brittany Gostomski

Board Member

Fred Roedl

Board Member

Dale Todd

Board Member

Medical Science Advisory Council

Scott Baraban, PhD

Co-Chair, University of California, San Francisco

Elaine Wirrell, MD

Co-Chair, Mayo Clinic, Rochester

Pete Crino, MD, PhD

University of Maryland, School of Medicine

Jenny Hsieh, PhD

University of Texas, San Antonio

Bobby Hunt, PhD

University of California, Irvine

Scott Perry, MD

Cook Children's Hospital, Fort Worth

Leadership Circle

John R. Currier

Massachusetts Institute of Technology (MIT)

LGS Community Support Coordinators

Jacqueline Villatoro

West Babylon, NY

Lesa McLeod

Hudson, FL

Jeannie Schnur

Leesburg, VA

Darla Davison

Kennedy, NY

Tricia Proefrock

Palm Beach Gardens, FL

Christy Wall

Post Falls, ID

Jamie Riley

North Haverhill, NH

Amy Rose

Spokane Valley, WA

Get Involved:

  • Volunteer
  • Fundraise
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LGS Foundation - Lennox Gastaut Syndrome

6030 Santo Road, Suite 1, Unit 420878
San Diego, CA 92142
info@lgsfoundation.org
(718) 374-3800

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A very special thank you to the TSC Alliance, Dravet Syndrome Foundation, and Child Neurology Foundation for assisting in preparing this website. This website is made possible through grants from our partners. Partners did not have a role in developing content. Thank you to:

Aquestive Eisai Jazz UCB

The information you obtain at this site is not, nor is it intended to be, medical advice. Full Disclaimer
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