Latest News

The Meeting of the Minds Blew Our Minds

Our 2nd Biennial LGS Research Meeting of the Minds was an Overwhelming Success! Watch the short recap video from our Executive Director, Tracy Dixon-Salazar, PhD   Over 150 people attended this two-and-a-half-day hybrid research meeting in Baltimore, MD to discuss…


International LGS Awareness Day & Epilepsy Awareness Month

Help Raise LGS Awareness This November!

Our Mission:  To raise awareness for the more than One Million children and adults worldwide living with Lennox-Gastaut Syndrome! YOU are a part of something BIG, and your efforts make a BIG impact! Please join us in raising awareness for…


LGS Advocates are Raising Their Voices

Written By: Jennifer Griffin, Director of Family Support Just 6 months after we took the nation’s capital by storm for Rare Disease Week on Capitol Hill, the LGS Advocates were at it again in their local communities as part of…


Illuminate for LGS – Locations Around the World Light Up for LGS Awareness

The LGS Foundation continues to shine a light on Lennox-Gastaut Syndrome as we Illuminate for LGS. Promoting awareness and an understanding of what matters to LGS families. You Can Join Us! Each November, ​as part of the many awareness initiatives…


Discovering Breakthroughs and Innovations in LGS Research

Over the past five years, LGS research has experienced significant advancements, providing hope for individuals and families affected by this complex disorder. At the LGS Foundation, we know that patient-driven research plays a vital role in driving research on topics…


Stamp Out VNS Myths!

Our community is stronger with facts! When it comes to Vagus Nerve Stimulator therapy (VNS Therapy) for seizure reduction, do you know fact from fiction?

We are Stronger with Facts: Let’s stamp out VNS Myths! LGS is tough; finding information doesn’t need to be. That’s why we are helping our community separate fact from fiction around Vagus Nerve Stimulation (VNS) Therapy. Often, information on specific…


Financial Resource Toolkit for LGS Families

The following list contains links to third-party websites. The LGS Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our…


LGS Learn From Every Patient Database

Help Us Find Better Treatments and Cures for LGS

What is a Learn from Every Patient Database? Implemented in 2023, the LGS Learn from Every Patient Database collects medical records about those with LGS to document the impact of LGS on a person’s health over their lifetime. This information…


Trick or Treat for LGS

Order your free About LGS Trick or Treat cards and spread awareness during Halloween.

Order Your About LGS Trick Or Treat Cards Today! (Available in English and Spanish) Front of card Back of card Cards are business card sized (3.5 inches x 2 inches) and come in packs of 25. Cards shipped while supplies…



A Clinical Study for Children and Adults with Lennox-Gastaut Syndrome

The LGS DISCOVER study, also identified as the YKP509C003 study, is a clinical trial for pediatrics and adults with Lennox-Gastaut Syndrome (LGS). The LGS DISCOVER study will evaluate whether an investigational medicine called carisbamate, when given along with other anti-seizure…