Latest News

LGS Foundation’s 12 Days of Giving

Thank you for the many ways you give to the LGS Foundation. Because you give, we can give to others. We invite you to follow throughout December to celebrate 12 important moments we’ve impacted together. Please give, and share these moments…


International LGS Awareness Day & Epilepsy Awareness Month

Help Raise LGS Awareness This November!

November 1st International LGS Awareness Day Each year, the LGS Foundation organizes a social media campaign and in-person events worldwide in recognition of International LGS Awareness Day. Our goal is to raise awareness of LGS and bring LGS families together….


2022 LGS Research Roundtable at AES

Every year, the LGS Foundation organizes the LGS Research Roundtable at the American Epilepsy Society (AES) annual meeting in an effort to #FreeTheData. Join us as we hear updates from our grant recipients and research collaborations. Registration is Open for the LGS…


The LGS Foundation Joins Chan Zuckerberg Initiative’s Rare As One Network

The LGS Foundation is proud to be part of the Chan Zuckerberg Initiative’s Rare As One Network – a group of 50 patient-led organizations that are accelerating research and driving progress in the fight against rare diseases. The LGS Foundation…


Behind the Mystery of LGS

On Lifetime TV's the Balancing Act

Watch the Full Episode Below: A Mom’s Journey to Understand Her Daughter’s Rare Disease Join Us as We Go Behind the Mystery of LGS Tracy Dixon-Salazar knows firsthand the devastating effect of Lennox-Gastaut Syndrome (LGS) — her daughter Savannah developed…


Our Board of Directors

It is a pleasure to introduce Our Board of Directors to You Our Board of Directors brings a wealth of experience and expertise to the LGS Foundation, united by their passion for our mission to end the devastation and suffering…


Leaders in LGS Award

The LGS Foundation seeks to recognize Those who have made a significant Impact in the LGS community The LGS Foundation appreciates and values our community’s commitment to ending the devastation and suffering caused by LGS and recognizes the significant impact…


Trick or Treat for LGS

Order your free About LGS Trick or Treat cards and spread awareness during Halloween.

Order Your About LGS Trick Or Treat Cards Today! (Available in English and Spanish) Front of card Back of card Cards are business card sized (3.5 inches x 2 inches) and come in packs of 25. Cards shipped while supplies…


Get Your LGS Awareness Box

Raise Awareness All November Long

  Each LGS Awareness Box includes: Yard Sign w/ Stake Vehicle Magnet  Chico Carrying Bag Light Up Bracelets/Necklace Handmade Windchime Trick-or-Treat Cards ‘How to Illuminate’ Guides Sorry, but we’re all sold out!


Our Medical Science Advisory Board

meet the amazing doctors and scientists that make up our medical Science Advisory Board (MSAB) This amazing group of individuals is taking a stand against Lennox-Gastaut Syndrome by helping our team in the Foundation’s mission to accelerate LGS research. The…