Latest News

Illuminate for LGS – Locations Around the World Light Up for LGS Awareness

International LGS Awareness Day takes place every year on November 1st, kicking off Epilepsy Awareness Month and lasting throughout the entire month of November. ​As part of the many awareness initiatives that are organized around the world, locations in dozens…

More

Our Little Ironman

Charles (age 10)

Life throws us curveballs. And in the fall of 2012, my wife and I got thrown a big one. At only 18 months old, Little Charles Wagner was diagnosed with Lennox-Gastaut Syndrome (LGS), a rare and severe epilepsy disorder characterized…

More

International LGS Awareness Day

Join us on November 1st for International LGS Awareness Day Each year, the LGS Foundation organizes a social media campaign and in-person events worldwide to recognize International LGS Awareness Day.  In addition, more than 50 locations will Illuminate for LGS…

More

LGS Research Roundtable

Every year, the LGS Foundation organizes the LGS Research Roundtable at the American Epilepsy Society’s annual meeting in an effort to #FreeTheData and share research updates from our grant recipients and research collaborations. 2021 Roundtable Agenda Come hear about the amazing…

More

LGS Foundation Meeting of the Minds

The LGS Foundation is organizing the first-ever Meeting of the Minds professional conference to find disease-modifying therapies and cures for LGS. This two-day Virtual Conference will bring together patients, families, doctors, researchers, industry partners, and advocacy organizations to discuss progress…

More

Celebrating our Rockin’ LGS Siblings

It can be hard for brothers and sisters when a sibling has a chronic illness like LGS. Their routines are disrupted, and they worry and wonder what is happening and if their sibling will be alright. Often parents’ time is…

More

LGS Foundation Community Teams

Do you want to share your enthusiasm and energy? Do you want to share your experience? Do you want to make an impact in the lives of those living with LGS? Then we need you! Join an LGS Foundation Community…

More