Tips for trips by car, plane, and cruise ship
Family trips are possible with Lennox-Gastaut syndrome (LGS). A few tips and a little extra planning make travel safer, calmer, and more fun for everyone. Before You Go Know what is typical. Keep the seizure diary up to date so…
Clear, practical one-pagers on the topics that matter most to families living with LGS
Caring for someone with LGS means learning about many things at once: seizures and treatments, school and therapies, insurance and benefits, emergencies and everyday routines. It can be a lot to take in, especially when you need answers quickly. This…
A Day of Learning
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Let’s Raise Awareness this November… together!
Faces of LGS: Real Stories, Real Research Every person living with LGS has a story. Every family experiences LGS differently. This year, we’re putting those stories at the center of International LGS Awareness Day™ and connecting them to the research…
More Than a Meeting: Building Relationships
Have you ever wanted to talk to your members of Congress but weren’t sure where to start? The lessons learned from the LGS Advocates provide an opportunity to take that first step. Every August, lawmakers return to their home states…
Individuals of any age who meet the criteria for drug-resistant epilepsy (defined as failure to achieve seizure freedom after using two or more anti-seizure medications) are considered surgical candidates and are eligible for assessment. Epilepsy surgery is complex and differs…
Finding the right surgery for your LGS loved one takes time and careful planning. The full evaluation process usually takes a few weeks to a few months. While this might feel like a long wait, getting a thorough picture of…
Is My Surgeon Qualified? All surgeons must be licensed by their state. Some hospitals also require extra certifications. For children, you’ll want a doctor who has specialized training in brain surgery specifically for kids. Brain surgery in children requires extra…
From seizures to full lives through precision diagnoses, precision treatments, and whole‑life care Every family living with Lennox‑Gastaut Syndrome knows how hard this journey can be—and how deeply we all dream of better answers and brighter days. That’s why the…
What is Responsive Neurostimulation (RNS)? The word “responsive” means this device is smart, it monitors what’s happening in the brain and reacts in real time. The RNS System is a small, programmable device that continuously monitors brain activity. When it…
