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The LGS Foundation Receives Chan Zuckerberg Initiative Rare As One Grant

This grant will support the development of a diverse and inclusive network that brings together LGS patient, their families, and researchers to accelerate diagnosis, treatments and cures.

The LGS Foundation is among a select group of rare disease organizations to receive third-year funding as part of the Chan Zuckerberg’s Initiative, Rare As One (RAO). “In 2019, the Chan Zuckerberg Initiative launched the Rare As One Network, funding…

Our Medical Science Advisory Board

meet the amazing doctors and scientists that make up our medical Science Advisory Board (MSAB) This amazing group of individuals is taking a stand against Lennox-Gastaut Syndrome by helping our team in the Foundation’s mission to accelerate LGS research. The…

8th International Family & Professional Conference

Every two years, the LGS Foundation organizes a comprehensive multi-day educational meeting. The conference brings together more than 350 LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and how to live with…

Seizures and Study: One Mother’s Journey to Cure Lennox-Gastaut Syndrome

How Tracy Dixon-Salazar, PhD, the executive director of the LGS Foundation, went from a new mother to a neuroscientist, and her decades-long quest to improve the lives of patients like her daughter, Savannah.

Many who make the decision to enter the medical science field are often driven by a desire to help others. Physicians take the Hippocratic Oath and swear to treat the ill and do no harm, and researchers are, many times,…

Behind the Mystery of LGS

On Lifetime TV's the Balancing Act

Watch the Full Episode: A Mom’s Journey to Understand Her Daughter’s Rare Disease Join Us as We Go Behind the Mystery of LGS Tracy Dixon-Salazar knows firsthand the devastating effect of Lennox-Gastaut Syndrome (LGS) — her daughter Savannah developed it…

Help Solve the Mystery of LGS

Epilepsy Awareness Month Focuses on Solving the Mystery of LGS and Other Rare Epilepsies

Donate now International LGS Awareness Day brought together thousands of people around the world to show that the challenges associated with LGS are tough, but so are those affected by this rare disease. This also kicked off Epilepsy Awareness Month…

Our Little Ironman

Charles (age 10)

Ironman Dad Raising Funds to provide Crucial Medical Equipment to Kids and Adults with LGS Charles will be competing in an Ironman competition to raise funds and awareness for the LGS Foundation’s Elevate Patient Assistance Program to help individuals like…

Listening to and Supporting LGS VIP Siblings

Get Your VIP Siblings Kit Today

First, we listened! It can be hard for brothers and sisters when a sibling has a chronic illness like LGS. Their routines are disrupted, and they worry and wonder what is happening and if their sibling will be alright. Often…

Seizure Action Plan Awareness Week

February 14-20, 2022

In 2021, the Seizure Action Plan (SAP) Coalition launched its new website at www.seizureactionplans.org in conjunction with Seizure Action Plan Awareness Week. This new website offers information and resources for patients, professionals, and advocacy organizations to learn about and spread…