Hope Abounds as Lennox-Gastaut Syndrome (LGS) Research Took Center Stage at the 2024 American Epilepsy Society Meeting Increased awareness and research positioned LGS as a major area of interest at this year’s AES Annual Meeting. LGS was highlighted as more…
A New Wave of Hope
The DEEp OCEAN clinical study is assessing the safety of the investigational drug, bexicaserin, and its potential to reduce the number of seizures in children and adults with Developmental and Epileptic Encephalopathies (DEE). Eligible participants include individuals aged 2 to…
What are palliative and hospice Care? Palliative care and hospice care both focus on the comfort, care, and quality of life for individuals with a serious illness. The biggest difference between the two is that palliative care supports a person’s…
You Can Make a Difference for Families Impacted by LGS!
This holiday season, help us bring hope and essential support to those impacted by Lennox-Gastaut Syndrome (LGS). Your gift provides critical resources, education, and connection for families who need it most. Our goal is to raise $50,000, but we’ll only reach…
We are committed to helping LGS Families impacted by natural disasters get the assistance they need. The following list contains links to resources and third-party websites that specialize in emergency disaster relief. You can also email us at familysupport@lgsfoundation.org and…
The Advocates for LGS team is a small but dedicated group of caregivers who recognize the need for change at the systems level to provide a brighter future for their loved one with LGS. Every August during the congressional summer…
Our community is stronger with facts! When it comes to CBD (cannabidiol), do you know fact from fiction?
Cannabidiol (CBD) is an exciting focus of medical research, popular media, and legislation related to cannabis. Its presence is becoming ubiquitous on the shelves of health food stores and search engine results for numerous medical conditions, but don’t believe everything…
The Latest in LGS Research - July 2024
While there are no cures for LGS, current LGS Foundation-funded researchers are focused on two areas where their efforts can lead to improved lives for those with LGS and their families. One of these areas is seizure control and another…
This page offers a list of FDA- approved treatments often used in those with LGS. Not all medications used in LGS are listed here. This list reflects U.S. FDA-approved medications. For info on epilepsy treatments in the U.K. visit this…
Meet Dominic
My name is Jackie and I am the proud mother of an LGS warrior, Dominic, who is 11 years old. Dominic loves swimming, Legos, Superheroes, playing soccer, and Minecraft. Dominic experienced his first seizure when he was 3 years old….
