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The LGS Foundation Receives Chan Zuckerberg Initiative Rare As One Grant

This grant will support the development of a diverse and inclusive network that brings together LGS patient, their families, and researchers to accelerate diagnosis, treatments and cures.

The LGS Foundation is among a select group of rare disease organizations to receive third-year funding as part of the Chan Zuckerberg’s Initiative, Rare As One (RAO). “In 2019, the Chan Zuckerberg Initiative launched the Rare As One Network, funding…

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Listening to and Supporting LGS VIP Siblings

Get Your VIP Siblings Kit Today

First, we listened! It can be hard for brothers and sisters when a sibling has a chronic illness like LGS. Their routines are disrupted, and they worry and wonder what is happening and if their sibling will be alright. Often…

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