Latest News

Discovering Breakthroughs and Innovations in LGS Research

Over the past five years, LGS research has experienced significant advancements, providing hope for individuals and families affected by this complex disorder. At the LGS Foundation, we know that patient-driven research plays a vital role in driving research on topics…


Stamp Out VNS Myths!

Our community is stronger with facts! When it comes to Vagus Nerve Stimulator therapy (VNS Therapy) for seizure reduction, do you know fact from fiction?

We are Stronger with Facts: Let’s stamp out VNS Myths! LGS is tough; finding information doesn’t need to be. That’s why we are helping our community separate fact from fiction around Vagus Nerve Stimulation (VNS) Therapy. Often, information on specific…


Financial Resource Toolkit for LGS Families

The following list contains links to third-party websites. The LGS Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our…


Trick or Treat for LGS

Order your free About LGS Trick or Treat cards and spread awareness during Halloween.

Order Your About LGS Trick Or Treat Cards Today! (Available in English and Spanish) Front of card Back of card Cards are business card sized (3.5 inches x 2 inches) and come in packs of 25. Cards shipped while supplies…



A Clinical Study for Children and Adults with Lennox-Gastaut Syndrome

The LGS DISCOVER study, also identified as the YKP509C003 study, is a clinical trial for pediatrics and adults with Lennox-Gastaut Syndrome (LGS). The LGS DISCOVER study will evaluate whether an investigational medicine called carisbamate, when given along with other anti-seizure…


LGS Foundation at the 2023 American Epilepsy Society (AES) Annual Meeting

Join the LGS Foundation in Orlando, FL December 1 – 5, 2023 Are you attending the American Epilepsy Society Annual Meeting in Orlando, Florida, in December? Visit us in the Epilepsy Resource Area of the Exhibit Hall (booth N844). Here, our…


RNS System Clinical Trial

RNS System Responsive Stimulation for Teens and Adults with Lennox-Gastaut Syndrome (LGS) Study

The purpose of the RNS System Lennox-Gastaut Syndrome (LGS) study is to generate preliminary safety and effectiveness data for brain-responsive neurostimulation of thalamocortical networks as an adjunctive therapy in reducing the frequency of generalized seizures in individuals 12 years of…


Celebrating 15 Years of Progress and Hope!

2008 to 2023: 15 Amazing Years of Progress!

Nobody Walks the LGS Journey Alone Formed in 2008, the LGS Foundation has since grown into an internationally recognized nonprofit organization that is improving the lives of those impacted by LGS through advancing research, awareness, education, and family support. The…


The LGS Foundation Goes to Washington

Rare Disease Week on Capitol Hill

On the last day of February every year, we pause to honor those who are living with, or have passed away from, a rare disease. The last day of February after all, is the rarest day of the year. It’s…


Behind the Mystery of LGS on Lifetime TV

The Balancing Act on Lifetime TV Celebrates Rare Disease Day Watch Now: The Lennox-Gastaut Syndrome Foundation: Working Together to Find a Cure Executive Director of the LGS Foundation Dr. Tracy Dixon-Salazar sits down with Montel Williams to discuss the Foundation’s…