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The LGS Foundation Receives Chan Zuckerberg Initiative Rare As One Grant

This grant will support the development of a diverse and inclusive network that brings together LGS patient, their families, and researchers to accelerate diagnosis, treatments and cures.

The LGS Foundation is among a select group of rare disease organizations to receive third-year funding as part of the Chan Zuckerberg’s Initiative, Rare As One (RAO). “In 2019, the Chan Zuckerberg Initiative launched the Rare As One Network, funding…


Listening to and Supporting LGS VIP Siblings

Get Your VIP Siblings Kit Today

First, we listened! It can be hard for brothers and sisters when a sibling has a chronic illness like LGS. Their routines are disrupted, and they worry and wonder what is happening and if their sibling will be alright. Often…