2023 LGS Meeting of the Minds

Sept. 13-16, 2023 at Hilton Baltimore Inner Harbor

LGS Foundation Meeting of the Minds:
Advancing Clinical Research

September 13-15, 2023: Research Conference

September 16, 2023: Family Research Day

The LGS Foundation is hosting its second Meeting of the Minds to discuss how we can Advance Clinical Research in LGS. This hybrid conference will bring together researchers, healthcare providers, clinical trialists, scientists, advocacy groups, caregivers, and industry partners to discuss methods to measure seizure and non-seizure outcomes (communications, behavior, sleep, and other key areas) in LGS clinical trials.

Learnings from this meeting will help guide the LGS Foundation’s funding strategy in 2024 and beyond.

Attendance at this meeting is by invitation due to space limitations.
Please contact Research@LGSFoundation.org if you would like more information on attending.

Let’s Change the Future of LGS Research!

Special Thanks to Our Organizers:
Dr. Scott Perry
, Cook Children’s Hospital, Fort Worth, TX
Dr. Elaine Wirrell, Mayo Clinic, Rochester, MN
Dr. Peter Crino, University of Maryland, School of Medicine, MD
Dr. Jim Wheless, Le Bonheur Children’s Hosptial, TN

Click Below to View the Agenda:

2023 LGS Research Meeting of the Minds Agenda

Previous Research Conferences:

In September 2021, over 250 researchers and family members from 7 different countries joined the LGS Foundation for a 2-day discussion focused on finding LGS Disease-Modifying Therapies.

“This meeting was critical! It not only brought the research and family communities together, but it has helped guide the LGS Foundation’s support and research funding strategy MOVING FORWARD.” – Tracy Dixon-Salazar, PhD

Key Learnings: 
  • LGS Families are living in constant crisis, and most with LGS require help with every aspect of their daily lives. We need a transformative treatment!
  • Patient families compare current LGS treatment to throwing darts at a dartboard, but we are not learning from the dart patterns. Learning from every patient is crucial for understanding how to treat LGS today.
  • There is an underlying, unifying LGS epileptic network which is an anatomical structure made of groups of cells, channels, and molecules. We need to understand and treat the LGS network.
  • We’ve been treating LGS the same way for 30+ years. We treat seizures and hope for the best. We need to change this! We need to treat the whole syndrome, not just one symptom.

Download the Outcomes Reports

Our Partners

If you would like to become a national sponsor for this meeting, please contact Tracy@LGSFoundation.org for more information.

Updated 05/30/2023