The following list contains links to additional resources and third-party websites. The LGS Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our families, a listing here should not be construed as an endorsement for any products or services they may provide.
Epilepsy 101: The Basics
Medical Equipment & Equipment Exchange
- Epilepsy Action: About Seizure Safety Aids and Equipment
- Drop Support
- Joy on the Beach
- Cubby Bed
- Safety Sleeper
- PATI (Protector Against Tongue Injury)
- MedShare
Service Dogs
Caregiver & Patient Family Support
- CareGiving.com
- Courageous Parents Network
- RareCaregivers.org
- AngelAidCares.org
- Circle of Care Guidebook for Caregivers with Rare and/or Serious Illnesses
- Child Neurologist New Visit Toolkit
- A Guide to Genetic Testing
- Respite Care Notebook
- Transition of Care from Pediatric to Adult Neurology
- Family Voices
- Center for Parent Information and Resources
- Parent to Parent USA
- The Connect Parent
- Caregiver Advocacy Network
Education & Assistance Grants to Families
Disability & Advocacy Support
- Federation for Children with Special Needs
- The Arc
- National Disability Rights
- Special Needs Alliance
- Disability Rights Education & Defense Fund
- United Cerebral Palsy (UCP)
- TASH.org
- AAA State of Play – The Best and Worst U.S. States for People With Disabilities
- Ticket to Work
- Job Accommodation Network
- Patient Advocate Foundation
Trauma Support
Seizure Diaries
Seizure Alert Devices
SUDEP Awareness
G-Tube Resources
- Does Your Child Need a Feeding Tube? Here’s What You Need to Know
- Help Your Child Thrive: A Guide to Tube Feeding for Parents
Ketogenic Diet & Dietary Therapies for Epilepsy
Accessible Fun for LGS Families
- AccessiblePlaygrounds.net
- Best Day Foundation
- Challenger Baseball
- Access Sports America
- Special Olympics
- Night to Shine
- National Park Service Access Pass
- Camp Migdal
- Camp Boggy Creek
Flights to get a Second Opinion
- Angel Flights East
- Angel Flights NE
- Miracle Flights
- Pediatric Epilepsy Surgery Alliance Surgical Evaluation Travel Scholarship
- Air Care Alliance
Rare Epilepsy & Rare Disease Resources
Research, Education, & Awareness resources
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- Child Neurology Foundation
- American Epilepsy Society
- Epilepsy Foundation
- National Institute of Neurological Disorders and Stroke (NINDS)
- Seizures Are Signs
- Purple Day for Epilepsy Awareness
- 17 Special Education Advocacy Tips
- Special Education Rights and Responsibilities (SERR) Manual
- Navigating the IEP Process
- NORD Claim Your Care Program
U.S. Disaster Relief RESOURCES
Have a resource that you’d like to share with us? Please email us at info@lgsfoundation.org.
The above list contains links to third-party websites. The Lennox-Gastaut Syndrome (LGS) Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our families, a listing here should not be construed as an endorsement for any products or services they may provide.
Updated 08/17/26 (KK)