LGS Learning & Resource Center

LGS IS HARD. FINDING INFORMATION DOESN’T NEED TO BE.

The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center (LLRC) so those living with LGS can #NeverStopLearning

Whether it is to find a doctor, learn about epilepsy surgery, understand seizure clusters, or something else, the LLRC is here for you.

We are working hard to add topics to the LLRC. Is something missing? Please let us know at info@lgsfoundation.org

Stamp Out VNS Myths!

Our community is stronger with facts! When it comes to Vagus Nerve Stimulator therapy (VNS Therapy) for seizure reduction, do you know fact from fiction?

We are Stronger with Facts: Let’s stamp out VNS Myths! LGS is tough; finding information doesn’t need to be. That’s why we are helping our community separate fact from fiction around Vagus Nerve Stimulation (VNS) Therapy. Often, information on specific…

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Financial Resource Toolkit for LGS Families

The following list contains links to third-party websites. The LGS Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our…

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The LGS DISCOVER Study

A Clinical Study for Children and Adults with Lennox-Gastaut Syndrome

The LGS DISCOVER study, also identified as the YKP509C003 study, is a clinical trial for pediatrics and adults with Lennox-Gastaut Syndrome (LGS). The LGS DISCOVER study will evaluate whether an investigational medicine called carisbamate, when given along with other anti-seizure…

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RNS System Clinical Trial

RNS System Responsive Stimulation for Teens and Adults with Lennox-Gastaut Syndrome (LGS) Study

The purpose of the RNS System Lennox-Gastaut Syndrome (LGS) study is to generate preliminary safety and effectiveness data for brain-responsive neurostimulation of thalamocortical networks as an adjunctive therapy in reducing the frequency of generalized seizures in individuals 12 years of…

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Topiramate for Seizures in LGS

What is Topiramate? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Topiramate, sold…

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Stellina Study for Diazepam Nasal Spray (Valtoco)

A Clinical Study for 2 to 5 Year Old Children With Epilepsy

The Stellina Study is a clinical study evaluating a single dose of diazepam nasal spray (VALTOCO) as a rescue medication in children aged 2-5 who have been diagnosed with epilepsy. The objectives of the study are to assess the pharmacokinetics…

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PACIFIC Research Study

NOT RECRUITING

The PACIFIC Study is a clinical trial for a drug called LP352. This study will assess the safety and tolerability of this drug as well as examine changes in seizure frequency over the 90-day treatment period. The study plans to…

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Carisbamate for Seizures

What is Carisbamate? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Carisbamate (the…

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Caring for the Caregiver

Being a caregiver for a loved one with LGS is a commitment unlike any other. Caregiving requires limitless amounts of energy, empathy, and patience. While most caregivers will tell you that taking care of a loved one is a genuinely…

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The Skyway Study for Soticlestat

A Clinical Trial Open to Those With Seizures Associated with LGS

The Skyway Study is a Phase 3 clinical research study of an investigational medication for children, teens, and adults diagnosed with Lennox-Gastaut Syndrome (LGS) who are currently using 0-3 anti-seizure medications to manage symptoms and are still experiencing seizures. The…

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