Our Partners

We are all in this together

The LGS Foundation recognizes that by opening lines of communication, connecting patients, families, researchers, doctors, our fellow advocacy organizations, industry partners, regulators, policymakers, payors, and other community organizations, we can assure resources are leveraged, advancement is rapid, and duplication of efforts is avoided.

The LGS Foundation chooses to partner with like-minded organizations who share our priorities of finding better treatments and cures for LGS, and who share our integrity and values. Through these meaningful collaborations, we can have a much greater impact than working alone.

We welcome partnerships with other organizations that wish to contribute and participate in projects that are in line with our mission and which appeal to each of our supporters.

The quickest way to a cure for a rare disease such as LGS is through global collaboration.

Advocacy organizations, medical partners, industry, or other parties interested in partnering with LGS Foundation should email info@lgsfoundation.org.

Non-Profit and Advocacy Partners


Educational & Awareness Partners

Government Partners

Academic & Hospital Partners

Corporate Advisory Council

The Corporate Advisory Council, composed of dedicated individuals from a variety of industries, receives regular updates from the LGS Foundation on progress toward its mission of improving the lives of those impacted by LGS. The Council provides guidance to the LGS Foundation as it seeks to end the devastation and suffering caused by LGS. Council members have no fiduciary responsibility and any advice given is non-binding. We are guided by our Corporate Relations Policy.

  • Assertio Management, LLC
  • Azurity Pharmaceuticals
  • Jazz Pharmaceuticals
  • LivaNova
  • Longboard Pharmaceuticals, Inc.
  • Neurelis Inc.
  • SK Life Science
  • Takeda Pharmaceuticals America, Inc.
  • UCB, Inc.
  • Juliane Mills – Senior Director, Therapeutic Strategy Lead, Rare Disease


Updated 11/16/2023