We are all in this together
The LGS Foundation recognizes that by opening lines of communication, connecting patients, families, researchers, doctors, our fellow advocacy organizations, industry partners, regulators, policymakers, payors, and other community organizations, we can assure resources are leveraged, advancement is rapid, and duplication of efforts is avoided.
The LGS Foundation chooses to partner with like-minded organizations who share our priorities of finding better treatments and cures for LGS, and who share our integrity and values. Through these meaningful collaborations, we can have a much greater impact than working alone.
We welcome partnerships with other organizations that wish to contribute and participate in projects that are in line with our mission and which appeal to each of our supporters.
The quickest way to a cure for a rare disease such as LGS is through global collaboration.
Advocacy organizations, medical partners, industry, or other parties interested in partnering with LGS Foundation should email Tracy@lgsfoundation.org.
Non-Profit and Advocacy Partners
- Chan Zuckerberg Initiative Rare As One Project
- Dravet Syndrome Foundation
- Tuberous Sclerosis Complex Alliance
- DEE-P connections
- Child Neurology Foundation
- Dup15q Alliance
- Epilepsy Alliance America
- Seizure Action Plan Coalition
- Infantile Spasms Action Network
- Rare Epilepsy Network
- Epilepsy Leadership Council
- Global Genes Rare Foundation Alliance
Educational & Awareness Partners
Academic & Hospital Partners
- Children’s Hospital of Orange County, USA
- Massachusetts General Hospital, USA
- Melbourne Brain Center, Australia
- Northwestern University, USA
- Tufts University, USA
- University of Alabama, Birmingham, USA
- University of California, Irvine, USA
- University of California, San Francisco, USA
- University of Texas, Southwestern Medical Center, USA
- University of Washington, USA