Join us in raising awareness and increasing education at one of our many Community Awareness Events.
Let’s Raise Awareness this November… together!
Faces of LGS: Real Stories, Real Research Every person living with LGS has a story. Every family experiences LGS differently. This year, we’re putting those stories at the center of International LGS Awareness Day™ and connecting them to the research…
Stepping Together for a Breakthrough!
Walk Month Happens in Communities Like Yours Throughout April, communities come together to host local Walk for LGS Research events, each led by families, caregivers, advocates, and supporters. These walks are the heart of Walk Month. Whether you’re attending, fundraising,…
The Celebration of Life honors the impact and profound influence of those who have departed from our world. It’s a time to honor our loved ones, whose spirits guide us in our pursuit of cures for LGS. At the LGS…
COMMUNITY PARTICIPATION GUIDELINES: Throughout our work, the LGS Foundation is part of, supports, and directly works with many different communities. Within those communities, the LGS Foundation is committed to creating and maintaining an environment where everyone is welcomed, respected, and…
October 31st, 2022
Join us for the FIRST EVER Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland. This event is free to all registered Expo guests. Help us raise awareness of LGS. *Make sure to register for the Expo; you’ll get an…
Thank you for an amazing 3rd Annual Swing “FORE” the Cures for LGS Lennox-Gastaut Syndrome (LGS) is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability. About 50,000 people in the United States and 1…
The Balancing Act on Lifetime TV Celebrates Rare Disease Day Watch Now: The Lennox-Gastaut Syndrome Foundation: Working Together to Find a Cure Executive Director of the LGS Foundation Dr. Tracy Dixon-Salazar sits down with Montel Williams to discuss the Foundation’s…
Epilepsy Awareness Month Focuses on Solving the Mystery of LGS and Other Rare Epilepsies
International LGS Awareness Day brought together thousands of people around the world to show that the challenges associated with LGS are tough, but so are those affected by this rare disease. This also kicked off Epilepsy Awareness Month – we…
Shine a Light on LGS
As part of International LGS Awareness Day™, light a landmark, your home, or business purple or green and help Make LGS Visible. Make LGS Understood. From homes and businesses to landmarks around the world, every light helps bring greater visibility…
Thank you for joining us in Orlando! The 10th International LGS Family & Professional Conference brought together more than 400 families, caregivers, individuals living with LGS, clinicians, researchers, advocates, and partners for three inspiring days of education, connection, and community….
