Community Awareness Events

Join us in raising awareness and increasing education at one of our many Community Awareness Events.

Walk ‘n’ Wheel for LGS Research

Stepping Towards the Cures, Together!

Each year, hundreds of community members mobilize to raise funds for the LGS Foundation’s “Finding the Cures, Together” Research Program. This vital program drives cutting-edge research that leads to new therapies and treatments for those impacted by LGS! Join Us…


International LGS Awareness Day & Epilepsy Awareness Month

Help Raise LGS Awareness This November!

Our Mission:  To raise awareness for the more than One Million children and adults worldwide living with Lennox-Gastaut Syndrome! YOU are a part of something BIG, and your efforts make a BIG impact! Please join us in raising awareness for…


Illuminate for LGS – Locations Around the World Light Up for LGS Awareness

The LGS Foundation continues to shine a light on Lennox-Gastaut Syndrome as we Illuminate for LGS. Promoting awareness and an understanding of what matters to LGS families. You Can Join Us! Each November, ​as part of the many awareness initiatives…


Behind the Mystery of LGS on Lifetime TV

The Balancing Act on Lifetime TV Celebrates Rare Disease Day Watch Now: The Lennox-Gastaut Syndrome Foundation: Working Together to Find a Cure Executive Director of the LGS Foundation Dr. Tracy Dixon-Salazar sits down with Montel Williams to discuss the Foundation’s…


Infantile Spasms Awareness Week


What is Infantile Spasms awareness week (ISAW)? Infantile Spasms Awareness Week (ISAW) is held annually on December 1-7 to raise awareness of Infantile Spasms (IS). ISAW is hosted by the Infantile Spasms Action Network (ISAN), a group of more than…


Every Moment Matters Awareness Dinner Event

November 5, 2022 at the Birch Aquarium, San Diego

Thank you for helping us raise over $77,000 for LGS Research & Family Support! We can’t thank our community enough for joining us at our Every Moment Matters Awareness Dinner this past Saturday. Because of you, we can continue our…


Get Your LGS Awareness Box

Raise Awareness All November Long

  Each LGS Awareness Box includes: Yard Sign w/ Stake Vehicle Magnet  Chico Carrying Bag Light Up Bracelets/Necklace Handmade Windchime Trick-or-Treat Cards ‘How to Illuminate’ Guides Sorry, but we’re all sold out!


Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland to Raise Awareness of LGS

October 31st, 2022

Join us for the FIRST EVER Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland. This event is free to all registered Expo guests. Help us raise awareness of LGS. *Make sure to register for the Expo; you’ll get an…


Community Participation Guidelines, Audio Visual Waiver, Covid-19 Policies, and Release of Liability

COMMUNITY PARTICIPATION GUIDELINES: Throughout our work, the LGS Foundation is part of, supports, and directly works with many different communities. Within those communities, the LGS Foundation is committed to creating and maintaining an environment where everyone is welcomed, respected, and…


Swing “FORE” the Cures Golf Outing for LGS

Event Date: June 23, 2024

Join us in Dublin, Ohio on Sunday, June 23, 2024 for an afternoon of fun at our 3rd Annual Swing “FORE” the Cures for LGS. Lennox-Gastaut Syndrome (LGS) is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability….