International LGS Awareness Day takes place every year on November 1st, kicking off Epilepsy Awareness Month and lasting throughout the entire month of November. As part of the many awareness initiatives that are organized around the world, locations in dozens…
Join us on November 1st for International LGS Awareness Day Each year, the LGS Foundation organizes a social media campaign and in-person events worldwide to recognize International LGS Awareness Day. In addition, more than 50 locations will Illuminate for LGS…
Upcoming Webinars: September 22, 2021 Following our recent LGS Research Meeting of the Minds (MoM) conference, the LGS Foundation’s Executive Director, Dr. Tracy Dixon-Salazar, will answer any questions the community may have about LGS Research, LGS Foundation Funded Grants, and…
Every year, the LGS Foundation organizes the LGS Research Roundtable at the American Epilepsy Society’s annual meeting in an effort to #FreeTheData and share research updates from our grant recipients and research collaborations. 2021 Roundtable Agenda Come hear about the amazing…
The LGS Foundation is organizing the first-ever Meeting of the Minds professional conference to find disease-modifying therapies and cures for LGS. This two-day Virtual Conference will bring together patients, families, doctors, researchers, industry partners, and advocacy organizations to discuss progress…
Coming in 2022! Every 18 months, the LGS Foundation organizes a comprehensive multi-day educational meeting. The conference brings together more than 350 LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and future…
Hundreds of LGS families and community members came together on June 5th, 2021 to Step Towards a Cure for LGS! Together our community pledged Over 1 Million Steps and Raised Over 60K for Research into Lennox-Gastaut Syndrome. Learn more about…
On November 1, 2019, the LGS Foundation convened the first patient-focused drug development meeting (PFDD) for the DEEs (developmental and epileptic encephalopathies) including Lennox-Gastaut Syndrome in College Park. Over 100 people ranging from patients, caregivers, FDA representatives, pharmaceutical companies, device…
#ISAW
What is Infantile Spasms awareness week (ISAW)? Infantile Spasms Awareness Week (ISAW) is held annually on December 1-7 to raise awareness of Infantile Spasms (IS). ISAW is hosted by the Infantile Spasms Action Network (ISAN), a group of more than…
On February 1, 2020, the Seizure Action Plan (SAP) Coalition launched its new website at www.seizureactionplans.org in conjunction with Seizure Action Plan Awareness Week. This new website offers information and resources for patients, professionals, and advocacy organizations to learn about…
