Community Awareness Events

Join us in raising awareness and increasing education at one of our many Community Awareness Events.

LGS Foundation Celebration Of Life Butterfly Release

The Celebration of Life is a special occasion to reflect on the impact left by those who have departed and to honor their profound influence on our world. It’s a time to commemorate the enduring spirits of our loved ones,…

More

Walk ‘n’ Wheel for LGS Research

Stepping Towards the Cures, Together!

Each year, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures, Together” Research Program. With only a tiny fraction of public and private funds going towards research…

More

International LGS Awareness Day & Epilepsy Awareness Month

Help Raise Awareness of LGS this November!

Join Us In raising awareness for the more than one million children and adults worldwide living with LGS! YOU are a part of something BIG, and your efforts have a BIG impact! Join us in raising awareness around International LGS…

More

Illuminate for LGS Awareness

Locations Around the World Light Up for LGS Awareness

The LGS Foundation continues to shine a light on Lennox-Gastaut Syndrome as we Illuminate for LGS. Promoting awareness and an understanding of what matters to LGS families. You Can Join Us! Each November, ​as part of the many awareness initiatives…

More

Behind the Mystery of LGS on Lifetime TV

The Balancing Act on Lifetime TV Celebrates Rare Disease Day Watch Now: The Lennox-Gastaut Syndrome Foundation: Working Together to Find a Cure Executive Director of the LGS Foundation Dr. Tracy Dixon-Salazar sits down with Montel Williams to discuss the Foundation’s…

More

Infantile Spasms Awareness Week

#ISAW

What is Infantile Spasms awareness week (ISAW)? Infantile Spasms Awareness Week (ISAW) is held annually on December 1-7 to raise awareness of Infantile Spasms (IS). ISAW is hosted by the Infantile Spasms Action Network (ISAN), a group of more than…

More

Get Your LGS Awareness Box

Raise Awareness All November Long

  Each LGS Awareness Box includes: Yard Sign w/ Stake Vehicle Magnet  Chico Carrying Bag Light Up Bracelets/Necklace Handmade Windchime Trick-or-Treat Cards ‘How to Illuminate’ Guides Sorry, but we’re all sold out!

More

Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland to Raise Awareness of LGS

October 31st, 2022

Join us for the FIRST EVER Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland. This event is free to all registered Expo guests. Help us raise awareness of LGS. *Make sure to register for the Expo; you’ll get an…

More

Community Participation Guidelines, Audio Visual Waiver, Covid-19 Policies, and Release of Liability

COMMUNITY PARTICIPATION GUIDELINES: Throughout our work, the LGS Foundation is part of, supports, and directly works with many different communities. Within those communities, the LGS Foundation is committed to creating and maintaining an environment where everyone is welcomed, respected, and…

More

Swing “FORE” the Cures for LGS

Thank you for an amazing 3rd Annual Swing “FORE” the Cures for LGS Lennox-Gastaut Syndrome (LGS) is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability. About 50,000 people in the United States and 1…

More