Community Awareness Events

Join us in raising awareness and increasing education at one of our many Community Awareness Events.

LGS Research Roundtable at AES

Every year, the LGS Foundation organizes the LGS Research Roundtable at the American Epilepsy Society (AES) annual meeting in an effort to #FreeTheData. Join us as we hear updates from our grant recipients and research collaborations. 2021 Roundtable Agenda Come hear…

More

LGS to be featured on Lifetime TV

Watch as we go Behind the Mystery of LGS on November 1st

Airing Monday, November 1 at 7:30 am (ET/PT) On International LGS Awareness Day (November 1), LGS Foundation Executive Director, Dr. Tracy Dixon-Salazar, and her daughter Savannah, who has LGS, will share their journey on a special episode of The Balancing…

More

Help Solve the Mystery of LGS

Epilepsy Awareness Month Focuses on Solving the Mystery of LGS and Other Rare Epilepsies

Donate now International LGS Awareness Day brought together thousands of people around the world to show that the challenges associated with LGS are tough, but so are those affected by this rare disease. This also kicked off Epilepsy Awareness Month…

More

Illuminate for LGS – Locations Around the World Light Up for LGS Awareness

International LGS Awareness Day takes place every year on November 1st, kicking off Epilepsy Awareness Month and lasting throughout the entire month of November. ​As part of the many awareness initiatives that are organized around the world, locations in dozens…

More

International LGS Awareness Day

November 1st

Join us on November 1st for International LGS Awareness Day Each year, the LGS Foundation organizes a social media campaign and in-person events worldwide to recognize International LGS Awareness Day.  In addition, more than 50 locations will Illuminate for LGS…

More

Research Revolution Webinar

Upcoming Webinars: September 22, 2021  Following our recent LGS Research Meeting of the Minds (MoM) conference, the LGS Foundation’s Executive Director, Dr. Tracy Dixon-Salazar, will answer any questions the community may have about LGS Research, LGS Foundation Funded Grants, and…

More

LGS Foundation Family Conference

June 17-19, 2022 Dallas, TX

Coming in 2022!  Every 18 months, the LGS Foundation organizes a comprehensive multi-day educational meeting. The conference brings together more than 350 LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and future…

More

Walk ‘n’ Wheel for LGS Research

June 5, 2021 Walk 'n' Wheel Where You're At!

  Hundreds of  LGS families and community members came together on June 5th, 2021 to Step Towards a Cure for LGS! Together our community pledged Over 1 Million Steps and Raised Over 60K for Research into Lennox-Gastaut Syndrome. Learn more…

More

Patient Focused Drug Development (PFDD) Meeting

On November 1, 2019, the LGS Foundation convened the first patient-focused drug development meeting (PFDD) for the DEEs (developmental and epileptic encephalopathies) including Lennox-Gastaut Syndrome in College Park. Over 100 people ranging from patients, caregivers, FDA representatives, pharmaceutical companies, device…

More

Infantile Spasms Awareness Week

#ISAW

What is Infantile Spasms awareness week (ISAW)? Infantile Spasms Awareness Week (ISAW) is held annually on December 1-7 to raise awareness of Infantile Spasms (IS). ISAW is hosted by the Infantile Spasms Action Network (ISAN), a group of more than…

More