Community Awareness Events

Join us in raising awareness and increasing education at one of our many Community Awareness Events.

Behind the Mystery of LGS on Lifetime TV

New Segment Airing Feb. 20th & 28th, 2023

“Rare Disease doesn’t come with a manual, it comes with a mother who never gives up!” Tune in – February 20th & 28th, 2023 for a special Segment of Behind the Mystery featuring LGS Foundation Executive Director, Tracy Dixon-Salazar, PhD…


Walk ‘n’ Wheel for LGS Research

Stepping Towards a Cure, Together!

Every year hundreds of community members come together in person and virtually to raise awareness and funds for the LGS Foundation’s “Finding the Cures, Together” Research Program. This vital program drives research to find disease-modifying therapies and treatments for LGS….


Infantile Spasms Awareness Week


What is Infantile Spasms awareness week (ISAW)? Infantile Spasms Awareness Week (ISAW) is held annually on December 1-7 to raise awareness of Infantile Spasms (IS). ISAW is hosted by the Infantile Spasms Action Network (ISAN), a group of more than…


International LGS Awareness Day & Epilepsy Awareness Month

Help Raise LGS Awareness This November!

November 1st International LGS Awareness Day Each year, the LGS Foundation organizes a social media campaign and in-person events worldwide in recognition of International LGS Awareness Day. Our goal is to raise awareness of LGS and bring LGS families together….


Every Moment Matters Awareness Dinner Event

November 5, 2022 at the Birch Aquarium, San Diego

Thank you for helping us raise over $77,000 for LGS Research & Family Support! We can’t thank our community enough for joining us at our Every Moment Matters Awareness Dinner this past Saturday. Because of you, we can continue our…


Get Your LGS Awareness Box

Raise Awareness All November Long

  Each LGS Awareness Box includes: Yard Sign w/ Stake Vehicle Magnet  Chico Carrying Bag Light Up Bracelets/Necklace Handmade Windchime Trick-or-Treat Cards ‘How to Illuminate’ Guides Sorry, but we’re all sold out!


Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland to Raise Awareness of LGS

October 31st, 2022

Join us for the FIRST EVER Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland. This event is free to all registered Expo guests. Help us raise awareness of LGS. *Make sure to register for the Expo; you’ll get an…


Community Participation Guidelines, Audio Visual Waiver, Covid-19 Policies, and Release of Liability

COMMUNITY PARTICIPATION GUIDELINES: Throughout our work, the LGS Foundation is part of, supports, and directly works with many different communities. Within those communities, the LGS Foundation is committed to creating and maintaining an environment where everyone is welcomed, respected, and…


Illuminate for LGS – Locations Around the World Light Up for LGS Awareness

The LGS Foundation continues to shine a light on Lennox-Gastaut Syndrome as we Illuminate for LGS. Promoting awareness and an understanding of what matters to LGS families. You Can Join Us! Each November, ​as part of the many awareness initiatives…


Swing “FORE” a Cure Golf Outing for LGS

Event Date: July 23, 2022

Thank you for joining us at The Swing FORE a Cure 2022 Golf Outing 56 players enjoyed a round of golf, including special contests and a dinner, raffle, and silent auction. Over $11,000 was raised through the combined efforts of…