Community Awareness Events

Join us in raising awareness and increasing education at one of our many Community Awareness Events.

Swing “FORE” a Cure Golf Event for LGS

Event Date: July 23, 2022

Join us For the First-Ever Swing FORE a cure for LGS Saturday, July 23, 2022 Dublin, Ohio LGS is a severe form of epilepsy that typically becomes apparent during infancy or early childhood. Children with LGS experience frequent, uncontrollable seizures…

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8th International Family & Professional Conference

Every two years, the LGS Foundation organizes a comprehensive multi-day educational meeting. The conference brings together more than 350 LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and how to live with…

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Virtual Walk ‘n’ Wheel for LGS Research

Stepping Towards a Cure, Together!

2022 Virtual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome The LGS Foundation held its 7th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome on March 26th, 2022 to raise awareness and increase funding to accelerate research on Lennox-Gastaut Syndrome (LGS), a rare…

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Help Solve the Mystery of LGS

Epilepsy Awareness Month Focuses on Solving the Mystery of LGS and Other Rare Epilepsies

Donate now International LGS Awareness Day brought together thousands of people around the world to show that the challenges associated with LGS are tough, but so are those affected by this rare disease. This also kicked off Epilepsy Awareness Month…

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Behind the Mystery of LGS on Lifetime TV

Watch as we go Behind the Mystery of LGS on November 1st

Aired Monday, November 1 at 7:30 am (ET/PT) On International LGS Awareness Day (November 1), LGS Foundation Executive Director, Dr. Tracy Dixon-Salazar, and her daughter Savannah, who has LGS, shared their journey on a special episode of The Balancing Act airing…

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Illuminate for LGS – Locations Around the World Light Up for LGS Awareness

International LGS Awareness Day takes place every year on November 1st, kicking off Epilepsy Awareness Month and lasting throughout the entire month of November. ​As part of the many awareness initiatives that are organized around the world, locations in dozens…

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International LGS Awareness Day

November 1st

Join us on November 1st for International LGS Awareness Day November 1st is the annual International LGS Awareness Day. Each year, the LGS Foundation organizes a social media campaign and in-person events worldwide in recognition of LGS Day to raise…

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Patient Focused Drug Development (PFDD) Meeting

Externally-Led PFDD Meeting on the Developmental and Epileptic encephalopathies (DEEs), including LGS On November 1, 2019, the LGS Foundation convened the first patient-focused drug development meeting (PFDD) for the DEEs (developmental and epileptic encephalopathies) including Lennox-Gastaut Syndrome in College Park….

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Infantile Spasms Awareness Week

#ISAW

What is Infantile Spasms awareness week (ISAW)? Infantile Spasms Awareness Week (ISAW) is held annually on December 1-7 to raise awareness of Infantile Spasms (IS). ISAW is hosted by the Infantile Spasms Action Network (ISAN), a group of more than…

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Seizure Action Plan Awareness Week

February 14-20, 2022

In 2021, the Seizure Action Plan (SAP) Coalition launched its new website at www.seizureactionplans.org in conjunction with Seizure Action Plan Awareness Week. This new website offers information and resources for patients, professionals, and advocacy organizations to learn about and spread…

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