Swing “FORE” a Cure Golf Outing for LGS

Event Date: July 15, 2023

Thank you to everyone who came out to Swing “FORE” A Cure for LGS. Because of your support, we raised over $18,000 for cutting-edge LGS Research! And a special thank you to our sponsors and volunteers for your continued support.

“We are delighted to have spent another fun afternoon with friends and family raising money for the LGS Foundation. We truly appreciate your participation!” – Karen & Jeff Groff

Lennox-Gastaut Syndrome (LGS) is a rare and severe form of epilepsy that develops in very young children. Danny Groff began having seizures in his first year of life and was eventually diagnosed with LGS when he developed multiple seizure types along with severe intellectual delay. Danny’s seizures have caused broken bones, broken teeth, lacerations, and status epilepticus over the years often requiring emergency treatment and hospitalizations. Danny is 37 years old and functions at the level of a toddler. He has tried over 25 treatments including brain surgery. There is no cure for LGS at this time. Danny’s parents, Jeff and Karen Groff, are inspired to raise funds for research in order to eventually ensure better outcomes for those suffering from this disease. Thank you to family and friends who tirelessly support their efforts.

 All proceeds will benefit the LGS foundation

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Thank you To Our 2023 Sponsors

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56 players enjoyed a round of golf, including special contests and a dinner, raffle, and silent auction. Over $11,000 was raised through the combined efforts of golfers, volunteers, sponsors, and donors.

Karen and Jeff Groff, parents to Dan, who has LGS, and hosts of the outing, reported that six individuals with LGS were represented by golfers. “We were fortunate to connect with three more Ohio families that we did not previously know,” they said. "The event was a lot of fun, and it helped create a community of support.”

One of the golfers commented, “I had no idea about what those with LGS deal with on a daily basis.”

The Groffs are active volunteers for the LGS Foundation, and they work every day to create hope and improve the lives of those impacted by LGS.

Updated 3/13/2023