Swing “FORE” a Cure Golf Outing for LGS

Lennox-Gastaut Syndrome (LGS) is a rare and severe form of epilepsy that develops in very young children. Danny Groff began having seizures in his first year of life and was eventually diagnosed with LGS when he developed multiple seizure types along with severe intellectual delay. Danny’s seizures have caused broken bones, broken teeth, lacerations, and status epilepticus over the years often requiring emergency treatment and hospitalizations. Danny is 37 years old and functions at the level of a toddler. He has tried over 25 treatments including brain surgery. There is no cure for LGS at this time. Danny’s parents, Jeff and Karen Groff, are inspired to raise funds for research in order to eventually ensure better outcomes for those suffering from this disease. Thank you to family and friends who tirelessly support their efforts.