In Memory Of

In Memory of Joshua Paul Keller

Joshua was diagnosed at 9 months with LGS he had seizures daily and other medical issues. Joshua was a joyful child he loved music, being outside, and enjoyed being with mommy and daddy. He was in the bell choir for…


In Memory of Frederick Reese Fox

2/27/2020 - 8/06/2023

Frederick Reese Fox – Freddie, Frode man, Babe, Frankie Beans, Al Franken, Frazzle, Freemont, Dr. Fronkenstein – was born right at the beginning of the pandemic in 2020. Nothing would ever be the same. A beautiful, shining soul in a…


In Memory of Allison Francis

7/31/1976 - 5/08/2023

Allison was diagnosed at Johns Hopkins Kennedy Institute in 1978 at 18 months old. She had numerous seizures of every type. Through all of the difficulties, she remained sweet and playful, laughing uproariously at sounds like sneezes, coughs and hiccups….


In Memory of Daniel “Danielsaur” Lewis Woolverton

11/07/2017 - 11/30/2022

When Daniel was approximately 4 months old, we noticed that he was not meeting all of his developmental milestones. Around this same time, Daniel was hospitalized and diagnosed with Infantile Spasms. This was the first of many hospital stays to…


In Memory of Rebekah Selah Anglin

2/23/1987 - 3/24/2022

Rebekah was an emergency C-section in 1987. She progressed normally until, at 22 months, she suddenly experienced a horrible grand mal! There was several feet of snow outside, so the ambulance took a while! Her older brother by two years…


In Loving Memory of João Miguel Martins Nunes

3/17/1995 - 7/16/2020

Miguel was so sweet. Such a lovely baby! He used to smile and run all the time! He was born without any problem, but, suddenly, the seizures started and never went away. He didn’t talk anymore and was submitted to…


In Loving Memory of Jayden Burns

9/14/2020 - 9/25/2022

Jayden was diagnosed with epilepsy at four months old. He has been through many hospital stays. Also, changing the dosages of his medicine. Which wasn’t working. In April of 2022, he was diagnosed with LGS. He was such a strong…


In Memory of Joseph Michael Manson

01/05/2010 -04/14/2022

Joseph was born with a rare medical condition called cobolomine e abnormality he was the first in the US and first at birth in the world. Joseph fought a hard fight and showed them it can be done he got…


In Memory of Johnathan Rush, Jr.

3/19/2004 - 10/01/2016

Johnathan was my first born. He was born premature and not breathing. Because of his traumatic birth, his brain endured an injury that caused a variety of disorders. One the many we would later discover was Lennox-Gastaut Syndrome. His journey…


In Memory of Rowan Wade Martin

11/25/2016 - 4/08/2022

There is so much. It was a long journey, yet not long enough all at once. For 5 years he consumed me. I will always miss him. I don’t even know what to say to explain our story. He was…