Every two years, the LGS Foundation organizes a comprehensive multi-day educational meeting. The conference brings together more than 350 LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and how to live with LGS. Talks cover everything from treatment options to services and include information on improving quality of life, accessing resources, and much more. In non-conference years, the LGS Foundation hosts the LGS Research Meeting of the Minds Conference for professionals and families and focuses on LGS research.
LGS Foundation Family & Professional Conference
June 17-19, 2022
The LGS Foundation is proud to announce the 2022 LGS Foundation Family & Professional Conference will be held June 17-19th, 2022 at the Gaylord Texan Resort & Convention Center in Grapevine, Texas.
Conference Registration
Registration Opens, February 3rd, 2022
Please note: All-inclusive conference registration fees are per adult and cover educational sessions, conference materials, breakfast, lunch, dinner, and exhibit hall access. We encourage you to register before the Early Bird deadline of Sunday, May 1, 2022. If you have any questions, please email info@LGSFoundation.org.
Early Bird Registration-before May 1st, 2022
- $150 (All-inclusive conference registration fees are per adult and cover educational sessions, conference materials, breakfast, lunch, and exhibit hall access.)
- Kids 17 and under and those with LGS are free
- $50 (includes one login and access to sessions for all three days)
Register after May 1st, 2022
- $225 (All-inclusive conference registration fees are per adult and cover educational sessions, conference materials, breakfast, lunch, and exhibit hall access.)
- Kids 17 and under and those with LGS are free
- $125 (includes one login and access to sessions for all three days)
Conference Scholarships
Scholarship Applications Closed on January 26th, 2022
- Registration fee covered
- Up to three nights hotel accommodation at the conference hotel (up to four family members per room per the hotel guidelines)
- Registration fee covered
No other travel reimbursement / stipends will be provided
What’s not covered in the scholarship:
– Travel Accommodations
– Parking
– Meals outside of those provided at the conference
– Additional nights at the hotel above the three offered
– Hotel incidentals
Please take a moment to review the terms, conditions, consent, and liability statements for attending this event.
TERMS AND CONDITIONS: Your personal data will be collected to manage your registration and participation in connection with the Annual Conference and will be shared with the LGS Foundation and with MedLogix Communications, who are coordinating the logistics for the conference.
WAIVER OF LIABILITY AND INDEMNITY: In light of ongoing concerns regarding COVID and other communicable health risks, LGS Foundation will implement health and safety protocols appropriate to the public health circumstances existing at the time of the Conference. LGS Foundation will exercise reasonable efforts to utilize protocols that will comply with or exceed any federal, state, and local public health requirements and be consistent with then-prevailing public health standards. Those protocols may include the following: vaccination, proof of COVID status, self-monitoring, biometric screening, symptom checkers, contact tracing, use of personal protective equipment and social distancing, or other similar measures.
CODE OF CONDUCT: An inherent risk of exposure to COVID-19 exists in any public place where people are present. COVID-19 is an extremely contagious disease that can lead to severe illness and death. Participation in Conference events and activities carries some risk, and by attending, Attendees assume responsibility for their own well-being. All Attendees must follow posted instructions while participating in Conference events and activities. Failure to follow all protocols in effect and required by LGS Foundation, the venue provider, and governing authorities during the Conference may result in registration cancellation without refund.
ASSUMPTION OF RISK: By registering for the Conference, I hereby assume all risks associated with, resulting from, or arising in connection with, participation, in any capacity, in the Conference or any Conference-related activities, including, without limitation, all risks of theft, loss, harm, damage, illness or sickness (including those caused by known or unknown infectious or communicable disease such as COVID, H1N1, or other illness or sickness caused by bacteria, fungi, microorganisms or viruses), or injury to the person (including death) or property damage, whether caused by negligence, intentional act, accident, act of God, or otherwise.
WAIVER, RELEASE, AND INDEMNIFICATION: As a condition of my participation in the Conference, I agree to hold harmless, defend and indemnify LGS Foundation, its directors, officers, employees, volunteers, chapters, licensees, cooperating entities, agencies, their representatives, heirs, executors, administrators, successors and assigns (the “Protected Parties”) from any and all claims of mine, my spouse, family members, or others arising from my injury or loss due to my participation in the Conference, including those arising from the inherent risks of attending the Conference or the negligence of the Protected Parties to the greatest extent allowed by law.
COVID DISCLAIMER: I agree to not travel to the event if I am not feeling well. I agree that if I am not feeling well onsite, I will immediately return to my room and contact both the hotel front desk and the LGS Foundation to notify them. I also agree to follow all health and safety guidelines asked of me while at the event.
ACKNOWLEDGEMENT OF UNDERSTANDING/SEVERABILITY/JURISDICTION: I further acknowledge that by completing the registration for the conference I have read this liability waiver, assumption of risk and indemnification agreement and fully understand its terms. I freely and knowingly assume the risk and waive my rights concerning liability as described above and, I am agreeing to a complete and unconditional release of all liability. If any portion of this agreement is held invalid, it is agreed that the balance shall, notwithstanding, continue in full legal force and effect.
By registering for the LGS Foundation's Conference, all participants, including speakers and attendees, agree to be photographed, filmed, recorded, or videotaped by a LGS Foundation representative and other business partners working with the Foundation. Participation in or attendance at this meeting constitutes the voluntary consent of the participant or attendee to: (a) be photographed, filmed, recorded, or videotaped by a LGS Foundation representative and other business partners working with the Foundation and (b) the reproduction, distribution, and use of all such photographs, digital images, films, voices, recordings, actions, names, and likenesses for any lawful purpose, including for use in publications, brochures, advertisements, promotional and marketing materials, and all other media venues including the World Wide Web, all without further notice or compensation to participant or attendee. I acknowledge that I may be photographed, filmed, or recorded during the meeting and that I have appropriate permission to share any information that I disclose during the meeting. I hereby release to the LGS Foundation and other business partners working with the LGS Foundation all proprietary rights and copyrights in all such photographs, digital images, voices, recordings, actions, films, and likenesses (including negatives, positives, and prints) which shall be and remain the property of the LGS Foundation and other business partners working with the LGS Foundation. I understand that these materials may be used in various publications, public affairs releases, recruitment materials, or for other related endeavors. These materials may also appear on the LGS Foundation's and other business partners’ working with the LGS Foundation websites and other public social media sites. I further represent and warrant that I have permission to display and distribute any content I include in my presentation (e.g., slides, videos, photos) and grant the LGS Foundation and other business partners working with the LGS Foundation a non-exclusive license to use, copy, redistribute, publish, and display the content for non-commercial purposes consistent with the LGS Foundation's mission. I expressly release the LGS Foundation, and other business partners working with the LGS Foundation, its/their directors, officers, employees, agents, and volunteers from any and all claims, including copyright, right of publicity, and right of privacy, arising out of any reproduction, broadcast, distribution, publication, or promotion of this meeting or the materials described above.
**If you are unable to meet these requirements, please consider attending the meeting virtually.
WAIVER OF LIABILITY AND INDEMNITY: In light of ongoing concerns regarding COVID and other communicable health risks, LGS Foundation will implement health and safety protocols appropriate to the public health circumstances existing at the time of the Conference. LGS Foundation will exercise reasonable efforts to utilize protocols that will comply with or exceed any federal, state, and local public health requirements and be consistent with then-prevailing public health standards. Those protocols may include the following: vaccination, proof of COVID status, self-monitoring, biometric screening, symptom checkers, contact tracing, use of personal protective equipment and social distancing, or other similar measures.
CODE OF CONDUCT: An inherent risk of exposure to COVID-19 exists in any public place where people are present. COVID-19 is an extremely contagious disease that can lead to severe illness and death. Participation in Conference events and activities carries some risk, and by attending, Attendees assume responsibility for their own well-being. All Attendees must follow posted instructions while participating in Conference events and activities. Failure to follow all protocols in effect and required by LGS Foundation, the venue provider, and governing authorities during the Conference may result in registration cancellation without refund.
ASSUMPTION OF RISK: By registering for the Conference, I hereby assume all risks associated with, resulting from, or arising in connection with, participation, in any capacity, in the Conference or any Conference-related activities, including, without limitation, all risks of theft, loss, harm, damage, illness or sickness (including those caused by known or unknown infectious or communicable disease such as COVID, H1N1, or other illness or sickness caused by bacteria, fungi, microorganisms or viruses), or injury to the person (including death) or property damage, whether caused by negligence, intentional act, accident, act of God, or otherwise.
WAIVER, RELEASE, AND INDEMNIFICATION: As a condition of my participation in the Conference, I agree to hold harmless, defend and indemnify LGS Foundation, its directors, officers, employees, volunteers, chapters, licensees, cooperating entities, agencies, their representatives, heirs, executors, administrators, successors and assigns (the “Protected Parties”) from any and all claims of mine, my spouse, family members, or others arising from my injury or loss due to my participation in the Conference, including those arising from the inherent risks of attending the Conference or the negligence of the Protected Parties to the greatest extent allowed by law.
COVID DISCLAIMER: I agree to not travel to the event if I am not feeling well. I agree that if I am not feeling well onsite, I will immediately return to my room and contact both the hotel front desk and the LGS Foundation to notify them. I also agree to follow all health and safety guidelines asked of me while at the event.
ACKNOWLEDGEMENT OF UNDERSTANDING/SEVERABILITY/JURISDICTION: I further acknowledge that by completing the registration for the conference I have read this liability waiver, assumption of risk and indemnification agreement and fully understand its terms. I freely and knowingly assume the risk and waive my rights concerning liability as described above and, I am agreeing to a complete and unconditional release of all liability. If any portion of this agreement is held invalid, it is agreed that the balance shall, notwithstanding, continue in full legal force and effect.
By registering for the LGS Foundation's Conference, all participants, including speakers and attendees, agree to be photographed, filmed, recorded, or videotaped by a LGS Foundation representative and other business partners working with the Foundation. Participation in or attendance at this meeting constitutes the voluntary consent of the participant or attendee to: (a) be photographed, filmed, recorded, or videotaped by a LGS Foundation representative and other business partners working with the Foundation and (b) the reproduction, distribution, and use of all such photographs, digital images, films, voices, recordings, actions, names, and likenesses for any lawful purpose, including for use in publications, brochures, advertisements, promotional and marketing materials, and all other media venues including the World Wide Web, all without further notice or compensation to participant or attendee. I acknowledge that I may be photographed, filmed, or recorded during the meeting and that I have appropriate permission to share any information that I disclose during the meeting. I hereby release to the LGS Foundation and other business partners working with the LGS Foundation all proprietary rights and copyrights in all such photographs, digital images, voices, recordings, actions, films, and likenesses (including negatives, positives, and prints) which shall be and remain the property of the LGS Foundation and other business partners working with the LGS Foundation. I understand that these materials may be used in various publications, public affairs releases, recruitment materials, or for other related endeavors. These materials may also appear on the LGS Foundation's and other business partners’ working with the LGS Foundation websites and other public social media sites. I further represent and warrant that I have permission to display and distribute any content I include in my presentation (e.g., slides, videos, photos) and grant the LGS Foundation and other business partners working with the LGS Foundation a non-exclusive license to use, copy, redistribute, publish, and display the content for non-commercial purposes consistent with the LGS Foundation's mission. I expressly release the LGS Foundation, and other business partners working with the LGS Foundation, its/their directors, officers, employees, agents, and volunteers from any and all claims, including copyright, right of publicity, and right of privacy, arising out of any reproduction, broadcast, distribution, publication, or promotion of this meeting or the materials described above.
**If you are unable to meet these requirements, please consider attending the meeting virtually.
FAQs & Travel Tips
How often and where is the conference held?
New in 2022! LGSF will host its Family & Professional Conference in-person every 2 years. The location for our 2022 event will be the Gaylord Texan Resort and Convention Center, 1501 Gaylord Trail, Grapevine, Texas. Our last in-person conference was held in 2019 in Seattle, Washington, with a virtual conference held in 2021.
How do I book Hotel Accommodations if I am not a scholarship recipient?
The discounted group rate at the Gaylord Texan Resort & Convention Center for conference attendees is $189 for Traditional King and $199 for Traditional 2 Queens, plus $20 resort fee and prevailing taxes. Please call reservations at 1-877-491-5138 and mention the group name “LGS Foundation Conference” or click the reservation link to book online: reservation.
Room reservations and rates are available on a first-come, first-served basis until May 25, 2022, or until the room block is sold out, whichever comes first. After that date, reservation requests will be based on the hotel’s prevailing rate. All reservations must be guaranteed with a credit card.
Is onsite registration available?
Onsite registration IS NOT available. All attendees must register for the event by May 24, 2022 to attend in person.
I am unable to attend in person. How do I register for virtual sessions?
Virtual registration will open on Monday, February 7, 2022, and remain open until June 15, 2022. Please register online www.lgsfoundation.org/lgs-conference
What is included in my registration fee?
Your registration fee includes admission to all sessions, breakfast and lunch each day, Friday evening Welcome reception and our Saturday evening Dinner Dance celebration.
What is the cancellation policy?
Cancellation requests must be submitted in writing to Kathy Leavens at kathy@lgsfoundation.org. Cancellation requests received on or before May 1, 2022 are refundable, subject to a $50 administrative fee.
Cancellation requests received after May 1, 2022 , are nonrefundable. Exceptions may be made for family emergencies and must be submitted via email to Kathy Leavens at kathy@lgsfoundation.org.
No-shows at the 2022 Family & Professional Conference are not eligible for a refund.
If you cancel and are entitled to a refund, you can expect the refund within 30 days. All refunds will be issued back to the original payment type.
Are scholarships available?
Yes, scholarships will open Wednesday, January 5, 2022, and remain open until Monday, January 26, 2022. Scholarship applicants will be notified via email no later than Wednesday, February 3, 2022.
When should I arrive?
The conference kicks off with sessions beginning Friday morning, June 17th at 9 am. Breakfast will be available beginning at 8 am. The full agenda will be available on our website at www.lgsfoundation.org/lgs-family-conference
Is there onsite patient care and/or childcare available?
An Activity room and a Quiet room will be available for families and patients with LGS at no cost, but they must have a caregiver in attendance with them at all times. No nursing staff or aides will be provided, so please plan accordingly for your child’s care. The Activity room will include activities and crafts for LGS patients and family use. The Quiet Room is a space provided for comfortable recovery from seizure activity. Or to simply find a quiet peaceful moment. Sessions will be live-streamed into both the Activity room and Quiet room so you will not miss session content.
What is the dress code?
While there is no set dress code, we suggest business casual for the sessions. We invite you to dress comfortably. You may want to dress in layers; conference centers often range from drafty to stuffy. June in Texas has an average high of 92 degrees and an average low of 74 degrees.
Where do I pick up my registration packet?
You can find the LGS registration area in the new Vineyard Tower, Second level, just outside the Tate ballroom.
You can check-in and pick up your registration packet at any of these times:
- Thursday, June 16, from 12:00 pm - 7:00 pm
- Friday, June 17, from 7:30 am-8:45 am
- Saturday, June 18, from 7:30 am-8:45 am
Be sure to give yourself enough time to register and pick up your conference packet and badge before attending your first session. We suggest you wear your badge for entry into the sessions and the evening social events.
Are any of my costs tax-deductible?
Based on 2020 federal tax regulations, which may be different for 2022, you can deduct the cost of registration and travel to the 2022 LGS Family & Professional Conference if the conference concerns the chronic illness of you, your spouse or your dependent. The deduction applies ONLY to registration and travel; it does NOT apply to meals or hotel stay.
You can only deduct these costs as medical expenses if you itemize your deductions by filing a Schedule A on your tax return, and you can only deduct the portion of unreimbursed medical/dental expenses that add up to being more than 7.5% of your AGI (Adjusted Gross Income) for the year. (Example: Your adjusted gross income for 2022 is $100,000; you spent $1,000 on registration and transportation for the 2022 LGS Family & Professional Conference and had $5,000 of other unreimbursed medical expenses. You add $1,000 to $5,000 for a total of $6,000, which is less than 7.5% of your $100,000 adjusted gross income. You would not qualify. However, if your unreimbursed medical expenses were $8,000 plus $1,000 for conference registration and travel, that would make a total of $9,000 of unreimbursed medical expenses. Since $9,000 is greater than $7,500, you would qualify for deducting the amount over 7.5% on your tax return – in this case $1,500 would be deductible.)
We cannot guarantee eligibility for tax deduction and encourage you to review IRS Publication 502 for further information
Here are some suggestions to make your trip less stressful:
- Make sure you have your current health insurance card/information in case of any medical emergencies. Review your policy regarding emergency care when traveling. Bring a hard copy of your Seizure Action Plan.
- Place medications in your carry-on bag and make sure to bring an extra week’s worth to be safe.
- Pack sunscreen for time at the pool!
- The weather in Grapevine TX can average from a high of 92 to a low of 74 during the month of June
Local Transportation
- Hotel shuttle does not go off-site
- Uber/Taxi available
- Grapevine Visitors Shuttle – Hotel is one of the stops
- Shuttle hours will change but currently Thursday-Sunday 8:00 AM – 10:00 PM
- Cost: $5.00 / person per day
What is the closest hospital?
Closest Hospital – Baylor Scott & White Medical Center – Grapevine
- Location: 1650 W College St, Grapevine, TX 76051 (3.3 miles / 10 min drive)
- Phone: 817-481-1588
- By definition, emergencies take you by surprise. But when they do, we’re ready 24 hours a day, seven days a week. From minor injuries to life threatening conditions, you can trust Baylor Scott & White Medical Center – Grapevine to provide the treatment you need.
Closest Children’s Hospital – Children’s Medical Center Dallas
- Location: 1935 Medical District, Dallas, TX 75235 (19 miles / 24 min drive)
- Phone: 214-456-7000
- Today, children and families facing complex medical conditions travel from all over the world to visit our Dallas campus, which includes Children’s Medical Center Dallas, the Children’s Health℠ flagship hospital and one of the top pediatric hospitals in the nation.
Children’s Hospital – Cook Children’s Medical Center
- Location: 801 7th Ave, Fort Worth, TX 76104 (27.3 miles / 36 min drive)
- Phone: 682-885-4000
- Cook Children's Medical Center is a nationally recognized not-for-profit pediatric hospital located in Fort Worth, Texas. One of the largest freestanding pediatric medical centers in the U.S., Cook Children's main campus is located in Tarrant County.
Nearby Grocery Stores & Pharmacy
Walgreens
- Location: 912 W Northwest Hwy, Grapevine, TX 76051 (2.4 miles / 7 min drive)
- Phone: 817-310-3072
CVS
- Location: 2105 W Northwest Hwy, Grapevine, TX 76051 (3.2 miles / 10 min drive)
- Phone: 817-416-2501
Target
- Location: 1101 Ira E Woods Ave, Grapevine, TX 76051 (3.5 miles / 10 min drive)
- Phone: 817-488-1800
Walmart Supercenter
- Location: 1601 W State Hwy 114, Grapevine, TX 76051 (4 miles / 12 min drive)
- Phone: 817-421-4770
The hotel has a mini refrigerator in each room and ice/vending machines are located on each floor. In addition, the hotel has four stores/markets onsite for necessities
