Every two years, the LGS Foundation organizes a comprehensive multi-day educational meeting. The conference brings together more than 350 LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and how to live with LGS. Talks cover everything from treatment options to services and include information on improving quality of life, accessing resources, and much more. In non-conference years, the LGS Foundation hosts the LGS Research Meeting of the Minds Conference for professionals and families and focuses on LGS research.
LGS Foundation Family & Professional Conference
June 17-19, 2022
The LGS Foundation is proud to announce the 2022 LGS Foundation Family & Professional Conference will be held June 17-19th, 2022 at the Gaylord Texan Resort & Convention Center in Grapevine, Texas.
Join Us June 17-19th
Register today and join us for three days of education, fun, and friendship.
Sessions will provide attendees with clinical and research updates on Lennox-Gastaut Syndrome, along with information on emerging therapies, special needs resources, and topics related to quality of life. This event allows the opportunity to foster new relationships and collaborations, both for families and professionals. New this year is our Sib Camp and we will have fun activities for those with LGS. And you won’t want to miss our family dinner and dance on Saturday night! Hope to see you there!
*We have an extensive COVID protocol in place (see below) for this event as the safety of our families is of utmost concern to us. If you cannot attend in person, the conference is also being offered virtually.
Agenda Now Available:
View Agenda Here
Registration Information
- $225 (All-inclusive conference registration fees are per adult and cover educational sessions, conference materials, breakfast, lunch, dinner, and exhibit hall access.)
- Kids 17 and under and those with LGS are free
- $125 (includes one login and access to sessions for all three days)
Please note: All-inclusive conference registration fees are per adult and cover educational sessions, conference materials, breakfast, lunch, dinner, and exhibit hall access. We encourage you to register before the Early Bird deadline of Sunday, May 1, 2022. If you have any questions, please email info@LGSFoundation.org.
*New this Year – Sib Camp*
This new camp offers planned onsite activities for siblings only on Friday and Saturday.
The camp program is designed especially for siblings of a child with LGS, whose parent(s) are registered to attend the conference. Children must be at least 5 years old and potty trained to attend camp. Siblings 16+ can volunteer to participate as a team leader for the camp. The $50 cost per sibling for our two day camp includes all activities, as well as breakfast, lunch and snacks.
View the Sib Camp Agenda Here
To volunteer please contact Kathy Leavens kathy@lgsfoundation.org.
There will also be an onsite activity room for children and adults with LGS and their caregivers. No childcare will be provided in that room, so a caregiver must be present with the LGS patient at all times.
Please take a moment to review the terms, conditions, consent, and liability statements for attending this event.
AS OF JANUARY 17, 2022 THESE POLICIES INCLUDE: Face Coverings Masks must be worn at all times except while actively eating or drinking in any area that is considered LGS Foundation Conference space. LGS Foundation will require all attendees, vendors, exhibitors, and speakers – regardless of vaccination status – over the age of 2 to wear a medical grade mask (such as a surgical mask or KN95 mask) at all indoor conference sessions, Super Siblings Camp activities, and/or evening social activities. Masks must cover the nose and mouth at all times except while actively eating or drinking. Cloth masks, gaiters, or bandanas will not be accepted as facial coverings for the LGS Foundation Conference. Anyone who ignores the policy will be asked to leave the conference and will not be eligible for a refund of their registration costs. Medical masks will be available at no cost at the registration table throughout the event. Hand Sanitizer Stations We will have hand washing facilities and/or sanitizing systems easily accessible to everyone throughout the event. Personal size hand sanitizers will also be included with each registration packet. Spacing Measures Social distancing practices will be implemented according to all current venue, local, and state guidelines. Contact Policy While we encourage all attendees to minimize their physical contact with others at the conference, LGS Foundation will provide colored ribbons to help attendees communicate their level of comfort in interacting with one another. Purple = Greet from 6-feet Green = Handshakes and high fives Health and Safety Signage Signage will be placed to remind all attendees to social distance and frequently wash and sanitize their hands. On Site Screening Conference attendees, exhibitors, vendors, and speakers will be required to participate in a wellness check before they receive their event badge. Everyone will receive a temperature scan and be asked the following questions before they receive their badge and entry into the conference:
- In the past 24 hours, have you experienced COVID-19 symptoms? (Fever or signs or symptoms of a respiratory infection, such as cough, shortness of breath or sore throat.)
- Have you or people whom you have close contact with, like someone who lives in your house, a relative, a friend, or a co-worker
- tested positive for COVID-19 in the last 14 days or
- had any COVID-19 symptoms in the last 14 days?
- Follow relevant guidance provided by the WHO, CDC, and/or your local health authority regarding exposure, testing, and quarantine related to COVID-19.
- Adhere to government-issued travel restrictions and guidance issued by the WHO, CDC, and/or the local health authority in the regions you will be traveling to and from.
- Stay home if you feel unwell.
- Stay home if you are knowingly exposed to COVID-19, develop symptoms of COVID-19, or test positive for COVID-19 within 14 days prior to the event.
- Follow guidance from the local health authority for everyday preventive actions to help prevent the spread of viruses including:
- Wash hands often with soap and water for at least 20 seconds, or an alcohol-based sanitizer with at least 60% alcohol
- Avoid touching eyes, nose, and mouth with unwashed hands
- Cover your nose and mouth when coughing or sneezing. Throw unused tissues in the trash.
- Clean and disinfect frequently touched objects and surfaces using a regular household cleaning spray or wipes.
- Wear a properly fitting, medical mask during conference sessions and events. Face masks will cover from the bridge of your nose to past your chin.
- Adhere to physical distance protocols put in place by LGS Foundation, the venue, or local health authorities.
AUDIO/VISUAL WAIVER: By registering for the LGS Foundation Conference, all participants, including speakers and attendees, agree to be photographed, filmed, recorded, or videotaped by an LGS Foundation representative and other business partners working with LGS Foundation. Participation in or attendance at this meeting constitutes the voluntary consent of the participant or attendee to: (a) be photographed, filmed, recorded, or videotaped by a LGS Foundation representative and other business partners working with LGS Foundation and (b) the reproduction, distribution, and use of all such photographs, digital images, films, voices, recordings, actions, names, and likenesses for any lawful purpose, including for use in publications, brochures, advertisements, promotional and marketing materials, and all other media venues including the World Wide Web, all without further notice or compensation to participant or attendee. I acknowledge that I may be photographed, filmed, or recorded during the meeting and that I have appropriate permission to share any information that I disclose during the meeting. I hereby release to LGS Foundation and other business partners working with LGS Foundation all proprietary rights and copyrights in all such photographs, digital images, voices, recordings, actions, films, and likenesses (including negatives, positives, and prints) which shall be and remain the property of LGS Foundation and other business partners working with LGS Foundation. I understand that these materials may be used in various publications, public affairs releases, recruitment materials, or for other related endeavors. These materials may also appear on LGS Foundation and other business partners’ working with LGS Foundation websites and other public social media sites. I further represent and warrant that I have permission to display and distribute any content I include in my presentation (e.g., slides, videos, photos) and grant LGS Foundation and other business partners working with LGS Foundation a non-exclusive license to use, copy, redistribute, publish, and display the content for non-commercial purposes consistent with LGS Foundation’s mission. I expressly release LGS Foundation, and other business partners working with LGS Foundation, its/their directors, officers, employees, agents, and volunteers from any and all claims, including copyright, right of publicity, and right of privacy, arising out of any reproduction, broadcast, distribution, publication, or promotion of this meeting or the materials described above.
CODE OF CONDUCT: An inherent risk of exposure to COVID-19 exists in any public place where people are present. COVID-19 is an extremely contagious disease that can lead to severe illness and death. Participation in Conference events and activities carries some risk, and by attending, Attendees assume responsibility for their own well-being. All Attendees must follow posted instructions while participating in Conference events and activities. Failure to follow all protocols in effect and required by LGS Foundation, the venue provider, and governing authorities during the Conference may result in registration cancellation without refund.
COVID DISCLAIMER: I agree to not travel to the event if I am not feeling well. I agree that if I am not feeling well onsite, I will immediately return to my room and contact both the hotel front desk and the LGS Foundation to notify them. I also agree to follow all health and safety guidelines asked of me while at the event.
COVID-19 POLICIES: LGS Foundation will strictly follow COVID-19 safety procedures as outlined by our conference venue, the Centers for Disease Control and Prevention, the World Health Organization, the Occupational Safety and Health Administration, the State of Texas, the City of Fort Worth, and any other governing Federal or local government agency. During your attendance at the LGS Foundation Conference in Texas, you will be required to support our COVID-19 Safety Measures, and strictly follow our COVID-19 policies and procedures. These COVID-19 policies and procedures may include but are not limited to personal sanitization, mandatory face covering, and social distancing. These policies and procedures may be modified at any time in advance of or during the LGS Foundation Conference and are available on the LGS Foundation website. I understand that my failure to abide by these policies will result in removal from the event. See the conference website for our comprehensive Covid Protocol.
COVID DISCLAIMER: I agree to not travel to the event if I am not feeling well. I agree that if I am not feeling well onsite, I will immediately return to my room and contact both the hotel front desk and the LGS Foundation to notify them. I also agree to follow all health and safety guidelines asked of me while at the event.
WAIVER OF LIABILITY AND INDEMNITY: Waiver of Lawsuit/Release of Liability: COVID-19 WARNING, ASSUMPTION OF RISK, WAIVER OF RISK AND RELEASE OF LIABILITY AND INDEMNIFICATION FOR ATTENDING THE 2022 LGS FOUNDATION CONFERENCE IN FORT WORTH, TX, WARNING RELATED TO COVID-19 INFECTION* The novel coronavirus, COVID-19, has been declared a worldwide pandemic and is very contagious. COVID-19 can cause serious and potentially life-threatening illness and even death. LGS Foundation has taken and will continue to take all reasonable precautions to prevent against the presence and spread of the disease but cannot and does not guarantee against exposure; and therefore, in choosing to attend LGS Foundation Conference you acknowledge that you are assuming a risk that you may be exposing yourself to COVID-19 and its potential health risks. ASSUMPTION OF RISK: I have read and understand the above warning concerning COVID-19. I acknowledge that attending the LGS Foundation Conference is of value to me and that I accept the risk of being exposed to COVID-19 in order to attend. Therefore, I choose to accept the risk of exposure to COVID-19 and I agree that I am personally responsible for my safety and actions while attending LGS Foundation Conferences. Further,by registering for the Conference, I hereby assume all risks associated with, resulting from, or arising in connection with, participation, in any capacity, in the Conference or any Conference-related activities, including, without limitation, all risks of theft, loss, harm, damage, illness or sickness (including those caused by known or unknown infectious or communicable disease such as COVID, H1N1, or other illness or sickness caused by bacteria, fungi, microorganisms or viruses), or injury to the person (including death) or property damage, whether caused by negligence, intentional act, accident, act of God, or otherwise.WAIVER OF LAWSUIT/ RELEASE OF LIABILITY: I, for myself, my family, successors, and assigns hereby forever release, waive, discharge, and covenant not to sue LGS Foundation, its board of directors, board members, officers, agents, servants, affiliates, employees, successors, and assigns (collectively the “Released Parties”) from any and all liability, claims, demands, actions, and causes of action whatsoever, directly or indirectly arising out of or related to any loss, damage, or injury, including death, that may be sustained by me, including any related to COVID-19 while participating in any activity associated with the LGS Foundation Conference. INDEMNIFICATION: I agree to indemnify, defend, and hold harmless the Released Parties from and against any and all costs, expenses, damages, claims, lawsuits, judgments, losses, and/or liabilities (including attorney fees) arising either directly or indirectly from or related to any and all claims made by or against any of the Released Parties due to bodily injury, death, loss of use, monetary loss, or any other injury from or related to my attendance at LGS Foundation Conference specifically related to COVID-19. Further, as a condition of my participation in the Conference, I agree to hold harmless, defend and indemnify LGS Foundation, its directors, officers, employees, volunteers, chapters, licensees, cooperating entities, agencies, their representatives, heirs, executors, administrators, successors and assigns (the “Protected Parties”) from any and all claims of mine, my spouse, family members, or others arising from my injury or loss due to my participation in the Conference, including those arising from the inherent risks of attending the Conference or the negligence of the Protected Parties to the greatest extent allowed by law.
CODE OF CONDUCT: All attendees agree to abide by the LGS Foundation's Community Participation Guidelines and behave appropriately as a member of the LGS Foundation community.
ACKNOWLEDGEMENT OF UNDERSTANDING/SEVERABILITY/JURISDICTION: I further acknowledge that by completing the registration for the conference I have read this liability waiver, assumption of risk and indemnification agreement and fully understand its terms. I freely and knowingly assume the risk and waive my rights concerning liability as described above and, I am agreeing to a complete and unconditional release of all liability. If any portion of this agreement is held invalid, it is agreed that the balance shall, notwithstanding, continue in full legal force and effect.
**If you are unable to meet these requirements, please consider attending the meeting virtually.
FAQs & Travel Tips
FLAGSHIP HOTEL INFORMATION
Gaylord Texan Resort & Convention Center 1501 Gaylord Trail, Grapevine, TX 76051 (817) 778-1000 Hotel Website Book your room under our group rate of $189 for Traditional King and $199 for Traditional 2 Queens, plus $20 resort fee and prevailing taxes. (The group room rate will only be available until 5/25, after which time accommodations may or may not be available at the prevailing rate.)GROUND TRANSPORTATION FROM DALLAS/FORT WORTH INTERNATIONAL AIRPORT
Travel Distance: Approximately 5 miles Travel times and costs below are estimates and final travel times are dependent upon traffic TAXI Fee: $20-$25 USD; per cab Travel time: 9 minutes UBER/LYFT Fee: $18-$22 USD; per car Travel time: 9 minutes Driving directions from the airport to Gaylord Texan: Take the north exit out of the airport towards highways 635/121. Travel north on 121 to the Bass Pro exit. Turn left onto Bass Pro Drive. Continue straight past the Embassy Suites on the right and at the traffic light turn left onto Highway 26 West. Proceed through the traffic light at Fairway Drive and turn right into the hotel entrance on Gaylord Trail.GROUND TRANSPORTATION FROM LOVE FIELD AIRPORT
Travel Distance: Approximately 20 miles Travel times and costs below are estimates and final travel times are dependent upon traffic TAXIGROUND TRANSPORTATION PRIVATE CAR SERVICE GAYLORD TEXAN RESORT
Private car service is available to DFW Airport starting at $82- Thursday, June 16, from 12:00 pm - 7:00 pm (change to 4 to 8pm)
- Friday, June 17, from 7:30 am-8:45 am (change to 7a to 9a)
- Saturday, June 18, from 7:30 am-8:45 am (change to 7a to 9a)
- Make sure you have your current health insurance card/information in case of any medical emergencies. Review your policy regarding emergency care when traveling. Bring a hard copy of your Seizure Action Plan.
- Place medications in your carry-on bag and make sure to bring an extra week’s worth to be safe.
- Pack sunscreen for time at the pool!
- The weather in Grapevine TX can average from a high of 92 to a low of 74 during the month of June
Local Transportation
- Hotel shuttle does not go off-site
- Uber/Taxi available
- Grapevine Visitors Shuttle – Hotel is one of the stops
- Shuttle hours will change but currently Thursday-Sunday 8:00 AM – 10:00 PM
- Cost: $5.00 / person per day
What is the closest hospital?
- Location: 1650 W College St, Grapevine, TX 76051 (3.3 miles / 10 min drive)
- Phone: 817-481-1588
- By definition, emergencies take you by surprise. But when they do, we’re ready 24 hours a day, seven days a week. From minor injuries to life threatening conditions, you can trust Baylor Scott & White Medical Center – Grapevine to provide the treatment you need.
- Location: 1935 Medical District, Dallas, TX 75235 (19 miles / 24 min drive)
- Phone: 214-456-7000
- Today, children and families facing complex medical conditions travel from all over the world to visit our Dallas campus, which includes Children’s Medical Center Dallas, the Children’s Health℠ flagship hospital and one of the top pediatric hospitals in the nation.
- Location: 801 7th Ave, Fort Worth, TX 76104 (27.3 miles / 36 min drive)
- Phone: 682-885-4000
- Cook Children's Medical Center is a nationally recognized not-for-profit pediatric hospital located in Fort Worth, Texas. One of the largest freestanding pediatric medical centers in the U.S., Cook Children's main campus is located in Tarrant County.
Nearby Grocery Stores & Pharmacy
- Location: 912 W Northwest Hwy, Grapevine, TX 76051 (2.4 miles / 7 min drive)
- Phone: 817-310-3072
- Location: 2105 W Northwest Hwy, Grapevine, TX 76051 (3.2 miles / 10 min drive)
- Phone: 817-416-2501
- Location: 1101 Ira E Woods Ave, Grapevine, TX 76051 (3.5 miles / 10 min drive)
- Phone: 817-488-1800
- Location: 1601 W State Hwy 114, Grapevine, TX 76051 (4 miles / 12 min drive)
- Phone: 817-421-4770
Thank you to our Sponsors
We value our relationship with each of our partners. In addition to financial support, partners provide their unique expertise and perspectives on the issues and needs our families face daily. And while it is our commitment to improve the lives of those impacted by Lennox-Gastaut Syndrome that brings us together, it is our shared understanding that collaborative initiatives generate steadier progress and stronger outcomes that will ensure our partnership proves valuable for the families and providers in our community.
Interested in becoming a sponsor? Email us at info@LGSFoundation.org