Savannah (age 28) & Tracy's Story
According to my records, I’ve witnessed more than 40,000 seizures—a remarkable number, even for a medical professional. Still, I’m not a medical doctor. I’m a mom. I remember the first seizure vividly. I awoke to the sound of choking coming…
International LGS Awareness Day takes place every year on November 1st, kicking off Epilepsy Awareness Month and lasting throughout the entire month of November. As part of the many awareness initiatives that are organized around the world, locations in dozens…
Charles (age 10)
Life throws us curveballs. And in the fall of 2012, my wife and I got thrown a big one. At only 18 months old, Little Charles Wagner was diagnosed with Lennox-Gastaut Syndrome (LGS), a rare and severe epilepsy disorder characterized…
Are you looking for a doctor who knows about LGS? Professionals listed on this site have treated patients with Lennox-Gastaut Syndrome and/or related disorders and many have been recommended for this page by other LGS families. You can find more…
Join us on November 1st for International LGS Awareness Day Each year, the LGS Foundation organizes a social media campaign and in-person events worldwide to recognize International LGS Awareness Day. In addition, more than 50 locations will Illuminate for LGS…
Upcoming Webinars: September 22, 2021 Following our recent LGS Research Meeting of the Minds (MoM) conference, the LGS Foundation’s Executive Director, Dr. Tracy Dixon-Salazar, will answer any questions the community may have about LGS Research, LGS Foundation Funded Grants, and…
Every year, the LGS Foundation organizes the LGS Research Roundtable at the American Epilepsy Society’s annual meeting in an effort to #FreeTheData and share research updates from our grant recipients and research collaborations. 2021 Roundtable Agenda Come hear about the amazing…
Addyson (age 11)
Hi my name is Addyson Gruber. I am 11 years old and I live in Cincinnati Ohio with my brother Braxtin, my mom Katie and my dad Mark, and Braxtin’s service dog, Dawson. I am going into the 6th grade…
The LGS Foundation is organizing the first-ever Meeting of the Minds professional conference to find disease-modifying therapies and cures for LGS. This two-day Virtual Conference will bring together patients, families, doctors, researchers, industry partners, and advocacy organizations to discuss progress…
It can be hard for brothers and sisters when a sibling has a chronic illness like LGS. Their routines are disrupted, and they worry and wonder what is happening and if their sibling will be alright. Often parents’ time is…
