2/23/1987 - 3/24/2022
Rebekah was an emergency C-section in 1987. She progressed normally until, at 22 months, she suddenly experienced a horrible grand mal! There was several feet of snow outside, so the ambulance took a while! Her older brother by two years…
2023 LGS Meeting of the Minds: Advancing Clinical Research -Save the Date- September 13-15, 2023: Researcher Meeting Days September 16, 2023: Family Science Day The LGS Foundation is hosting its second Meeting of the Minds to discuss how we can…
Thank you for the many ways you give to the LGS Foundation. Because you give, we can give to others. We invite you to follow throughout December to celebrate 12 important moments we’ve impacted together. Please give, and share these moments…
Help Raise LGS Awareness This November!
November 1st International LGS Awareness Day Each year, the LGS Foundation organizes a social media campaign and in-person events worldwide in recognition of International LGS Awareness Day. Our goal is to raise awareness of LGS and bring LGS families together….
Every year, the LGS Foundation organizes the LGS Research Roundtable at the American Epilepsy Society (AES) annual meeting in an effort to #FreeTheData. Join us as we hear updates from our grant recipients and research collaborations. Registration is Open for the LGS…
The LGS Foundation is proud to be part of the Chan Zuckerberg Initiative’s Rare As One Network – a group of 50 patient-led organizations that are accelerating research and driving progress in the fight against rare diseases. The LGS Foundation…
On Lifetime TV's the Balancing Act
Watch the Full Episode Below: A Mom’s Journey to Understand Her Daughter’s Rare Disease Join Us as We Go Behind the Mystery of LGS Tracy Dixon-Salazar knows firsthand the devastating effect of Lennox-Gastaut Syndrome (LGS) — her daughter Savannah developed…
November 5, 2022 at the Birch Aquarium, San Diego
Thank you for helping us raise over $77,000 for LGS Research & Family Support! We can’t thank our community enough for joining us at our Every Moment Matters Awareness Dinner this past Saturday. Because of you, we can continue our…
It is a pleasure to introduce Our Board of Directors to You Our Board of Directors brings a wealth of experience and expertise to the LGS Foundation, united by their passion for our mission to end the devastation and suffering…
The PACIFIC Study is a clinical trial for a drug called LP352. This study will assess the safety and tolerability of this drug as well as examine changes in seizure frequency over the 90-day treatment period. The study plans to enroll…
