Individuals of any age who meet the criteria for drug-resistant epilepsy (defined as failure to achieve seizure freedom after using two or more anti-seizure medications) are considered surgical candidates and are eligible for assessment. Epilepsy surgery is complex and differs…
From seizures to full lives through precision diagnoses, precision treatments, and whole‑life care Every family living with Lennox‑Gastaut Syndrome knows how hard this journey can be—and how deeply we all dream of better answers and brighter days. That’s why the…
The definition and rules governing Guardianship vs. Conservatorship can vary from state to state; therefore, please seek legal advice for details on your specific state laws and what type of guardianship or conservatorship your loved one will require. A guardianship…
Reflections from the 10th International LGS Foundation Family & Professional Conference
I came to Orlando as a first-time attendee, still relatively new to the LGS community. I am leaving inspired, hopeful, and more energized about the future of LGS research than I have ever been. Over three days, we laughed and…
First published: May 15, 2026
Real-world outcomes of responsive neurostimulation in patients with Lennox–Gastaut syndrome: A multicenter retrospective study Lennox–Gastaut syndrome (LGS) involves several different seizure types and developmental differences, and for most families, the hardest part is that LGS seizures rarely respond well to…
August 3, 2009 – August 25, 2023
Amaree Brown was never defined by her diagnosis—she defined everyone who had the privilege of knowing and loving her. From the moment she was born, we shared a bond that words could never fully describe. At just two months old,…
November 13, 2008 – July 29, 2025
Alyssa Katelynn had a personality that could light up any room. She was wonderfully sassy and always knew how to make those around her smile. If she didn’t want to do something at school, she’d pretend to be asleep. And…
For families living with Lennox-Gastaut Syndrome (LGS), every day can feel like a battle against the unpredictable. New research is moving beyond traditional surgery and heavy prescriptions, opening a path toward non-invasive options that could fundamentally change how we treat…
Accelerate Research. Change Lives.
The LGS & Associated DEE Research Accelerator brings industry, academia, and patient advocacy together in a pre-competitive environment — eliminating duplication and moving the needle faster for those living with LGS and related Developmental & Epileptic Encephalopathies (DEEs). Member Benefits …
Grayson’s journey of resilience, love, and life with Lennox-Gastaut Syndrome.
Grayson’s story began like many others—full of hope, excitement, and dreams for his future. But over time, it became clear that his path would look very different from what we once imagined. Just one week before his third birthday, Grayson…
