Latest News

2022 LGS Research Roundtable at AES

Every year, the LGS Foundation organizes the LGS Research Roundtable at the American Epilepsy Society (AES) annual meeting in an effort to #FreeTheData. Join us as we hear updates from our grant recipients and research collaborations. 2022 Roundtable: Advancing Clinical Research in…


Swing “FORE” a Cure Golf Event for LGS

Event Date: July 23, 2022

Join us For the First-Ever Swing FORE a cure for LGS Saturday, July 23, 2022 Dublin, Ohio LGS is a severe form of epilepsy that typically becomes apparent during infancy or early childhood. Children with LGS experience frequent, uncontrollable seizures…


The LGS Foundation Receives Chan Zuckerberg Initiative Rare As One Grant

This grant will support the development of a diverse and inclusive network that brings together LGS patient, their families, and researchers to accelerate diagnosis, treatments and cures.

The LGS Foundation is among a select group of rare disease organizations to receive third-year funding as part of the Chan Zuckerberg’s Initiative, Rare As One (RAO). “In 2019, the Chan Zuckerberg Initiative launched the Rare As One Network, funding…


Our Medical Science Advisory Board

meet the amazing doctors and scientists that make up our medical Science Advisory Board (MSAB) This amazing group of individuals is taking a stand against Lennox-Gastaut Syndrome by helping our team in the Foundation’s mission to accelerate LGS research. The…


8th International Family & Professional Conference

Every two years, the LGS Foundation organizes a comprehensive multi-day educational meeting. The conference brings together more than 350 LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and how to live with…


2021 LGS Research Roundtable at AES

Every year, the LGS Foundation organizes the LGS Research Roundtable at the annual American Epilepsy Society (AES) meeting in an effort to advance LGS research and #FreeTheData. Join us as we hear updates about LGS research and discuss future advances. 2021…


Additional Resources

The following list contains links to third-party websites. The LGS Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our…


Seizure Types Associated with LGS

LGS is a lifelong developmental brain disorder and frequent, debilitating seizures are the main feature. Therapies may help, however, in most cases, they do not completely stop seizures. Seizures often change in children with LGS as they grow and develop….


Seizures and Study: One Mother’s Journey to Cure Lennox-Gastaut Syndrome

How Tracy Dixon-Salazar, PhD, the executive director of the LGS Foundation, went from a new mother to a neuroscientist, and her decades-long quest to improve the lives of patients like her daughter, Savannah.

Many who make the decision to enter the medical science field are often driven by a desire to help others. Physicians take the Hippocratic Oath and swear to treat the ill and do no harm, and researchers are, many times,…


In Memory of Joseph Michael Manson

01/05/2010 -04/14/2022

Joseph was born with a rare medical condition called cobolomine e abnormality he was the first in the US and first at birth in the world. Joseph fought a hard fight and showed them it can be done he got…