Latest News

The LGS Foundation Goes to Washington

Rare Disease Week on Capitol Hill

On the last day of February every year, we pause to honor those who are living with, or have passed away from, a rare disease. The last day of February after all, is the rarest day of the year. It’s…


Protected: LGS Learn From Every Patient Database

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The LGS Foundation Celebrates 15 Years!!

2008 to 2023: 15 Amazing Years of Progress!

Formed in 2008, the LGS Foundation has since grown into an internationally recognized nonprofit organization that is improving the lives of those impacted by LGS through advancing research, awareness, education, and family support. The LGS Foundation brings together patients, families,…


Meet Micah

Micah was born a healthy and happy child. Everything was fine until around one year old. I started to notice things he could do he was having a hard time with or not doing at all. We went for test…


Behind the Mystery of LGS on Lifetime TV

The Balancing Act on Lifetime TV Celebrates Rare Disease Day Watch Now: The Lennox-Gastaut Syndrome Foundation: Working Together to Find a Cure Executive Director of the LGS Foundation Dr. Tracy Dixon-Salazar sits down with Montel Williams to discuss the Foundation’s…


Financial Resource Toolkit for LGS Families

The following list contains links to third-party websites. The LGS Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our…


Walk ‘n’ Wheel for LGS Research

Stepping Towards a Cure, Together!

Each year, hundreds of community members mobilize to raise funds for the LGS Foundation’s “Finding the Cures, Together” Research Program. This vital program drives cutting-edge research that leads to new therapies and treatments for those impacted by LGS! Join our…


2023 LGS Meeting of the Minds

Sept 13-16, 2023 at the University of Maryland, Medical Center

-Save the Date- 2023 LGS Meeting of the Minds: Advancing Clinical Research September  13-15, 2023: Researcher Meeting Days September 16, 2023: Family Science Day The LGS Foundation is hosting its second Meeting of the Minds to discuss how we can…


The LGS Foundation and the Chan Zuckerberg Initiative Rare As One Network

The LGS Foundation is proud to be part of the Chan Zuckerberg Initiative (CZI) Rare As One Network – a group of 50 patient-led organizations that are accelerating research and driving progress in the fight against rare diseases. The LGS…


Topiramate for Seizures in LGS

What is Topiramate? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Topiramate, sold…