Latest News

8th International Family & Professional Conference

Every two years, the LGS Foundation organizes a comprehensive multi-day educational meeting. The conference brings together more than 350 LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and how to live with…


Walk ‘n’ Wheel for LGS Research

Stepping Towards a Cure, Together!

2022 Walk ‘n’ Wheel for Lennox-Gastaut Syndrome Registration Opens February 2022 The LGS Foundation is hosting its 7th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome, March 26th, 2022 to raise awareness and increase funding to accelerate research on Lennox-Gastaut Syndrome…



Eli was born in the summer of 2003 at 34 ½ weeks old. He spent 7 days in the NICU due to a ventricular septal wall defect. By 3 months of age, it was evident that he was not meeting…


Help Solve the Mystery of LGS

Epilepsy Awareness Month Focuses on Solving the Mystery of LGS and Other Rare Epilepsies

Donate now International LGS Awareness Day brought together thousands of people around the world to show that the challenges associated with LGS are tough, but so are those affected by this rare disease. This also kicked off Epilepsy Awareness Month…


LGS Research Roundtable at AES

Every year, the LGS Foundation organizes the LGS Research Roundtable at the American Epilepsy Society (AES) annual meeting in an effort to #FreeTheData. Join us as we hear updates from our grant recipients and research collaborations. 2021 Roundtable Learn about the…


LGS Meeting of the Minds Conference

This two-day Virtual Conference brings together patients, families, doctors, researchers, industry partners, and advocacy organizations to discuss progress to date in understanding LGS and how we can find targeted treatments and cures for this horrible early-life epilepsy. Meeting of the…


LGS Meeting of the Minds Seminar Series

Continue the conversation that started at our September 2021 Meeting of the Minds Conference. Join us!   Developing Novel LGS Clinical Trails December 3rd, 2021 at AES  Speakers Include: Dr. Dennis Dlugos – Moderator & Discussion Leader Dr. Sudha Kessler – How…


Two Peas in a Pod

A Sister's Special Bond

My sister, Robyn, and I are 4 1/2 years apart. We are like any other sisters…we share laughs, tears, and yes, we even argue! What sets us apart is our special bond. From the moment I saw my sister in…


A Sister’s Love

Songs Inspired by her Brother Help Raise Awareness of LGS 

On November 1, local artists and LGS community members joined the LGS Foundation in Santa Monica, California to help raise awareness and funds for Lennox-Gastaut Syndrome. Meet the Artist: Christina Apostolopulos Hi, my name is Christina and my younger brother…


Cash’s LGS Journey

Celebrating 100 Days of Seizure Freedom

Cash is the youngest of our three boys. He is the light of our lives and here to teach lessons to all of us.  Cash started having seizures when he was 3 weeks old. These were easily controlled with medications….