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2022 LGS Family Conference in Dallas, Texas

Coming in 2022!  Every 18 months, the LGS Foundation organizes a comprehensive multi-day educational meeting. The conference brings together more than 350 LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and future…

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Walk ‘n’ Wheel for LGS Research

Hundreds of  LGS families and community members came together on June 5th, 2021 to Step Towards a Cure for LGS! Together our community pledged Over 1 Million Steps and Raised Over 60K for Research into Lennox-Gastaut Syndrome. Learn more about…

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What is epilepsy surgery?

Epilepsy surgery is any type of brain surgery where parts of the brain are removed, disconnected, destroyed, or stimulated to stop seizures. There are many different types of epilepsy surgeries. Which procedure is used depends upon the type of seizures…

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Vagus Nerve Stimulation (VNS)

How does the brain control heart rate, digestion, sweating, speech, chewing, and the gag reflex? Though these functions seem unrelated, they’re all controlled by the vagus nerve – a long fiber that connects the brain to the throat, heart, and…

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Corpus Callosotomy

What Is a Corpus Callosotomy? The corpus callosum is a band of nerve fibers located deep in the brain that connects the two halves (hemispheres) of the brain. It helps the hemispheres share information, but it also contributes to the…

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Deep Brain Stimulation (DBS)

Children who are not eligible for surgery, or who have had limited surgical success, often attempt the ketogenic diet or vagal nerve stimulation (VNS). A newer approach targets the source of the seizure, using magnets or electricity to stimulate the…

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Comprehensive Care Centers

Individuals with Lennox-Gastaut Syndrome have complex and lifelong neurological and medical needs that are unique. Often, a local care team is not familiar with LGS or may not have had another patient with this diagnosis. A visit to a Comprehensive…

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Patient Focused Drug Development (PFDD) Meeting

On November 1, 2019, the LGS Foundation convened the first patient-focused drug development meeting (PFDD) for the DEEs (developmental and epileptic encephalopathies) including Lennox-Gastaut Syndrome in College Park. Over 100 people ranging from patients, caregivers, FDA representatives, pharmaceutical companies, device…

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LGS Foundation Community Teams

Do you want to share your enthusiasm and energy? Do you want to share your experience? Do you want to make an impact in the lives of those living with LGS? Then we need you! Join an LGS Foundation Community…

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Infantile Spasms Awareness Week

#ISAW

What is Infantile Spasms awareness week (ISAW)? Infantile Spasms Awareness Week (ISAW) is held annually on December 1-7 to raise awareness of Infantile Spasms (IS). ISAW is hosted by the Infantile Spasms Action Network (ISAN), a group of more than…

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