The LGS Foundation continues to shine a light on Lennox-Gastaut Syndrome as we Illuminate for LGS. Promoting awareness and an understanding of what matters to LGS families. You Can Join Us! Each November, as part of the many awareness initiatives…
Over the past five years, LGS research has experienced significant advancements, providing hope for individuals and families affected by this complex disorder. At the LGS Foundation, we know that patient-driven research plays a vital role in driving research on topics…
Our community is stronger with facts! When it comes to Vagus Nerve Stimulator therapy (VNS Therapy) for seizure reduction, do you know fact from fiction?
We are Stronger with Facts: Let’s stamp out VNS Myths! LGS is tough; finding information doesn’t need to be. That’s why we are helping our community separate fact from fiction around Vagus Nerve Stimulation (VNS) Therapy. Often, information on specific…
The following list contains links to third-party websites. The LGS Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our…
Order your free About LGS Trick or Treat cards and spread awareness during Halloween.
Order Your About LGS Trick Or Treat Cards Today! (Available in English and Spanish) Front of card Back of card Cards are business card sized (3.5 inches x 2 inches) and come in packs of 25. Cards shipped while supplies…
Sept. 14-16, 2023 at Hilton Baltimore Inner Harbor
Thank you for helping us create a vision to advance clinical research in LGS! The LGS Foundation hosted its second Meeting of the Minds, Sept. 14-16, 2023, to discuss how we can Advance Clinical Research in LGS. This hybrid conference…
A Clinical Study for Children and Adults with Lennox-Gastaut Syndrome
The LGS DISCOVER study, also identified as the YKP509C003 study, is a clinical trial for pediatrics and adults with Lennox-Gastaut Syndrome (LGS). The LGS DISCOVER study will evaluate whether an investigational medicine called carisbamate, when given along with other anti-seizure…
Join the LGS Foundation in Orlando, FL December 1 – 5, 2023 Are you attending the American Epilepsy Society Annual Meeting in Orlando, Florida, in December? Visit us in the Epilepsy Resource Area of the Exhibit Hall (booth N844). Here, our…
It was a cold, snowy day, in Jan 2010. Brock was 3 years old when he fell backward, hit his head on the dresser, and began seizing. In the ER, the physicians believed he passed out due to his sugar…
My daughter Olivia was diagnosed with the most severe form of life-threatening epilepsy in November of 2021, Lennox-Gastaut syndrome. This was a known possibility since she experienced a severe traumatic brain injury at birth resulting in seizures that evolved into…
