On this journey, you are Never Alone.
Grayson’s journey of resilience, love, and life with Lennox-Gastaut Syndrome.
Grayson’s story began like many others—full of hope, excitement, and dreams for his future. But over time, it became clear that his path would look very different from what we once imagined. Just one week before his third birthday, Grayson…
September 25, 2000 – November 19, 2016
Maggie Grace Lyons loved everyone she met. Though she never spoke a word, she said so much with her beautiful blue eyes. She loved being outside—singing, swinging, and spending time with her family. Maggie adored her stuffed animals, especially her…
Kairo’s Journey with Lennox-Gastaut Syndrome
Kairo’s story began on the day of a total solar eclipse, a moment where light and darkness stood side by side. We didn’t know then how fitting that would be for his life. His seizures started when he was still…
October 10, 2002 – March 8, 2019
My daughter, Caitlin Elizabeth Cline, was born on October 10, 2002. She was deeply loved and brought so much light into our family. There are too many memories of Caitlin to count. One of her brothers’ favorites was playing tag…
Our journey with Lennox-Gastaut Syndrome (LGS) began on Thanksgiving Day in 2008, when my grandson Kameron was three years old. My son-in-law called while rushing to the emergency room and said Kameron seemed unconscious, was making strange sounds, his eyes…
Our amazing son Mason is 18, and he was diagnosed with LGS when he was 3 years old. It’s been quite a journey so far, with the euphoric highs you expect as a parent, and soul-crushing lows that you NEVER…
03/31/2007 - 02/12/2023
Savannah was my first granddaughter, and from the very beginning, she brought a special kind of joy into my life. Even though we lived far apart and only saw each other a few times a year, the time we shared…
Our grandson Patrick is 28 years old and has lived with Lennox-Gastaut Syndrome (LGS) since he was just 4. He’s the eldest of our daughter’s four children, and for the past eight years, he has lived with us full-time. Before…
A Story of Love, Resilience, and Advocacy
My name is Matthew. I’m 36 years old, and my story begins with my beautiful brother, Thomas. Thomas was born in 1983, and just four years later, he was diagnosed with epilepsy. At the time, our family knew very little…
Charlie was born on February 25, 2011, in Lansing, Michigan—the youngest of five grandsons. From the very beginning, he was full of life. He reached milestones quickly—talking, walking, and potty training earlier than his cousins. He was healthy, vibrant, and…
