Zander's Story
At 14 months old Zander had open heart surgery. As a result, 2 weeks post-surgery Zander suffered cardiac arrest.
Before this, he was a thriving little boy. Then on December 19th, his life changed forever. We spent 4 months in hospital. He suffered from constant seizures and dystonia.
Zander is also deaf and blind with quad dyskinetic cerebral palsy. Medicine just hasn’t helped control the seizures to this point.
Our little boy is now 11 months post a life-limiting brain injury and has made no developmental improvements, however, he’s taught us unconditional love and how to face our biggest fears head-on.
My advice to other caregivers is to take LGS one day at a time.
-Written and submitted by: Zander’s Mom, Hannah
Updated 11/25/24 (KK)