About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
Get Involved
- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
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Volunteer

Champion our cause: Join the LGS volunteer movement!

Volunteer Interested in getting involved at the LGS Foundation but unsure where to start? Are you curious how your skills and strengths can positively impact the LGS community?

The LGS Foundation relies on dedicated volunteers to help drive our mission and realize a future where everyone impacted by LGS can live life to the fullest.

Our volunteers host educational meetings, raise awareness and fundraise, foster local connections, and serve as a resource in their communities.

There are several ways to participate as a volunteer with a position to fit anyone interested in being a part of our team. Volunteer as your schedule allows, as much or as little as you want.

Updated 12/05/24 (AM)

Volunteer

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