Volunteer with the LGS Foundation
Your time. Your strengths. Your way.
Together, our volunteers help accelerate research, strengthen community, and amplify every LGS voice.
Whether you have a few minutes, a few hours, or want to take on a larger role, there are meaningful ways to make a difference.
Volunteer Your Way
There’s no one way to volunteer with the LGS Foundation. Choose opportunities that fit your interests, strengths, experience, and availability.
Participate in surveys, focus groups, research initiatives, and other opportunities to bring lived experience into LGS research.
Share your experience, raise awareness, and help amplify the voices of LGS community.
Help families feel welcomed, connected, and supported throughout their LGS journey.
Support Foundation events, local activities, fundraising, and community initiatives.
Use your personal or professional skills to support special projects and Foundation needs.
Want to Do More?
As you become more involved, there are opportunities to grow into skilled and leadership volunteer roles.
This may include serving as a trained Family Ambassador, contributing your expertise to special projects or advisory opportunities, or helping lead community efforts.
Start where you are. Volunteer your way. Grow when you’re ready.
“When my daughter Averi was diagnosed, I felt completely lost. The LGS Foundation and its support group helped me find true friends and families who understood our journey. I wasn’t alone anymore. Now, I’m committed to reaching other families in my community so they can find the resources and support they deserve. I’m grateful to be part of this team and to help make a difference.”— LGS Volunteer
Ready to Get Involved?
Complete our Volunteer Interest Application and tell us a little about yourself, your interests, and how you’d like to make a difference.
We’ll connect with you from there and help you find opportunities that are a good fit.
Have questions? Email us at Info@LGSFoundation.org – we’re here to get you started.
Updated 10/06/26 (KK)