LGS is a severe epilepsy syndrome that develops in children and leads to lifelong disability.
Our little unicorn
Every mother will say their child is special. But my sweet Josie truly is. She is the definition of a warrior.
Fighting for a Cure for LGS
Savannah (age 28) & Tracy's Story
Behind the Mystery of LGS on Lifetime TV
New Segment Airing Feb. 20th & 28th, 2023
“Rare Disease doesn’t come with a manual, it comes with a mother who never gives up!”
Walk ‘n’ Wheel for LGS Research
Stepping Towards a Cure, Together!
May 6, 2023
The LGS Foundation is excited to host the 8th annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome on Saturday, May 6, 2023.