No one is born with LGS, instead, it develops over time from childhood seizures.
Brittany and Amaree
Single mother to Amaree (age 11), diagnosed with LGS at age three.
Tayla and Brian
Adopted mother to 16-year old Brian.
Sue and Tony McCain
Parents to 23-year old Matthew, diagnosed with LGS at age seven.
Help Solve the Mystery of LGS
Epilepsy Awareness Month Focuses on Solving the Mystery of LGS and Other Rare Epilepsies
“While there is no cure for LGS, there is a hopeful path forward,” said Dr. Dixon-Salazar. “The status quo is that children with LGS and other severe epilepsies are having their lives robbed from them, and adults with these syndromes are living with the burden of unrelenting seizures and side effects. The LGS Foundation is harnessing the power of the patient family community to change this and give every child and adult a chance to live their life to the fullest.”