From seizures to full lives through precision diagnoses, precision treatments, and whole‑life care
The 3 Grand Challenges
Real Life Impact
The LGS Foundation unites families and researchers to drive faster progress. We measure success in family outcomes, not just papers.
Meet Charlie
“For 42 years we assumed our son was singular in his complex array of medical issues. It was only six months ago that we learned he belongs to a sliver of individuals with LGS. A simple notation made in Charlie’s chart by his neurologist was casually shared by a new primary care physician. A notation that had never before reached us.“ – Luise, Charlie’s Mom
Meet Mason
“We threw ourselves with every ounce of energy we could find into therapies and medical treatments. Countless medications were tried – many that had side effects that made us feel like we were putting out his beautiful light. So many failed to help at all. Some helped for a while then stopped.” – Tricia, Mason’s Mom
Meet Jackson
“We cannot let Jackson out of our sight—ever. We have to intervene or assist him constantly, so there is no freedom. During his waking hours, everything else is pushed to the side. Oftentimes only the critical things get done. Guilt and sadness are frequent parts of our reality.“ – Jeannie, Jackson’s Mom
Walk for LGS Research – April 2026
02/18/26 (AM)