About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
Get Involved
- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
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Home / New Family Welcome Kit

New Family Welcome Kit

You are not alone. We’re here for you.

A new LGS diagnosis can bring a lot of questions.

The LGS Foundation’s New Family Welcome Kit brings trusted information, practical resources, and ways to connect with the LGS community together in one place.

Use it at your own pace to help you understand LGS, find support, and take the next steps that are right for your family.

Download the Welcome Kit

We’re here for you

Not sure where to start? Reach out, and we’ll help you find your next step.

FamilySupport@LGSFoundation.org | (718) 374-3800

New Family Welcome Kits are made available to LGS Families at no charge, thanks to support by our partners at:

Updated 10/07/26(KK)