Caregiver Support

We Are Here for You and Your Loved One 

Being a caregiver for a child with Lennox-Gastaut Syndrome (LGS) or other serious medical conditions can be both enormously gratifying and extremely challenging. The experience is life-altering and can be all-consuming. In particular, the long and winding diagnostic odyssey and daily complexity of navigating care, treatment, and support services can be overwhelming.

Whether you care for someone who is recently diagnosed with LGS, are adapting to new challenges as the disorder evolves, or have been living with LGS for a long time, a strong support network is essential for the well-being of you and your loved ones.

The LGS Foundation has a strong support community and many support groups to help as you navigate the LGS journey.

“There is hope. And there are so many people out there who are working through the same thing, who can identify with what you’re going through, and who can offer support and encouragement to you. So just keep pressing on. You’re doing great.” —Darla, mother to Aaron


Caregivers need care too, and self-care is not selfish

What you experience as a caregiver will change over time. Depending on your age, your own personal situation, and your relationship with your loved one, your challenges and experiences will be unique. However, you are not alone!

The most important thing to remember is that the person you are taking care of is only as good as you are; if you do not take care of yourself, you will not be able to take care of your loved one.

Find caregiver resources, support, and advice:


The information here is not intended to provide diagnosis, treatment, or medical advice and should not be considered a substitute for advice from a healthcare professional. The content provided is for informational purposes only. LGSF is not responsible for actions taken based on the information included on this webpage. Please consult with a physician or other healthcare professional regarding any medical or health related diagnosis or treatment options.

Updated 8/27/22