About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
Newly Diagnosed
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
- - Information for the Newly Diagnosed
  - Request Information
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
Get Involved
- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
Donate
Search

Home / Get Connected and Supported / Join Our Online Communities

Join Our Online Communities

Looking for support for LGS? Meet thousands of others who understand. You’re Not Alone.

The LGS Foundation moderates a social network group for those affected by LGS. Get the emotional support you need from others in similar circumstances, and gain practical advice and insights on managing treatments or therapies for LGS. Our network allows families to truly connect, make real friendships, and share daily ups and downs in a judgment-free place. Join our global community today.

LGSF ONLINE PRIVATE FAMILY SUPPORT GROUP

The LGS Foundation also understands the importance of making local connections. With the help of our LGS Family Ambassadors, we have created local/state support groups for families to connect and share local resources. For information about groups in your area please email info@lgsfoundation.org

LGSF Canada ONLINE PRIVATE FAMILY Support Group

LGSF UNITED KINGDOM ONLINE PRIVATE FAMILY Support Group

LGSF Events & FAMILY-ONLY MeetUps

Join Our Online Communities

Also in this section