Reflections from the 10th International LGS Foundation Family & Professional Conference
I came to Orlando as a first-time attendee, still relatively new to the LGS community. I am leaving inspired, hopeful, and more energized about the future of LGS research than I have ever been. Over three days, we laughed and…
For families living with Lennox-Gastaut Syndrome (LGS), every day can feel like a battle against the unpredictable. New research is moving beyond traditional surgery and heavy prescriptions, opening a path toward non-invasive options that could fundamentally change how we treat…
First published: February 8, 2025
Vagus nerve stimulation therapy in Lennox-Gastaut syndrome (severe childhood epilepsy): plain language summary of a 2-year study Surgical interventions are one form of therapy for LGS patients and include cortical resection (resection), corpus callosotomy (callosotomy), or device therapy. Therapeutic neuromodulation…
First published: November 24, 2025
EEG functional connectivity as a marker of evolution from infantile epileptic spasms syndrome to Lennox–Gastaut Syndrome Early diagnosis and effective treatment significantly improve LGS outcomes and reduce costs. However, LGS diagnosis is difficult, relies on a combination of EEG features…
A long-term care planning needs assessment
Overview The LGS Foundation recently participated in a new study, published in Epilepsy & Behavior, which focused on the perspectives of caregivers who are planning for the adulthood of patients with Developmental and Epileptic Encephalopathies (DEE). The anonymous, internet-based survey…
When great minds meet, great breakthroughs happen!
The 2025 LGS Research Meeting of the Minds, held July 21–22, brought together over 100 caregivers, healthcare professionals, researchers, and industry partners committed to improving care for individuals living with Lennox-Gastaut Syndrome (LGS) and associated developmental and epileptic encephalopathies (DEEs)….
Hope Abounds as Lennox-Gastaut Syndrome (LGS) Research Took Center Stage at the 2024 American Epilepsy Society Meeting Increased awareness and research positioned LGS as a major area of interest at this year’s AES Annual Meeting. LGS was highlighted as more…
The Latest in LGS Research - July 2024
While there are no cures for LGS, current LGS Foundation-funded researchers are focused on two areas where their efforts can lead to improved lives for those with LGS and their families. One of these areas is seizure control and another…
The recent AES Annual Meeting brought together more than 6,000 healthcare providers, scientists, patient advocates, industry partners, and other professionals dedicated to better outcomes for people with epilepsy. It was really energizing to attend this meeting and hear about all…
Our 2nd Biennial LGS Research Meeting of the Minds was an Overwhelming Success! Watch the short recap video from our Executive Director, Tracy Dixon-Salazar, PhD Over 150 people attended this two-and-a-half-day hybrid research meeting in Baltimore, MD to discuss…
