07/17/1997 - 05/11/2024
Megan was lovingly known as “doubly rare”. She lived with the rare epilepsy syndrome Lennox-Gastaut Syndrome, secondary to her rare genetic anomaly, PURA Syndrome. Megan had the sweetest soul, her smile and soft presence impacting all who knew her. She spoke volumes without ever saying a word.
My favorite memory of Megan is her during music therapy, playing her chimes. – Megan’s Mom, Mary