Community Awareness Events

Join us in raising awareness and increasing education at one of our many Community Awareness Events.

Behind the Mystery of LGS on Lifetime TV

Watch as we go Behind the Mystery of LGS on November 1st

Aired Monday, November 1 at 7:30 am (ET/PT) On International LGS Awareness Day (November 1), LGS Foundation Executive Director, Dr. Tracy Dixon-Salazar, and her daughter Savannah, who has LGS, shared their journey on a special episode of The Balancing Act airing…

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Patient Focused Drug Development (PFDD) Meeting

Externally-Led PFDD Meeting on the Developmental and Epileptic encephalopathies (DEEs), including LGS On November 1, 2019, the LGS Foundation convened the first patient-focused drug development meeting (PFDD) for the DEEs (developmental and epileptic encephalopathies) including Lennox-Gastaut Syndrome in College Park….

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Infantile Spasms Awareness Week

#ISAW

What is Infantile Spasms awareness week (ISAW)? Infantile Spasms Awareness Week (ISAW) is held annually on December 1-7 to raise awareness of Infantile Spasms (IS). ISAW is hosted by the Infantile Spasms Action Network (ISAN), a group of more than…

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Seizure Action Plan Awareness Week

February 14-20, 2022

In 2021, the Seizure Action Plan (SAP) Coalition launched its new website at www.seizureactionplans.org in conjunction with Seizure Action Plan Awareness Week. This new website offers information and resources for patients, professionals, and advocacy organizations to learn about and spread…

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