Community Awareness Events

Join us in raising awareness and increasing education at one of our many Community Awareness Events.

International Family & Professional Conference

Every two years, the LGS Foundation organizes a comprehensive multi-day educational meeting. The conference brings together more than 350 LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and how to live with…

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Help Solve the Mystery of LGS

Epilepsy Awareness Month Focuses on Solving the Mystery of LGS and Other Rare Epilepsies

International LGS Awareness Day brought together thousands of people around the world to show that the challenges associated with LGS are tough, but so are those affected by this rare disease. This also kicked off Epilepsy Awareness Month – we…

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Patient Focused Drug Development (PFDD) Meeting

Externally-Led PFDD Meeting on the Developmental and Epileptic encephalopathies (DEEs), including LGS On November 1, 2019, the LGS Foundation convened the first patient-focused drug development meeting (PFDD) for the DEEs (developmental and epileptic encephalopathies) including Lennox-Gastaut Syndrome in College Park….

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Seizure Action Plan Awareness Week

February 14-20, 2022

In 2021, the Seizure Action Plan (SAP) Coalition launched its new website at www.seizureactionplans.org in conjunction with Seizure Action Plan Awareness Week. This new website offers information and resources for patients, professionals, and advocacy organizations to learn about and spread…

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