Community Awareness Events

Join us in raising awareness and increasing education at one of our many Community Awareness Events.

Patient Focused Drug Development (PFDD) Meeting

Externally-Led PFDD Meeting on the Developmental and Epileptic encephalopathies (DEEs), including LGS On November 1, 2019, the LGS Foundation convened the first patient-focused drug development meeting (PFDD) for the DEEs (developmental and epileptic encephalopathies) including Lennox-Gastaut Syndrome in College Park….

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Seizure Action Plan Awareness Week

February 10-17, 2025

In 2021, the Seizure Action Plan (SAP) Coalition launched its new website in conjunction with Seizure Action Plan Awareness Week.   The website offers information and resources for patients, professionals, and advocacy organizations to learn about and spread awareness of:…

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Infantile Spasms Awareness Week

#ISAW

What is Infantile Spasms awareness week (ISAW)? Infantile Spasms Awareness Week (ISAW) is held annually on December 1-7 to raise awareness of Infantile Spasms (IS). ISAW is hosted by the Infantile Spasms Action Network (ISAN), a group of more than…

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