About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
Get Involved
- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
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Home / Community Awareness Events / Page 2

Community Awareness Events

Join us in raising awareness and increasing education at one of our many Community Awareness Events.

Seizure Action Plan Awareness Week

February 10-17, 2025

In 2021, the Seizure Action Plan (SAP) Coalition launched its new website in conjunction with Seizure Action Plan Awareness Week. The website offers information and resources for patients, professionals, and advocacy organizations to learn about and spread awareness of:…

Infantile Spasms Awareness Week

#ISAW

What is Infantile Spasms awareness week (ISAW)? Infantile Spasms Awareness Week (ISAW) is held annually on December 1-7 to raise awareness of Infantile Spasms (IS). ISAW is hosted by the Infantile Spasms Action Network (ISAN), a group of more than…

Walk for LGS Research

Stepping Together for a Breakthrough!

2026 Walk Month Impact $39k+ raised for LGS Research Over 425 participants across 11 walks nationwide Thank you for being part of this movement. Support Research Year-Round Together for a Breakthrough A Global Movement. Powered by Community. April is Walk…