This new website offers information and resources for patients, professionals, and advocacy organizations to learn about and spread awareness of:
- what a Seizure Action Plan (SAP) is
- the importance of a SAP in the health management of those with epilepsy
- resources to develop an individualized SAP
Seizure Action Plan Awareness Week
It is important to educate patients, healthcare providers, and the general public about the importance of Seizure Action Plans (SAPs). To put a focus on SAPs, we will host an annual Seizure Action Plan Awareness Week each February, to coordinate with International Epilepsy Awareness Day. Our inaugural Seizure Action Plan Awareness Week begins on February 14, 2022.
A seizure is a medical emergency. A Seizure Action Plan (SAP) contains tailored guidelines on how to respond during a seizure, based on the patient’s medical history. It includes health and medical information specific to the patient and helps others recognize seizures and the appropriate steps to take to keep him or her safe from injury or damage caused by prolonged seizures.
Many patients with refractory epilepsy may experience prolonged seizures (status epilepticus) and/or seizure clusters, which may need to be stopped with emergency intervention. This is particularly true in the LGS community.
A Seizure Action Plan (SAP) is important because seizures can be life-threatening. Having a SAP lets others know what to do in an emergency situation. A SAP can reduce the time to action during a seizure and faster response times can reduce the risk of prolonged seizures, risk of mortality, and the need for additional rescue medication
Join the SAP Coalition in spreading awareness
(#SAPAW2022 Social Media Toolkit Coming Soon)
Special thanks to the Presenting Sponsor, Neurelis, with additional support from UCB, for this important initiative.