Quick Guides for LGS Families

Clear, practical one-pagers on the topics that matter most to families living with LGS

Caring for someone with LGS means learning about many things at once: seizures and treatments, school and therapies, insurance and benefits, emergencies and everyday routines. It can be a lot to take in, especially when you need answers quickly.

This page brings together short, easy-to-read guides on the topics LGS families ask about most. Each one-pager gives you the key information on a single subject, so you can find what you need, print or share it, and bring it to your appointments and conversations.

These resources are meant to support, not replace, guidance from your loved one’s medical team. If you don’t see a topic you’re looking for, let us know by emailing familysupport@lgsfoundation.org. We add new one-pagers based on what our community tells us it needs.


Urine Retention and Epilepsy
Bone Health and Epilepsy
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Updated 10/30/26 (AM)