Latest News

LGS Foundation’s 12 Days of Giving

Thank you for the many ways you give to the LGS Foundation. Because you give, we can give to others. We invite you to follow throughout December to celebrate 12 important moments we’ve impacted together. Please give, and share these moments…

More

Stellina Study for Diazepam Nasal Spray (Valtoco)

A Clinical Study for 2 to 5 Year Old Children With Epilepsy

The Stellina Study is a clinical study evaluating a single dose of diazepam nasal spray (VALTOCO) as a rescue medication in children aged 2-5 who have been diagnosed with epilepsy. The objectives of the study are to assess the pharmacokinetics…

More

Our Board of Directors

It is a pleasure to introduce Our Board of Directors to You Our Board of Directors brings a wealth of experience and expertise to the LGS Foundation, united by their passion for our mission to end the devastation and suffering…

More

PACIFIC Research Study

NOT RECRUITING

The PACIFIC Study is a clinical trial for a drug called LP352. This study will assess the safety and tolerability of this drug as well as examine changes in seizure frequency over the 90-day treatment period. The study plans to…

More

Carisbamate for Seizures

What is Carisbamate? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Carisbamate (the…

More

Caring for the Caregiver

Being a caregiver for a loved one with LGS is a commitment unlike any other. Caregiving requires limitless amounts of energy, empathy, and patience. While most caregivers will tell you that taking care of a loved one is a genuinely…

More

The Skyway Study for Soticlestat

A Clinical Trial Open to Those With Seizures Associated with LGS

The Skyway Study is a Phase 3 clinical research study of an investigational medication for children, teens, and adults diagnosed with Lennox-Gastaut Syndrome (LGS) who are currently using 0-3 anti-seizure medications to manage symptoms and are still experiencing seizures. The…

More

STARS Research Study

A Clinical Trial Open to Those With Seizures

The STARS (Stand Together Against pRolonged Seizures) Research Study is a clinical trial for a drug called Alprazolam, which is sometimes used to treat seizures. Alprazolam is the active ingredient in Xanax, a commonly known drug. This study is a…

More

Ganaxolone (Ztalmy)

New Treatment for Seizures in CDKL5 Deficiency Disorder (a genetic cause of seizures that can lead to LGS)

What is Ganaxolone? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Ganaxolone (the…

More

Leaders in LGS Award

The LGS Foundation recognizes Those who have made a significant Impact in the LGS community The LGS Foundation appreciates and values our community’s commitment to ending the devastation and suffering caused by LGS and recognizes the significant impact of the…

More