West Babylon, NY
Hello! My name is Jacqueline Villatoro and I am very excited to be part of the LGS community support team. I am married to Edwin and mom to Kiera (age 14) and Devin (age almost 11) my LGS child. We live in West Babylon, NY, which is on Long Island. Devin was diagnosed with infantile spasms at 4 months of age, and formally diagnosed with LGS around age 4. Over the years Devin has tried and failed more meds than I can count, he has the VNS and has gone through one battery replacement, completed multiple rounds of genetic testing (including whole exome and genome), MRIs, PET scans, etc. all with no known cause. We’ve had our good times and certainly bad with the side effects of all these medications on Devin’s personality, physical abilities, and seizures. I attended my first LGS conference in Orlando in 2017 and never looked back! The new friends and families I’ve met along our LGS journey have been an invaluable source of comfort and information. In my free time I love travelling internationally – even if it is for work! I also love gardening and spending time together outdoors where possible.