Our Board of Directors

It is a pleasure to introduce Our Board of Directors to You

Our Board of Directors brings a wealth of experience and expertise to the LGS Foundation, united by their passion for our mission to end the devastation and suffering caused by LGS.

Board President 

Karen H. Groff M.Ed. 

Past President

Natalie Gilmore

Board Member

Jacqueline Villatoro

Board Member 

Fred Roedl, MBA

Board Member 

Kat Belendiuk, Ph.D.

Board Member 

Dale Todd 

About Our Board of Directors

Our Board of Directors comprises community and national leaders with expertise in various areas, including training, advocacy, education, finance, law, fund development, and business management. Those who serve on our Board of Directors do so voluntarily, without compensation. We appreciate each of them sharing their gifts and talents with the organization.

Board members are the fiduciaries who steer the organization toward a sustainable future by adopting sound, mission-driven, ethical, legal, governance, and financial management policies, as well as by making sure the LGS Foundation has adequate resources to continue its mission for as long as it takes to end LGS.

LGS Foundation Board Member Expectations:

  • Understand and support the Mission & Vision of the LGS Foundation.
  • Commit to serving a 3-year term. This may be renewed one time for a total service of 6 years.
  • Attend all scheduled board meetings.
  • Be informed about LGS Foundation services, policies, and programs.
  • Follow important developments and trends related to LGS.
  • Assist with fundraising and give a personal annual gift to the organization.
  • Assist the board in carrying out its fiduciary responsibilities, such as reviewing and understanding the LGS Foundation’s financial statements.
  • Actively engage with and be passionate about supporting the LGS community.
  • Share their skills and expertise.
  • Respect and support majority decisions of the board.
  • Volunteer and assist in the LGS Foundation’s programs and events.
  • Participate actively in board meetings, actions, fundraisers, and public events.
  • Act as a goodwill ambassador to the organization.
  • Declare conflicts of interest regarding their position on the board and abstain from voting when appropriate.
  • Do their best to ensure that the LGS Foundation is well-maintained, financially secure, growing, and always operating in the best interest of the LGS community and the organization.

Legal Duties of a Nonprofit Board Member:

  • Care – Pay attention to the Foundation’s activities and operations.
  • Loyalty – Put the interests of the Foundation before personal and professional interests.
  • Obedience – Comply with applicable federal, state, and local laws; adhere to the LGS Foundation’s bylaws; and remain the guardians of the mission.


Updated: 06/27/2024