About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
Get Involved
- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
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Home / Team / Tricia Proefrock

Tricia Proefrock

Palm Beach Gardens, FL

I am a happily married mom of two wonderful boys, the youngest of whom was diagnosed with LGS at age 3. Mason is 100% reliant on others for every area of life, and has no self care abilities. He is nonverbal as well as physically and intellectually disabled. Yet- he has made our lives so much sweeter and he has changed me in the most meaningful ways!

Caring for my family and Working as a teacher assistant for prek – 3 year olds keeps me very busy, but in my spare time my passions are volunteering with the foundation, learning to speak Swedish, home-making, reading, and taking trips to Disney.

I believe our journey as caregivers requires receiving all the support we can get, and provides us with a wonderful opportunity to be a source of support for others. Community is everything- and I’m honored to be a part of the LGS Foundation team!