About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
Get Involved
- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
Give Now
Search

Home / Team / Darla Davison

Darla Davison

Kennedy, NY

Darla Davison and her husband Dan make their home in western New York. Parents to Aaron, age 34, who was diagnosed with LGS at age 19. Darla enjoys connecting with LGS families near and far and has great compassion for caregivers who feel alone or isolated. She is a dedicated member of the LGS Foundation community support coordinators where she supports families in her area and mentors new ambassadors to help continue this very important work. Darla shares her creativity through the management of the LGS Strong jewelry line available on the LGS Foundation website.