Kathy Leavens

Director of Programs

Kathy serves as Director of Programs for the LGS Foundation serving the LGS community. Kathy was awarded the Leaders in LGS Award in 2016. Kathy also serves as a Peer Support Specialist for the Family Support and Empowerment program since its inception in 2016, a program of the Child Neurology Foundation. Kathy earned her Bachelor of Science in Accounting from Albright College. A single mom of four boys, all of her children have overcome their own personal trials ranging from Paraplegia and rare bone cancer to experiencing great tragedy after losing their 18-year old brother with Lennox-Gastaut Syndrome (LGS) to Sudden Unexpected Death in Epilepsy (SUDEP) and their 20-year old brother to a car accident.  Kathy honors the life of her son Matthew, by serving LGS families.

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