Perampanel (Fycompa)

New Treatment for Seizures

What is perampanel? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Perampanel (the…

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Golf-A-Thon to Support the LGS Foundation

Support me as I attempt to hit 1,101 golf balls for LGS Awareness Day (Nov 1) to honor my son, John!

Donate now to honor John!   Thank you so much for showing interest in my efforts to raise funds and awareness for Lennox-Gastaux Syndrome (LGS), a rare form of epilepsy that impacts my son, John. John had his first seizure…

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Find a Doctor

Are you seeking a healthcare professional experienced in Lennox-Gastaut Syndrome (LGS)? The providers listed below have treated individuals with LGS and/or related disorders and have been recommended by families within the LGS Community. The LGS Foundation strongly recommends that individuals…

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Research Revolution Webinar

Upcoming Webinars: (Coming Soon)  Previously Recorded Webinars: September 1, 2021  During this discussion, Dr. Tracy Dixon-Salazar dives into the mysteries of the LGS journey, current research on LGS, recent therapies, and the Foundation’s plan for the future of LGS Research…

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Sibling Spotlight

Addyson (age 11)

Hi my name is Addyson Gruber. I am 11 years old and I live in Cincinnati Ohio with my brother Braxtin, my mom Katie and my dad Mark, and Braxtin’s service dog, Dawson. I am going into the 6th grade…

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About Epilepsy Surgery

Epilepsy surgery is any type of brain surgery where parts of the brain are removed, disconnected, destroyed, or stimulated to stop seizures. There are many different types of epilepsy surgeries. Which procedure is used depends upon the type of seizures…

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Vagus Nerve Stimulation (VNS)

How does the brain control heart rate, digestion, sweating, speech, chewing, and the gag reflex? Though these functions seem unrelated, they’re all controlled by the vagus nerve – a long fiber that connects the brain to the throat, heart, and…

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Deep Brain Stimulation (DBS)

New Treatment for Seizures

What Is Deep Brain Stimulation (DBS)? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS…

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Responsive Neurostimulation (RNS)

New Treatment for Seizures

What is Responsive Neurostimulation (RNS)? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey….

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Corpus Callosotomy

What Is a Corpus Callosotomy? The corpus callosum is a band of nerve fibers located deep in the brain that connects the two halves (hemispheres) of the brain. It helps the hemispheres share information, but it also contributes to the…

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