More Than a Meeting: Building Relationships
Have you ever wanted to talk to your members of Congress but weren’t sure where to start? The lessons learned from the LGS Advocates provide an opportunity to take that first step. Every August, lawmakers return to their home states…
Individuals of any age who meet the criteria for drug-resistant epilepsy (defined as failure to achieve seizure freedom after using two or more anti-seizure medications) are considered surgical candidates and are eligible for assessment. Epilepsy surgery is complex and differs…
Finding the right surgery for your LGS loved one takes time and careful planning. The full evaluation process usually takes a few weeks to a few months. While this might feel like a long wait, getting a thorough picture of…
Is My Surgeon Qualified? All surgeons must be licensed by their state. Some hospitals also require extra certifications. For children, you’ll want a doctor who has specialized training in brain surgery specifically for kids. Brain surgery in children requires extra…
What is Responsive Neurostimulation (RNS)? The word “responsive” means this device is smart, it monitors what’s happening in the brain and reacts in real time. The RNS System is a small, programmable device that continuously monitors brain activity. When it…
August 3, 2009 – August 25, 2023
Amaree Brown was never defined by her diagnosis—she defined everyone who had the privilege of knowing and loving her. From the moment she was born, we shared a bond that words could never fully describe. At just two months old,…
November 13, 2008 – July 29, 2025
Alyssa Katelynn had a personality that could light up any room. She was wonderfully sassy and always knew how to make those around her smile. If she didn’t want to do something at school, she’d pretend to be asleep. And…
Grayson’s journey of resilience, love, and life with Lennox-Gastaut Syndrome.
Grayson’s story began like many others—full of hope, excitement, and dreams for his future. But over time, it became clear that his path would look very different from what we once imagined. Just one week before his third birthday, Grayson…
September 25, 2000 – November 19, 2016
Maggie Grace Lyons loved everyone she met. Though she never spoke a word, she said so much with her beautiful blue eyes. She loved being outside—singing, swinging, and spending time with her family. Maggie adored her stuffed animals, especially her…
Kairo’s Journey with Lennox-Gastaut Syndrome
Kairo’s story began on the day of a total solar eclipse, a moment where light and darkness stood side by side. We didn’t know then how fitting that would be for his life. His seizures started when he was still…
