In Memory of Rebekah Selah Anglin

2/23/1987 - 3/24/2022

Rebekah was an emergency C-section in 1987. She progressed normally until, at 22 months, she suddenly experienced a horrible grand mal! There was several feet of snow outside, so the ambulance took a while! Her older brother by two years…

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LGS Foundation’s 12 Days of Giving

Thank you for the many ways you give to the LGS Foundation. Because you give, we can give to others. We invite you to follow throughout December to celebrate 12 important moments we’ve impacted together. Please give, and share these moments…

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2022 LGS Research Roundtable at AES

Every year, the LGS Foundation organizes the LGS Research Roundtable at the American Epilepsy Society (AES) annual meeting in an effort to #FreeTheData. Join us as we hear updates from our grant recipients and research collaborations. Registration is Open for the LGS…

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The LGS Foundation Joins Chan Zuckerberg Initiative’s Rare As One Network

The LGS Foundation is proud to be part of the Chan Zuckerberg Initiative’s Rare As One Network – a group of 50 patient-led organizations that are accelerating research and driving progress in the fight against rare diseases. The LGS Foundation…

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Behind the Mystery of LGS

On Lifetime TV's the Balancing Act

Watch the Full Episode Below: A Mom’s Journey to Understand Her Daughter’s Rare Disease Join Us as We Go Behind the Mystery of LGS Tracy Dixon-Salazar knows firsthand the devastating effect of Lennox-Gastaut Syndrome (LGS) — her daughter Savannah developed…

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Every Moment Matters Awareness Dinner Event

November 5, 2022 at the Birch Aquarium, San Diego

Thank you for helping us raise over $77,000 for LGS Research & Family Support! We can’t thank our community enough for joining us at our Every Moment Matters Awareness Dinner this past Saturday. Because of you, we can continue our…

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Our Board of Directors

It is a pleasure to introduce Our Board of Directors to You Our Board of Directors brings a wealth of experience and expertise to the LGS Foundation, united by their passion for our mission to end the devastation and suffering…

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PACIFIC Research Study for Seizures

The PACIFIC Study is a clinical trial for a drug called LP352. This study will assess the safety and tolerability of this drug as well as examine changes in seizure frequency over the 90-day treatment period. The study plans to enroll…

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Carisbamate for Seizures

What is Carisbamate? Carisbamate (the generic name), also known as Comfyde (the brand name), is a medication used to treat seizures. When taken orally, Carisbamate can inhibit voltage-gated sodium channels, which may be useful for drug-resistant epilepsy. LGS is tough….

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Caring for the Caregiver

Being a caregiver for a loved one with LGS is a commitment unlike any other. Caregiving requires limitless amounts of energy, empathy, and patience. While most caregivers will tell you that taking care of a loved one is a genuinely…

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