International LGS Awareness Day takes place every year on November 1st, kicking off Epilepsy Awareness Month and lasting throughout the entire month of November. As part of the many awareness initiatives that are organized around the world, locations in dozens…
Charles (age 10)
Life throws us curveballs. And in the fall of 2012, my wife and I got thrown a big one. At only 18 months old, Little Charles Wagner was diagnosed with Lennox-Gastaut Syndrome (LGS), a rare and severe epilepsy disorder characterized…
Are you looking for a doctor who knows about LGS? Professionals listed on this site have treated patients with Lennox-Gastaut Syndrome and/or related disorders and many have been recommended for this page by other LGS families. You can find more…
Upcoming Webinars: September 22, 2021 Following our recent LGS Research Meeting of the Minds (MoM) conference, the LGS Foundation’s Executive Director, Dr. Tracy Dixon-Salazar, will answer any questions the community may have about LGS Research, LGS Foundation Funded Grants, and…
Addyson (age 11)
Hi my name is Addyson Gruber. I am 11 years old and I live in Cincinnati Ohio with my brother Braxtin, my mom Katie and my dad Mark, and Braxtin’s service dog, Dawson. I am going into the 6th grade…
Epilepsy surgery is any type of brain surgery where parts of the brain are removed, disconnected, destroyed, or stimulated to stop seizures. There are many different types of epilepsy surgeries. Which procedure is used depends upon the type of seizures…
How does the brain control heart rate, digestion, sweating, speech, chewing, and the gag reflex? Though these functions seem unrelated, they’re all controlled by the vagus nerve – a long fiber that connects the brain to the throat, heart, and…
What Is a Corpus Callosotomy? The corpus callosum is a band of nerve fibers located deep in the brain that connects the two halves (hemispheres) of the brain. It helps the hemispheres share information, but it also contributes to the…
Children who are not eligible for surgery, or who have had limited surgical success, often attempt the ketogenic diet or vagal nerve stimulation (VNS). A newer approach targets the source of the seizure, using magnets or electricity to stimulate the…
Individuals with Lennox-Gastaut Syndrome have complex and lifelong neurological and medical needs that are unique. Often, a local care team is not familiar with LGS or may not have had another patient with this diagnosis. A visit to a Comprehensive…
