LGS Learning & Resource Center

LGS IS HARD. FINDING INFORMATION DOESN’T NEED TO BE.

The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center so those living with LGS can #NeverStopLearning

Whether it is to find a doctor, learn about epilepsy surgery, understand seizure clusters, or something else, the LGS Learning and Resource Center is here for you.

We are working hard to add topics. Is something missing? Please let us know at info@lgsfoundation.org

Create a Seizure Action Plan (SAP)

A Seizure Action Plan should be created for every individual with LGS and shared with other caregivers. What is a Seizure Action Plan (SAP)? A seizure is a medical emergency. A Seizure Action Plan (SAP) contains tailored guidelines on how…

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Keeping a Seizure Diary

Keep a seizure diary to track seizures along with other important details, such as changes in your diet, schedules for all medications, sleep patterns, and more. This diary can be a valuable resource when discussing your condition with your neurologist…

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Sudden Unexpected Death in Epilepsy (SUDEP)

Mortality due to epilepsy is a significant concern for the families of those with LGS. Seizures can sometimes be fatal for a number of reasons. Some children with LGS may lose their lives due to accidents, status epilepticus, or illness….

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Additional Resources

The following list contains links to additional resources and third-party websites. The LGS Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful…

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