The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center (LLRC) so those living with LGS can #NeverStopLearning
Whether it is to find a doctor, learn about epilepsy surgery, understand seizure clusters, or something else, the LLRC is here for you.
We are working hard to add topics to the LLRC. Is something missing? Please let us know at info@lgsfoundation.org
Individuals with Lennox-Gastaut Syndrome have complex and lifelong neurological and medical needs that are unique. Often, a local care team is not familiar with LGS or may not have had another patient with this diagnosis. A visit to a Comprehensive…
Safety Is a constant Concern for those with lGS Children and adults with LGS have frequent seizures and are at high risk of injury. Further, they may not have the ability to sense danger, may wander off from their home…
Seizure clusters and status epilepticus are common in LGS and are a seizure emergency. A Seizure Action Plan should be created for every individual with LGS and shared with other caregivers. Seizure Action Plans outline what to do during a…
A Seizure Action Plan should be created for every individual with LGS and shared with other caregivers. What is a Seizure Action Plan (SAP)? A seizure is a medical emergency. A Seizure Action Plan (SAP) contains tailored guidelines on how…
Keep a seizure diary where you record seizures along with other relevant information, such as dietary changes, the timing of medication intake of both anticonvulsants and other drugs, amount and quality of sleep, etc. This is a useful tool when…
Mortality due to epilepsy is a significant concern for the families of those with LGS. Seizures can sometimes be fatal for a number of reasons. Some children with LGS may lose their lives due to accidents, status epilepticus, or illness….
The following list contains links to third-party websites. The LGS Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our…
