LGS Learning & Resource Center

LGS IS HARD. FINDING INFORMATION DOESN’T NEED TO BE.

The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center (LLRC) so those living with LGS can #NeverStopLearning

Whether it is to find a doctor, learn about epilepsy surgery, understand seizure clusters, or something else, the LLRC is here for you.

We are working hard to add topics to the LLRC. Is something missing? Please let us know at info@lgsfoundation.org

Clobazam Oral Film (Sympazan)

New Treatment for Seizures in LGS

What is Clobazam Oral Film? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey….

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Cenobamate (XCOPRI)

New Treatment for Seizures

What is Cenobamate? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Cenobamate (the…

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Perampanel (Fycompa)

New Treatment for Seizures

What is perampanel? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Perampanel (the…

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Find a Doctor

Are you looking for a doctor who knows about LGS? Check out our list. Professionals listed on this site have treated patients with Lennox-Gastaut Syndrome and/or related disorders. Many have been recommended by LGS families in our community of support….

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About Epilepsy Surgery

Epilepsy surgery is any type of brain surgery where parts of the brain are removed, disconnected, destroyed, or stimulated to stop seizures. There are many different types of epilepsy surgeries. Which procedure is used depends upon the type of seizures…

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Vagus Nerve Stimulation (VNS)

How does the brain control heart rate, digestion, sweating, speech, chewing, and the gag reflex? Though these functions seem unrelated, they’re all controlled by the vagus nerve – a long fiber that connects the brain to the throat, heart, and…

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Deep Brain Stimulation (DBS)

New Treatment for Seizures

What Is Deep Brain Stimulation (DBS)? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS…

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Responsive Neurostimulation (RNS)

New Treatment for Seizures

What is Responsive Neurostimulation (RNS)? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey….

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Corpus Callosotomy

What Is a Corpus Callosotomy? The corpus callosum is a band of nerve fibers located deep in the brain that connects the two halves (hemispheres) of the brain. It helps the hemispheres share information, but it also contributes to the…

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Comprehensive Care Centers

Individuals with Lennox-Gastaut Syndrome have complex and lifelong neurological and medical needs that are unique. Often, a local care team is not familiar with LGS or may not have had another patient with this diagnosis. A visit to a Comprehensive…

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