The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center so those living with LGS can #NeverStopLearning
Whether it is to find a doctor, learn about epilepsy surgery, understand seizure clusters, or something else, the LGS Learning and Resource Center is here for you.
We are working hard to add topics. Is something missing? Please let us know at info@lgsfoundation.org
New Treatment for Seizures in LGS
What is Clobazam Oral Film? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey….
New Treatment for Seizures in LGS
What is Fenfluramine? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Fenfluramine (the…
New Treatment for Seizures
What is Cenobamate? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Cenobamate (the…
New Treatment for Seizures
What is perampanel? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Perampanel (the…
LGS is a lifelong developmental brain disorder and frequent, debilitating seizures are the main feature. Therapies may help, however, in most cases, they do not completely stop seizures. Seizures often change in children with LGS as they grow and develop….
Experienced LGS Providers — Across the Lifespan Looking for a healthcare professional experienced in Lennox-Gastaut Syndrome (LGS)?This directory features providers who have treated individuals with LGS and related epilepsies and have been recommended by families within the LGS community. Finding…
Seizure clusters and status epilepticus are common in LGS and are a seizure emergency. A Seizure Action Plan should be created for every individual with LGS and shared with other caregivers. Seizure Action Plans outline what to do during a…
Safety Is a constant Concern for those with lGS Children and adults with LGS have frequent seizures and are at high risk of injury. Further, they may not have the ability to sense danger, may wander off from their home…
Keep a seizure diary to track seizures along with other important details, such as changes in your diet, schedules for all medications, sleep patterns, and more. This diary can be a valuable resource when discussing your condition with your neurologist…
Mortality due to epilepsy is a significant concern for the families of those with LGS. Seizures can sometimes be fatal for a number of reasons. Some children with LGS may lose their lives due to accidents, status epilepticus, or illness….
