Keeping a Seizure Diary

Keep a seizure diary where you record seizures along with other relevant information, such as dietary changes, the timing of medication intake of both anticonvulsants and other drugs, amount and quality of sleep, etc. This is a useful tool when working with your neurologist and may assist in identifying seizure triggers. Seizure Tracker is an online tool that is free and easy to use and allows you to print reports and graphs that can be shared with medical professionals.

Watch: Seizure Types, Seizure Action Plans, & Using Technology Devices


About the Seizure Tracker App

Seizure TrackerDeveloped by parents with a son who has intractable epilepsy, Seizure Tracker® has become the world’s largest internet and mobile accessible seizure diary worldwide.

The service is free and easy to use online anywhere in the world. You can easily create a new account at www.SeizureTracker.com.
With the main goal of improving communication between patients and doctors, Seizure Tracker users can easily track and share their seizure information, medication dosages, rescue medication administration, Vagus Nerve Stimulation (VNS) implant settings and magnet swipes, diet therapy and much more. The extensive reporting features include graphs and charts that compare seizure activity alongside the therapy and lifestyle information entered into the system.

Sample Seizure Tracker Report Graph
Sample Seizure Tracker Report

Mobile and Voice Access

Seizure Tracker resources are accessible through web, mobile and home voice control systems. The iPhone and Android apps are real-time seizure recorders, offering a timer, video recording, rescue medication administration alerts and VNS magnet swipe recording. The Amazon Alexa skill allows Seizure Tracker users to record seizures with verbal interactions. Seizure Tracker focuses on providing an electronic seizure diary system that is easy to access and use. Providing the most accurate data to your care providers improves their ability to treat more effectively.

Research

Seizure Tracker users contribute to our understanding of epilepsy and help shape their own clinical outcomes. Participation in research is made easy through the Seizure Tracker Data Share system and the de-identified and unlinked population data exports. You can read about resulting research here.

For more information and to sign up online, visit www.SeizureTracker.com.


Paper Seizure Diaries

Keeping a seizure diary can be useful to help you record when your seizures happen and to see whether there are any specific triggers for your seizures. Sometimes, known triggers can be avoided to help reduce the number of seizures.

It can be helpful to take your completed diary to medical appointments to show your doctor or nurse. Information recorded in the diary can help your doctors see how effective your current treatment is and to plan future treatment with you.

How do I use the diary?

Record times and dates of seizures and how they affected you. Add other information such as details of your medical team, the types of seizures you have and any medication changes. Include any relevant information, like past illnesses during seizures or menstrual dates if applicable.

Download a Paper Seizure diary

Check out the Seizure Diary PDF from our friends at the Epilepsy Society. Use these paper diaries to record seizures one month at a time.


Updated 10/17/24 (SC)