Comprehensive Care Centers

Individuals with Lennox-Gastaut Syndrome have complex and lifelong neurological and medical needs that are unique. Often, a local care team is not familiar with LGS or may not have had another patient with this diagnosis. A visit to a Comprehensive Care Center will benefit the patient and family, allowing them to connect with knowledgeable experts and dorm a bridge to their local care provider when complex issues arise.

To qualify as an LGS Comprehensive Care Center, the center is expected to:

  • Offer a multidisciplinary approach for the treatment of Lennox-Gastaut Syndrome
  • Have a high concentration of expertise and related resources centered on LGS
  • Demonstrate a strong knowledge base and familiarity with LGS
  • Commit to furthering clinical knowledge of LGS through collaboration with others, including the LGS Foundation
  • Have involvement in studies and/or clinical trials for Lennox-Gastaut Syndrome and are knowledgeable about new treatments and cutting-edge research.

Medical professionals interested in having their center added may contact us at Jen@LGSFoundation.org for details and criteria.

LGS Comprehensive Care Centers

BOSTON CHILDREN’S HOSPITAL 300 Longwood Avenue Boston, MA 02115 www.childrenshospital.org
Clinic Lead: Annapurna Poduri, MD, MPH Director Epilepsy Genetics Program
To make an appointment: Contact Lisanna Paulino (617) 919-8282 lisanna.paulino@childrens.harvard.edu
Services offered:
  • Pediatric neurologist/epileptologist
  • Genetic counselor
  • Pediatrician
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro-psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
  • Social work
THE CHILDREN’S HOSPITAL OF PHILADELPHIA 3401 Civic Center Boulevard Philadelphia, PA 19104 www.chop.edu/centers-programs/epilepsy-neurogenetics-initiative-engin
Clinic Lead: Eric Marsh, MD, PhD Associate Professor of Neurology Epilepsy Neurogenetics Initiative (ENGIN)
To make an appointment: Contact Christina McGill 215-590-1719 ENGIN@email.chop.edu
Services offered:
  • Pediatric neurologist/epileptologist
  • Adult neurologist/epileptologist
  • Genetic counselor
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro-psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
  • Social work
CLEVELAND CLINIC 9500 Euclid Avenue Cleveland, OH 44195 my.clevelandclinic.org/departments/neurological/depts/epilepsy#overview-tab
To make an appointment: Penelope Hoytt, Intake Coordinator 216-445-0601 epilepsynursepeds@ccf.org
Services offered:
  • Pediatric neurologist/epileptologist
  • Adult neurologist/epileptologist
  • Genetic counselor
  • Pediatrician
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro- psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
  • Social work
  • Caregiver support services (i.e., monthly support group)
  • Other
CHILDREN’S HOSPITAL COLORADO 13123 E 16th Ave Box 155 Aurora, CO 80045 www.childrenscolorado.org
Clinic Lead: Kelly Knupp, MD Associate Professor of Pediatrics and Neurology Pediatric Neurology
To make an appointment: Call 720-777-6895* *Families should identify they have a child with Lennox-Gastaut Syndrome when they call for an appointment to ensure they are scheduled properly.
Services offered:
  • Pediatric neurologist/epileptologist
  • Genetic counselor
  • Pediatrician
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro-psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
  • Social work
COOK CHILDREN’S MEDICAL CENTER Jane and John Justin Neurosciences Center 1500 Cooper St, 4th Floor Ft Worth, TX 76104 cookchildrens.org/neurology
Clinic Lead: M. Scott Perry, MD Genetic Epilepsy Clinic Medical Director, Neurology; Co-Director, Jane and John Justin Neurosciences Center
To make an appointment: Contact Amy Davis, Epilepsy Program Coordinator 682-885-7259 682-885-2500
Services offered:
  • Pediatric neurologist/epileptologist
  • Adult neurologist/epileptologist
  • Genetic counselor
  • Pediatrician
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro-psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
  • Social work
  • Caregiver support services
    • Epilepsy support group meetings (on average, every 2 months)
    • Sibs2Sib program for siblings of children with chronic medical conditions
HELEN DEVOS CHILDREN’S HOSPITAL 35 Michigan St., Suite 3003 Grand Rapids, MI 49503 www.spectrumhealth.org/patient-care/childrens-health/neurosciences
Clinic Lead: Seth Devries, MD Director, Epilepsy Genetic Clinic
To make an appointment: Contact the Neurosciences Division 616-267-2500
Services offered:
  • Pediatric neurologist/epileptologist
  • Adult neurologist/epileptologist
  • Genetic counselor
  • Pediatrician
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro-psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
  • Social work
  • Caregiver support services
    • Child Life Specialist
    • Quarterly Support Group Meetings
JOE DIMAGGIO CHILDREN’S HOSPITAL NEUROSCIENCE CENTER 1150 N. 35th Avenue Hollywood, FL 33021 www.jdch.com/services/neurology
Clinic Lead: Syndi Seinfeld, DO Medical Director- Epilepsy Program
To make an appointment: Contact Shenetra Mack 954-265-3505 ShMack@mhs.net
Services offered:
  • Pediatric neurologist/epileptologist
  • Adult neurologist/epileptologist
  • Genetic counselor
  • Pediatrician
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro-psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
  • Social work
  • Monthly support group for caregivers of children with epilepsy (English and Spanish)
  • Advocacy with Epilepsy Florida
  • Assistance with IEPs and school forms
  • Behavioral therapies and services referrals
  • Access to clinical trials
  • The pediatric neurosurgeons/neuroscience team has expertise in vagus nerve stimulator implantations, responsive neurostimulation, and corpus callosotomy.
LE BONHEUR CHILDREN’S HOSPITAL Pediatric Neurology 848 Adams Street, L400 Memphis, TN 38103 www.lebonheur.org
Clinic Lead: James Wheless, BScPharm, MD, FAAP, FACP, FAAN, FAES Professor & Chief of Pediatric Neurology, Le Bonheur Chair in Pediatric Neurology; Director, Le Bonheur Comprehensive Epilepsy Program & Neuroscience Institute
To make an appointment: Contact Lauren Siebrase-Wilkes, NP 901-287-5060 laurensiebrase@lebonheur.org
Services offered:
  • Pediatric neurologist/epileptologist
  • Adult neurologist/epileptologist
  • Genetic counselor
  • Pediatrician
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro-psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
  • Social work
ANN & ROBERT H. LURIE CHILDREN’S HOSPITAL OF CHICAGO 225 E. Chicago Ave., Box 29 Chicago, Illinois 60611 www.luriechildrens.org
To make an appointment: Contact the Epilepsy Center 312-227-3540
Services offered:
  • Pediatric neurologist/epileptologist
  • Genetic counselor
  • Pediatrician
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Developmental or neuro-psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
  • Social work
Massachusetts General Hospital 55 Fruit Street Boston, MA 02114 www.massgeneral.org
MAYO CLINIC 200 First St SW Rochester, MN 55905 www.mayoclinic.org
Clinic Lead: Elaine Wirrell, MD Director of Pediatric Epilepsy Pediatric Epilepsy Clinic
To make an appointment: Call Nicole Fay 507-284-9974
Services offered:
  • Pediatric neurologist/epileptologist
  • Adult neurologist/epileptologist
  • Genetic counselor
  • Pediatrician
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro-psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
  • Social work
  • Transition clinic for LGS patients transferring to adult services
  • Access to clinic trials
NEW YORK PRESBYTERIAN HOSPITAL – WEILL CORNELL MEDICAL COLLEGE 1320 York Avenue, Ste 605 New York, NY 10021 www.weillcornell.org
Clinic Lead: Srishti Nangia, MD Director
To make an appointment: Contact Nisia Nedd; Department of Child Neurology 212-746-3278
Services offered:
  • Pediatric neurologist/epileptologist
  • Adult neurologist/epileptologist
  • Genetic counselor
  • Pediatrician
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro-psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
  • Social work
  • Caregiver support services (i.e., monthly support group)
NICKLAUS CHILDREN’S HOSPITAL 3200 SW 60th CT Suite 302 – Neurology Miami, FL 33155 www.nicklauschildrens.org
To make an appointment: Contact Gabriela Martinez 786-624-2381 Gabriela.Martinez@nicklaushealth.org
Services offered:
  • Pediatric neurologist/epileptologist
  • Adult neurologist/epileptologist
  • Genetic counselor
  • Pediatrician
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro-psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
  • Social work
  • Caregiver support services
    • Parent clinic ambassador
    • Advocacy with Epilepsy Florida
    • Help with IEPs and school forms
    • Summer camp
    • Parent-Child Interaction Therapy referral
    • Behavioral therapies and services referrals
NYU COMPREHENSIVE EPILEPSY CENTER 223 East 34th St New York, NY 10016 nyulangone.org/locations/comprehensive-epilepsy-center
The NYU Comprehensive Epilepsy Center is actively involved in multiple medication research studies.
To make an appointment: Contact Samantha Stanhope 646-558-0808
Services offered:
  • Pediatric neurologist/epileptologist
  • Adult neurologist/epileptologist
  • Genetic counselor
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro-psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
  • Social work
  • Caregiver support services
    • The Parent Network, FACES organization
    • Annual epilepsy conference for parents and caregivers
    • Lodging grants for out-of-state patients, through FACES
    • Summer Camp scholarship program, through FACES
RAINBOW BABIES AND CHILDREN’S HOSPITAL 11100 Euclid Ave Cleveland, OH 44106 www.uhhospitals.org/rainbow/services/pediatric-neurology
Clinic Lead: Asim Shahid, MD Division Chief Pediatric Neurology and Epilepsy
To make an appointment: Pediatric Epilepsy 216-286-6644
Services offered:
  • Pediatric neurologist/epileptologist
  • Adult neurologist/epileptologist
  • Genetic counselor
  • Pediatrician
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro- psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
  • Social work
SEATTLE CHILDREN’S HOSPITAL 4800 Sand Point Way NE Seattle, WA 98105 www.seattlechildrens.org
Clinic Lead: Russell Saneto, DO, PhD Professor, Neurology and Adjunct Professor Pediatrics
  To make an appointment: Dial 206-987-2078 (Neurology) Select Option 1
Services offered:
  • Pediatric neurologist/epileptologist
  • Genetic counselor
  • Pediatrician
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro-psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
  • Social work
ST. LOUIS CHILDREN’S HOSPITAL / WASHINGTON UNIVERSITY SCHOOL OF MEDICINE 660 South Euclid St. Louis, MO 63110 www.stlouischildrens.org
Clinic Lead: Mary Bertrand, MD Associate Professor of Neurology and Pediatrics
To make an appointment: Pediatric Neurology 800-678-5437
Services offered:
  • Pediatric neurologist/epileptologist
  • Adult neurologist/epileptologist
  • Genetic counselor
  • Pediatrician
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro-psychologist
  • Dietician
  • Keto clinic
  • Speech pathologist/therapist
  • Occupational therapist
  • Physical therapist
UNIVERSITY OF CALIFORNIA SAN FRANCISCO 1825 4th Street, 5th Floor San Francisco, CA 94143 www.ucsfbenioffchildrens.org/clinics/epilepsy
Clinic Lead: Joseph Sullivan, MD Director, Pediatric Epilepsy Center of Excellence (PECE)
To make an appointment: Contact Leila Marks-Block 415-353-9064 Leila.Marks-Block@ucsf.edu
Services offered:
  • Pediatric neurologist/epileptologist
  • Adult neurologist/epileptologist
  • Pediatrician
  • Cardiologist
  • Orthopedics
  • Gastroenterologist
  • Endocrinologist
  • Pulmonologist
  • Sleep specialist
  • Metabolic specialist
  • Developmental or neuro- psychologist
  • Dietician
  • Keto clinic
  • Social work
  • Caregiver support services (i.e., monthly support group
UNIVERSITY OF CALIFORNIA LOS ANGELES 300 Medical Plaza, Suite 3300 Los Angeles, CA 90095 https://www.uclahealth.org/providers/shaun-hussain
To make an appointment: 310-825-0867

If there is not a center located near you, you can look for medical professionals across the U.S. who treat and have familiarity with LGS at the link below.

Find a Doctor 

Disclaimer: LGSF does not endorse any particular care provider or center and provides this list only as a service to the community. Not all of the professionals and institutions listed on this site have the same treatment approach. Your decision to select a particular health care provider and/or treatment option is yours alone, and LGSF bears no responsibility for the care provided by any professional listed on this site or for the outcome of any treatment option you may select.