The LGS Foundation recognizes Those who have made a significant Impact in the LGS community The LGS Foundation appreciates and values our community’s commitment to ending the devastation and suffering caused by LGS and recognizes the significant impact of the…
meet the amazing doctors and scientists that make up our medical Science Advisory Council (MSAC) The amazing group of individuals that make up our Medical Science Advisory Council is taking a stand against Lennox-Gastaut Syndrome by helping our team in…
October 31st, 2022
Join us for the FIRST EVER Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland. This event is free to all registered Expo guests. Help us raise awareness of LGS. *Make sure to register for the Expo; you’ll get an…
New Treatment for Seizure Clusters
What Is Midazolam Nasal Spray? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey….
What is Cannabidiol? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Cannabidiol (the…
New Treatment for Seizure Clusters
What is Diazepam Nasal (Valtoco) Spray? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other treatments for LGS. We hope you find this information useful as you navigate your LGS journey. Diazepam…
What is Felbamate? Felbamate (the generic name), also known as Felbatol (the brand name), is an anti-epileptic drug that was approved by the Food and Drug Administration (FDA) for the management of focal seizures (previously called partial seizures) and seizures…
Charles (age 10)
Ironman Dad Raising Funds to provide Crucial Medical Equipment to Kids and Adults with LGS Charles will be competing in an Ironman competition to raise funds and awareness for the LGS Foundation’s Elevate Patient Assistance Program to help individuals like…
About Our Leadership Circle The LGS Foundation’s Leadership Circle members have the distinction of being our most supportive contributors, serving as investors in our mission, and acting as ambassadors on our behalf. Many are past Board of Director Members, and…
Thank you for an amazing 3rd Annual Swing “FORE” the Cures for LGS Lennox-Gastaut Syndrome (LGS) is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability. About 50,000 people in the United States and 1…
