Jacqueline Villatoro
Hello! My name is Jacqueline Villatoro and I am very excited to be part of the LGS community support team. I am married to Edwin and mom to Kiera (age 14) and Devin (age almost 11) my LGS child. We…
Lesa McLeod
Lesa has been actively involved with events for the LGS Foundation for the past few years. Her son, Deven experienced Infantile Spasms before transitioning to LGS by the age of 5. Lesa shared “We have learned more than we’ve ever…
Jeannie Schnur
Jeannie and her husband Carl live in Leesburg, VA with their 3 children, Jackson, Tenley and Bennett. Jackson opened their eyes to a whole new love since being on this journey with LGS. Jeannie is passionate about connecting with others…
Darla Davison
Darla Davison and her husband Dan make their home in western New York. Parents to Aaron, age 34, who was diagnosed with LGS at age 19. Darla enjoys connecting with LGS families near and far and has great compassion for…
Tricia Proefrock
I am a happily married mom of two wonderful boys, the youngest of whom was diagnosed with LGS at age 3. Mason is 100% reliant on others for every area of life, and has no self care abilities. He is…
Christy Wall
Christy Wall mom to Abbey. Abbey at 10 years old is the youngest of three: Austin-16, Aubrey-13, Abbey-10. Christy has a longstanding career as a Paramedic/Firefighter. She transitioned to RN 14 years ago and still works full-time while raising her…
Jamie Riley
Jamie resides in New Hampshire with her husband (Allen), three children (Jess, Andrew, and Alex), two horses, four cats, and hopefully a new puppy soon. Jamie proudly served as an LGS Family Ambassador for several years before accepting her role…
Amy Rose
Amy, her husband and four boys (ages 17, 13, 12, and 8) reside in Spokane Valley, Washington. Amy’s youngest son Ryder started have seizures at a very young age. By the time he was three, he was suffering from multiple…