Walk ‘n’ Wheel for LGS Research

Stepping Towards the Cures, Together!

Each year, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures, Together” Research Program.

With only a tiny fraction of public and private funds going towards research on LGS, families of the more than one million people with LGS worldwide worry that lifesaving, stabilizing treatment may not come to fruition in their loved one’s lifetime. We are here to change that! 

Thank you to our 2024 #WalkForLGS Research participants. With your support, we raised nearly $25,000 for LGS Research.

View Event Photos on Facebook

It is not to late to get involved


All proceeds benefit the “Finding the Cures, Together” Research Program. This vital program drives cutting-edge, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you’ll join us!

Frequently Asked Questions:

Online registration is simple and easy!

Simply go to LGSFoundation.org/walk-n-wheel-for-lgs and click the "Create Your Own Fundraising Page" Button.

There are two options to select from: 

  • Register to Get Your T-Shirt & Create a Fundraising Page. 
  • Don't Want a T-Shirt? You Can Just Create a Fundraising Page.

Paid registration is required. All paying registrants will receive a complimentary event t-shirt. 

Shirts will be available for pickup at both in-person locations. 

Paid virtual attendee shirts will be mailed in early April. Register by March 20th to receive your t-shirt in time for walk day!

Earn fun prizes while you raise awareness!

Fundraising prizes are cumulative, giving you the opportunity to earn all three prizes.

All prizes are exclusive to personal fundraisers who reach these goals…There is no other way to order these items!

  • Raise $350 - #WalkForLGS Tube Socks
  • Raise $700 - #WalkForLGS Polo-Shirt 
  • Raise $1,500 - #WalkFor LGS Engraved Yeti Rambler (*2024 Exclusive - Lilac) 

All donations must be made through your individual personal fundraising page or be mailed directly to the LGS Foundation with a note indicating whose fundraiser the donation should be applied to for the purpose of the fundraiser tier prizes.
We are unable to count Facebook fundraisers, corporate matching gifts, or team totals for this contest.

Deadline to receive donations is April 30, 2024. Prizes will be mailed out in May 2024.

It’s not as hard as you might think to fundraise for a cause that affects you and your loved ones.

Check out our FUNDRAISING TOOL KIT for best practices and plenty of tips and tricks on how to raise critical funds and awareness for Lennox-Gastaut Syndrome (LGS).

We encourage everyone to stay connected by liking and sharing the LGS Foundation Facebook page for announcements, contests, and prizes.
Be sure to post about your participation in the Walk ‘n’ Wheel on your personal social media accounts.

Need help with posts? Download the SOCIAL MEDIA TOOLKIT for tips, tricks, and ideas on ways to share your excitement.

We want to see your photos and videos, so help us find your social media posts. Be sure to tag @LGS_Foundation on Facebook, Instagram, and Twitter. Hashtags are another easy way to find posts, so include #WalkForLGS when you share!

As a virtual walker, runner, or rider, you’ll join hundreds of other participants across the country with the freedom to take part in whatever capacity you can!

You can also help us promote virtually through your social media posts. Also, check out our FUNDRAISING TOOLKIT, which offers lots of ideas to help you succeed!

We offer several ways to get involved:

  • Volunteer at an in-person event. Contact Kayleigh@LGSFoundation.org for volunteer information.
  • Like and share the LGS Foundation's Social Media Pages. 
  • Become a sponsor!
  • Donate to support our fundraising efforts.

This event is made possible with support from our friends at:

Gold Sponsor
Silver Sponsor

Thank you supporting our

8th Annual Walk 'n' Wheel for LGS

With your help, we've raised over $44k for LGS Research, putting us at 73% of our $60k goal.

Keep the momentum going! There is still time to be part of funding life changing research. 

Give Now to support LGS Research

The LGS Foundation held its 7th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome on March 26th, 2022 to raise awareness and increase funding to accelerate research on Lennox-Gastaut Syndrome (LGS), a rare and often debilitating form of early-onset epilepsy. Approximately 1,000,000 children and adults worldwide have LGS.

The 2022 annual #WalkForLGS raised over $48,000, nearly 78% of our $60k fundraising goal!

​Although great strides have been made, more work needs to be done.

We are not done yet…

With only a tiny fraction of public and private funds going towards research on LGS, families of the more than one million people with LGS worldwide worry that lifesaving, stabilizing treatment may not come to fruition in their loved ones lifetime. The LGS Foundation’s Cure LGS 365 Research Grants Program is combating these fears.

Hundreds of  LGS families and community members came together on June 5th, 2021 to Step Towards a Cure for LGS! Together our community pledged Over 1 Million Steps and Raised Over $60,000 for Research into Lennox-Gastaut Syndrome.

Watch the 2021 Walk Video



Updated 4/30/2024