Join us on Saturday, April 27th as The LGS Foundation unites in Washington DC for the 12th Annual National Walk for Epilepsy. Registration is now open! Below you will find helpful links to register and get involved.
Join Team LGS Foundation 2019
SATURDAY, APRIL 27, 2019
Help Raise Awareness of Lennox-Gastaut Syndrome! Each year, the LGS Foundation helps bring together dozens of LGS families from across the United States to walk together and raise awareness of LGS.
How to get started:
1. Register to walk with Team LGS Foundation (for free).
2. During the registration process, you will be asked for your t-shirt size for your 2018 LGS Foundation walk shirts
3. You can also register for the LGS Meet & Greet Reception. Registration is complimentary and includes appetizers, cocktails and soft drinks, and an opportunity to meet other LGS families before the walk.
The 2019 National Walk for Epilepsy is 3.1 miles. The start line will be just north of the Smithsonian Metro Station. Stay tuned for an exact meeting spot for members of Team LGS Foundation.
Saturday, April 27 @ 8:30am
Hotel, Meet & Greet Information 2019
The 2019 LGSF Team Meet & Greet will take place on Friday, April 26th from 6pm - 8pm. Location TBD
A room block has been set up at the newly renovated Residence Inn Capitol Hill.
Residence Inn Capitol Hill, DC
Rate = $169/night plus tax for a studio suite or $179/night for a
one bedroom suite with two double beds.
Hotel amenities include an indoor pool, free wifi, restaurant, and free
Please call 202-484-8280 and mention LGSF to book.
Cut-off date is 3/25
Frequently Asked Questions
Why do I need to register through the LGS Foundation?
The LGS Foundation asks that you register for the walk through the LGSF registration page and click by "join now" so we determine how many people are joining our team, attending the reception, and how many t-shirts/sizes to order.
What is firstgiving.org?
First Giving is a reliable and secure fund raising site which we use to help facilitate the registration. It may also be used to raise additional funds for the LGS Foundation's mission of funding research in LGS and providing programs to individuals with LGS and their families.
What is the LGS Meet & Greet/ Reception?
The LGS holds a reception for LGS families the evening before the National Walk each year. All families who register to walk with Team LGS Foundation through our firstgiving site are invited. The event runs from 6pm - 8pm and is free to attend.
Should I register through the Epilepsy Foundation?
The LGS Foundation recommends that you also register for the walk through the Epilepsy Foundation by clicking here and agreeing to their terms and conditions. However, this is not required to join the Team LGSF events.
What are the registration fees for the walk?
Registration is free to join "Team LGS Foundation". Registration on the Epilepsy Foundation website is $35 for adults and $20 for children.
Do I receive a t-shirt?
You will receive a t-shirt from the LGS Foundation as long as you register before 4/5. T-shirts will be distributed during the Meet & Greet or the morning of the walk. You will receive an Epilepsy Foundation t-shirt if you register through their website.
How long is the walk?
The walk is 3.1 miles.
More information about our team can be found here.