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Diazepam Nasal Spray (Valtoco)

New Treatment for Seizure Clusters

What is Diazepam Nasal (Valtoco) Spray? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other treatments for LGS. We hope you find this information useful as you navigate your LGS journey. Diazepam…

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Felbamate (Felbatol) for Seizures in LGS

What is Felbamate? Felbamate (the generic name), also known as Felbatol (the brand name), is an anti-epileptic drug that was approved by the Food and Drug Administration (FDA) for the management of focal seizures (previously called partial seizures) and seizures…

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LGS Foundation’s Leadership Circle

About Our Leadership Circle The LGS Foundation’s Leadership Circle members have the distinction of being our most supportive contributors, serving as investors in our mission, and acting as ambassadors on our behalf. Many are past Board of Director Members, and…

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Lamotrigine for Seizures in LGS

What is Lamotrigine? Lamotrigine (the generic name), also known as Lamictal (the brand name), is a medication used to treat epilepsy and stabilize mood in bipolar disorder. For epilepsy, this includes focal seizures, tonic-clonic seizures, and seizures in Lennox-Gastaut syndrome….

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Fenfluramine (Fintepla)

New Treatment for Seizures in LGS

What is Fenfluramine? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Fenfluramine (the…

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Clobazam Oral Film (Sympazan)

New Treatment for Seizures in LGS

What is Clobazam Oral Film? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey….

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Cenobamate (XCOPRI)

New Treatment for Seizures

What is Cenobamate? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Cenobamate (the…

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Perampanel (Fycompa)

New Treatment for Seizures

What is perampanel? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Perampanel (the…

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Find a Doctor

Are you seeking a healthcare professional experienced in Lennox-Gastaut Syndrome (LGS)? The providers listed below have treated individuals with LGS and/or related disorders and have been recommended by families within the LGS Community. The LGS Foundation strongly recommends that individuals…

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Listening to and Supporting LGS VIP Siblings

Get Your VIP Caregiver & Sibling Kits Today

First, we listened! It can be hard for brothers and sisters when a sibling has a chronic illness like LGS. This has disrupted their routines, and they worry and wonder what is happening and if their sibling will be alright….

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