2023 LGS Meeting of the Minds

2023 LGS Meeting of the Minds: Advancing Clinical Research -Save the Date- September  13-15, 2023: Researcher Meeting Days September 16, 2023: Family Science Day The LGS Foundation is hosting its second Meeting of the Minds to discuss how we can…

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Trick or Treat for LGS

Order your free About LGS Trick or Treat cards and spread awareness during Halloween.

Order Your About LGS Trick Or Treat Cards Today! (Available in English and Spanish) Front of card Back of card Cards are business card sized (3.5 inches x 2 inches) and come in packs of 25. Cards shipped while supplies…

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Get Your LGS Awareness Box

Raise Awareness All November Long

  Each LGS Awareness Box includes: Yard Sign w/ Stake Vehicle Magnet  Chico Carrying Bag Light Up Bracelets/Necklace Handmade Windchime Trick-or-Treat Cards ‘How to Illuminate’ Guides Sorry, but we’re all sold out!

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Community Participation Guidelines, Audio Visual Waiver, Covid-19 Policies, and Release of Liability

COMMUNITY PARTICIPATION GUIDELINES: Throughout our work, the LGS Foundation is part of, supports, and directly works with many different communities. Within those communities, the LGS Foundation is committed to creating and maintaining an environment where everyone is welcomed, respected, and…

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List of Treatments for Seizures

This page offers a list of FDA- approved treatments often used in those with LGS. Not all medications used in LGS are listed here. This list reflects U.S. FDA-approved medications. For info on epilepsy treatments in the U.K. visit this…

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A Sister’s Love

Songs Inspired by her Brother Help Raise Awareness of LGS 

On November 1, local artists and LGS community members joined the LGS Foundation in Santa Monica, California to help raise awareness and funds for Lennox-Gastaut Syndrome. Meet the Artist: Christina Apostolopulos Hi, my name is Christina and my younger brother…

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Fighting for a Cure for LGS

Savannah (age 28) & Tracy's Story

According to my records, I’ve witnessed more than 40,000 seizures—a remarkable number, even for a medical professional. Still, I’m not a medical doctor. I’m a mom. I remember the first seizure vividly. I awoke to the sound of choking coming…

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Create a Seizure Action Plan (SAP)

Seizure clusters and status epilepticus are common in LGS and are a seizure emergency. A Seizure Action Plan should be created for every individual with LGS and shared with other caregivers. Seizure Action Plans outline what to do during a…

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