Kayleigh Keen, Author at LGS Foundation

Home / Archives for Kayleigh Keen / Page 12

Seizures and Study: One Mother’s Journey to Cure Lennox-Gastaut Syndrome

How Tracy Dixon-Salazar, PhD, the executive director of the LGS Foundation, went from a new mother to a neuroscientist, and her decades-long quest to improve the lives of patients like her daughter, Savannah.

Many who make the decision to enter the medical science field are often driven by a desire to help others. Physicians take the Hippocratic Oath and swear to treat the ill and do no harm, and researchers are, many times,…

Swing “FORE” the Cures for LGS

Thank you for an amazing 3rd Annual Swing “FORE” the Cures for LGS Lennox-Gastaut Syndrome (LGS) is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability. About 50,000 people in the United States and 1…

Additional Resources

The following list contains links to additional resources and third-party websites. The LGS Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful…

Our Medical Science Advisory Council

meet the amazing doctors and scientists that make up our medical Science Advisory Council (MSAC) The amazing group of individuals that make up our Medical Science Advisory Council (MSAC) is taking a stand against Lennox-Gastaut Syndrome by supporting the Foundation’s…

Clobazam Oral Film (Sympazan)

New Treatment for Seizures in LGS

What is Clobazam Oral Film? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey….

Fenfluramine (Fintepla)

New Treatment for Seizures in LGS

What is Fenfluramine? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Fenfluramine (the…

Cenobamate (XCOPRI)

New Treatment for Seizures

What is Cenobamate? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Cenobamate (the…

Perampanel (Fycompa)

New Treatment for Seizures

What is perampanel? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Perampanel (the…

The LGS Foundation and the Chan Zuckerberg Initiative Rare As One Network

The LGS Foundation is proud to be part of the Chan Zuckerberg Initiative (CZI) Rare As One Network – a group of 50 patient-led organizations that are accelerating research and driving progress in the fight against rare diseases. The LGS…

Josie’s Story

Every mother will say their child is special. But my sweet Josie truly is. She is the definition of a warrior.

My name is Zoe Rabun and I am the mother to our beautiful daughter, Josie Rabun (3). We first noticed unusual behavior with Josie at the age of 9 months. She would wake up in her sleep and have these…