Patient Focused Drug Development (PFDD) Meeting

On November 1, 2019, the LGS Foundation convened the first patient-focused drug development meeting (PFDD) for the DEEs (developmental and epileptic encephalopathies) including Lennox-Gastaut Syndrome in College Park. Over 100 people ranging from patients, caregivers, FDA representatives, pharmaceutical companies, device…

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LGS Research Grant Program

​Our 2021 Research Grant Cycle: CLOSED​ The LGS Foundation’s seed grant program awards one-year research grants up to $30,000 and two-year grants up to$50,000 (the LGS Foundation does not permit indirect costs) to young investigators, physician residents, and clinicians who…

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Key LGS Publications for Healthcare Providers

The following are key publications in LGS that are open access and free of charge. 2019: Seizure burden in seizure early-life epilepsy: Perspectives from parents (Berg et al. Epilepsia Open, 2019) The direct cost of seizure events in severe childhood-onset…

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LGS Treatment Pipeline & Clinical Trials

What is a Clinical Trial? Clinical Trial Phases Phase I: Researchers test a new drug or treatment in a small group of healthy volunteers and/or people with the disease for the first time to evaluate its safety, determine a safe…

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LGS Research Meeting of the Minds: Finding Disease-Modifying Therapies for LGS

The LGS Foundation is organizing the first-ever Meeting of the Minds professional conference to find disease-modifying therapies and cures for LGS. This two-day Virtual Conference will bring together patients, families, doctors, researchers, industry partners, and advocacy organizations to discuss progress…

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Research Grant Recipients

Meet Our 2021 LGS Foundation Research Award Winner Dr. Jennifer Kearney, Northwestern University RNA Modulation in KCNB1 Model of LGS Lennox-Gastaut Syndrome (LGS) is a severe pediatric epilepsy syndrome that includes a characteristic EEG pattern, some degree of cognitive impairment, and…

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Finding the Cures, Together

“Together we can change the future for those with Lennox-Gastaut Syndrome.” What is LGS? Lennox-Gastaut syndrome (LGS) is a severe form of epilepsy that typically becomes apparent during infancy or early childhood. Children with LGS experience frequent, uncontrollable seizures and…

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