Voices of LGS and Natural History
The LGS Foundation is harnessing the power of the patient family community to ensure that research, care, support services, education, and awareness of LGS are relevant for those living with LGS and their loved ones. Learn About LGS from those…
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Patient-Focused Drug Development (PFDD) Meeting
The LGS Foundation was proud to host the DELVE Meeting on Developmental and Epileptic Encephalopathies (DEEs) & Lennox-Gastaut Syndrome (LGS) An Externally-Led Patient-focused drug development (PFDD) meeting on DEEs & LGS On November 1, 2019, the LGS Foundation convened the…
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Cure LGS 365 Research Grants *New*
accepting applications for lGS Research 365 days a year 1 Year. 365 Opportunities. How to Apply The LGS Foundation accepts unsolicited proposals year-round to seed new basic, translational, and clinical LGS research projects. Projects may be funded at the $25,000,…
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Key LGS Publications
The following are key publications in LGS that are open access and free of charge. 2019: Seizure burden in seizure early-life epilepsy: Perspectives from parents (Berg et al. Epilepsia Open, 2019) The direct cost of seizure events in severe childhood-onset…
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Clinical Trials in LGS
What is a Clinical Trial? Clinical trials are research studies performed in those with a medical condition like LGS. They scientifically evaluate a medical or surgical intervention. They are the primary way that researchers find out if a new treatment,…
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LGS Research Meeting of the Minds Conferences
LGS Meeting of the Minds Professional Conferences & Family Days These multi-day Virtual Conferences bring together patients, families, doctors, researchers, industry partners, advocacy organizations, governmental agencies, regulators, and others to discuss progress to date in understanding LGS, pre-LGS, and how…
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Research Grant Recipients
The LGS Foundation is dedicated to funding the highest caliber research on LGS and associated epilepsies. Our focus is on research projects that will find new treatments and improve the quality of life for those living LGS. 2021 Research Grant…
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Help Us Find the Cures, Together
Together we can change the future for those with LGS. What is LGS? Lennox-Gastaut Syndrome (LGS) is a severe form of epilepsy that typically becomes apparent during infancy or early childhood. Children with LGS experience frequent, uncontrollable seizures and suffer…
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