Stepping Together for a Breakthrough!
April 2026: Together for a Breakthrough
A Global Movement. Powered by Community.
April is Walk Month for Lennox-Gastaut Syndrome.
Across the globe, families, advocates, clinicians, and partners will step forward together—walking, wheeling, fundraising, and leading locally—to raise awareness, strengthen connection, and accelerate progress for Lennox-Gastaut Syndrome.
📅 April 2026
📍 Communities Worldwide
✨Global momentum. Local leadership. Real impact.
Host a Walk | Join a Local Walk | Start a Personal Fundraiser | Spread Awareness | Order Walk Apparel
- Walk Month spans the entire month of April
- Expanded opportunities to host locally as part of a global movement
- Peer-to-peer fundraising tools to help amplify impact
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A refreshed experience built for community leadership and connection
Local walks are led by families, caregivers, advocates, and supporters who want to bring the #WalkForLGS to their own communities.
Get Involved – Together for a Breakthrough
Walk Month is where community turns into progress.
Whether you’re walking, hosting, fundraising, or sharing your story, getting involved means helping move research forward, supporting families navigating LGS today, and strengthening a global community committed to change.
Every story shared. Every dollar raised. Every step taken—moves us closer to a breakthrough.
Why Getting Involved Matters
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Advances patient-driven, collaborative research
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Supports progress toward better treatments and continuity of care
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Ensures families affected by LGS are seen, supported, and not alone
Breakthroughs don’t happen by chance.
They happen when communities show up—together.
Walk Month is Happening in Communities Like YoursThroughout April, communities are coming together to host local Walk for LGS Research events—each led by families, caregivers, advocates, and supporters.
These walks are the heart of Walk Month. Whether you’re attending, fundraising, or cheering from afar, every walk moves us forward—together.
Don’t see a walk near you?
Local leadership powers this movement. 👉 Explore what it means to host a local walk
If you’re participating in a local walk—or supporting one from afar—there are many ways to get involved.
Peer-to-peer fundraising is one powerful way to amplify the impact of local walks by rallying your personal network around your “why.”
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Create a personal fundraising page
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Share your story and invite others to support you
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Track progress and see your impact grow in real time
Need help getting started? Our Peer-to-Peer Fundraising Toolkit includes ready-to-use tips, templates, and ideas to support you every step of the way.
Visibility matters. Sharing your support helps raise awareness for Lennox-Gastaut Syndrome and reminds families they are not alone.
Show your support and help create visibility for Lennox-Gastaut Syndrome during Walk Month.
Walk shirts and hoodies are now available and designed to help unite communities across the globe as we step Together for a Breakthrough.
Wear your shirt:
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At your local walk
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While fundraising or sharing your story
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Anytime you want to show support for the LGS community
💜 Every shirt worn helps make LGS more visible.
Shop Walk Month Shirts & Hoodies
Share your photos during Walk Month using #WalkForLGS.
A Global Community, Stepping Forward Together
Lennox-Gastaut Syndrome knows no borders—and neither does this movement.
Throughout April, communities around the world will take part in a shared effort to make LGS visible, elevate lived experience, and fuel the research and collaboration needed to move care forward.
What makes this movement powerful isn’t just its global reach—it’s its local heart.
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Families leading in their own communities
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Advocates turning personal journeys into collective action
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Partners standing alongside a united, worldwide community
Together, these local efforts create global momentum.
Support Ongoing Research Efforts
GIVE NOW TO SUPPORT LGS RESEARCH
Previous Walk Events
Thank You for Making the 10th Annual Walk ‘n’ Wheel a Success
Thank you to everyone who joined us on April 26, 2025, for the 10th Annual Walk ‘n’ Wheel for LGS Research. Our community stepped together for a breakthrough—and made a real impact.
Thanks to your incredible support, we raised over $35,000 to fund the Consensus Opinion Project, an initiative uniting leading experts to establish formal standards of care for Lennox-Gastaut Syndrome. This work is a critical step forward in optimizing treatment, advancing research, and creating a clearer roadmap for patients and families.
Together, we are shaping a better future for our loved ones living with LGS.
Thank you supporting our
8th Annual Walk 'n' Wheel for LGS
With your help, we've raised over $44k for LGS Research, putting us at 73% of our $60k goal.
Keep the momentum going! There is still time to be part of funding life changing research.
The LGS Foundation held its 7th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome on March 26th, 2022 to raise awareness and increase funding to accelerate research on Lennox-Gastaut Syndrome (LGS), a rare and often debilitating form of early-onset epilepsy. Approximately 1,000,000 children and adults worldwide have LGS.
The 2022 annual #WalkForLGS raised over $48,000, nearly 78% of our $60k fundraising goal!
Although great strides have been made, more work needs to be done.
We are not done yet…
With only a tiny fraction of public and private funds going towards research on LGS, families of the more than one million people with LGS worldwide worry that lifesaving, stabilizing treatment may not come to fruition in their loved ones lifetime. The LGS Foundation’s Cure LGS 365 Research Grants Program is combating these fears.
Hundreds of LGS families and community members came together on June 5th, 2021 to Step Towards a Cure for LGS! Together our community pledged Over 1 Million Steps and Raised Over $60,000 for Research into Lennox-Gastaut Syndrome.
Watch the 2021 Walk Video
Updated 03/12/26 (KK)